I cant accept I'm Dying

Hi all my name is Maria and I am 53 years young, I was diagonised with breast cancer 18 months ago and celebrated my 12 month remission in December 2018.  Then due to having a constant cough I visited my doctor in January and following an x-ray foun nodles on my lungs.  Following this I then had a CT scan.  The results were devastating.  I have stage 4 bowel cancer with secondary in both liver and lungs and the lmph nodes.  I was given 12 months to live.  I am currently waiting for a stent to be fitted in my colon on Thursday, then having a port fitted in my chest next week to start the the chemo.  Without the Chemo I have been told i have 6-9 months left, with the Chemo they have said if it works this may extend to 2 years.  I am terrified that if it dosent work I won't see christmas.

 

Normally when you are ill you go to doctors/hospital you get treated and get better, I cant get my head around the fact that I am never going t get better.  I am terrified of dying and l keep praying for a miracle and cant accept that im not going to get better.  Sorry for going on but wondering if anyone else out there is going throuhg the same xxx 

  • Oh Maria....words fail me! Can I ask you what your lump was? Mine was grade 2 invasive her2 pos, and I literally live in fear of it returning, I'm currently halfway through chemo....did you have chemo first time around? 

    What support do you have at home? Are there any groups you can go to? You need to be able to talk about this...I do know of a couple people on here who are " outliving " their prognosis, and hopefully they will be along to offer wise words...

    I can't even begin to imagine what your going through you must feel like your trapped in a nightmare. I hope you gain some comfort from this forum....it's a safe place to get your feelings out there....

    I will be looking out for you and praying you respond well to the treatment.

     

    xxxxx

  • hi thank you for your kind words, the breast cancer was stage 2 hr positive, but they have said the primary is the bowel so they dont think it was related to the breast althought I am not too sure.  I had lumpetomy then 15 sessions of radiotherapy.  I am sure you will be fine and once the treatment has finished you will be fine, are you taking tamoxifan as that will also dramatically reduce the risk of it coming back.  Yes i have the most wonderful husband who is there for me and friends around, but I dont think they fully understand how you feel unless you have been through cancer yourself xx  

  • Hi Maria I'm in a similar situation to you only mines a bit slower I was diagnosed with non curable prostate cancer in 2016 it went to lymph nodes, bones (ribs, pelvis and spine) and 1 lung, I had kemo it stopped it spreading any more and cancer count went down till middle of last year when it gets so hi more kemo trouble is its going up slowly all the time till its to hi for treatment I know it normally 5 years I've had 3 so its getting near the end of time for me as well trouble is I've a disabled wife I look after I still haven't told her yet I don't know how to, have to work it out soon, try to keep busy it does help maybe talk again soon.

    Billy 

  • So they reckon it was in the bowel first? And the breast was a completely different cancer? I wasn't going to go through with chemo ( as it's a flush) but talked it through with hubby and I couldn't bear the thought of a rogue cell, so throwing everything at it now in the hope of it staying away but it's a lottery isn't it? As your all too painfully aware of. I'm  post menopausal so will be on anastrozole ( we're the same age) are you on meds? 

    Theres a fantastic guy on here called Davek, he's proving all the experts wrong, look him up and read his profile, he's a complete inspiration. Billygoat is another one who's bucking the trend, I'm hoping they will see your post when they pop into the forum and can offer you some wise old words...

    Im so pleased you have a good support network around you, and your right about the cancer thing....people try and say the right things but there are no right things to say when you have cancer....although I have to say one of my residents ( I'm the warden of a residential home) replied to me when I told her about my cancer....." **** buggar...**** buggar....." and all the swear words under the sun!!! And somehow...she managed to completely sum up how I was feeling....

    xxxxx

  • Oh bless you billygoat for coming along! I didn't realise you hadn't told you wife, do you have children? I suppose you can only take it a day at a time, it's a difficult call to make....I think your fab, finding the time to post here when your dealing with so much. Your an asset to the forum xxxx

  • Hi marlyn I've 2 step sons, gran daughter grand son and 5 great grand children I get called dad or grandad so I don't mind been married over 45 so haven't done bad. Wife was married before but husband was killed in a factory accident I got to know her through one of her sons we worked together, wife is 13 years older than me weave been happy together that's all that matters. P.. S. It's nice to tell someone this..

    Billy. 

  • It's good to find your soul mate, I've been with mine since I was 16...I think we're lucky...xxx

  • Hi Maria try one day at a time if you feel OK weather good go out somewhere. Make the best of what you've got. Do you go on holiday normally each year (enjoy) I know I'm being nosy do you have any family (have a party) try to carry on as normal I know you can't every day, try to make the best of what you've got. Good wishes.

    Billy 

  • Hi Marlyn. 

    I am very sorry to hear your news. I myself am not going through this but my best friend has terminal ovarian cancer, I have watched and supported her through everything. My friend is very tired now. 

    All I will say is you MUST live everyday like it’s your last, eat the cake, ride the rollercoaster, feel the sun on your skin, feel the rain on your face, laugh, love, don’t fret that the car won’t start or you have a filling at the dentist. These are trivial as you will know to someone with cancer. 

    Take the holiday, eat your favourite foods, dance, walk go to the country.

    My advise would be to tell only immediate family, from seeing my best friend, she became cancer, it’s all anyone ever asked her, she’s very weak now. She just wanted to Claire, But she isn’t she’s 39 years old. 

    From this learning curve personally I wouldn’t tell my friends I would want to be me not cancer. 

    All I can say is I know what your going through. 

    Xx

  • Hi MagicMaria, I can't even begin to imagine the disbelief and fear you must feel but I experienced my dad's lung cancer journey as I was at his side every step of the way. He too had a minor cough. Doctor discovered he had a 7cm tumor in his right lung; stage 4 non small cell lung cancer. Two different doctors in two different states (Florida and Texas) told us that without treatment, dad would only have "months" to live but with aggressive treatment (chemo and radiation), dad would have maybe 9mos to a year. My family and I opted for no treatment. We chose quality over quantity. We preferred dad have a decent few months VS a miserable year as the "treatment" could be worse than the disease itself. My dad passed away only 17 weeks after diagnosis. He was one month shy of his 79th birthday. In your situation, no one can advise you on which route to go as there is no cure for lung cancer BUT you're still rather young and strong! You have a fighting chance! There are newer treatments such as Keytruda, CyberKnife and other immunotherapies, etc. Get multiple professional opinions. Definitely look into natural foods and change your lifestyle if need be. Pray, pray and pray! I have faith in you and in the Lord. Trust in the Lord as he has a perfect plan.