Dad is terminal

My dad has been through esophageal cancer which was removed but then spread to his lungs.  This was 2 years ago in January - he was told he had a year, maybe a bit more but not years  to live - for the last 3 months it has been either not growing or very slow growing (intially diagnosed as being very aggressive) on Monday he was told his last scan in January has shown it has doubled in size and he has some fluid on his lung.

My worry is what to expect as his health deteriorates.  Someone told me he will effectlvely drown!  I don't want to see that and can't bear thinking about it!  Can anyone give me some advice or support.  I'm devestated it's come to this.  I lost my youngest brother 4 years ago to cancer and now it's going to claim my Dad too :(   Just reaching out and looking for some support.  Thank you

  • Hi Susiewoo – I'm so sorry about your devastating news. I recently lost my Dad to pancreatic cancer so I can totally relate to what you're saying. My advice would be to speak to your healthcare provider, doctor, oncologist, nurses, hospice, whoever that may be, so that they can tell you what you can expect throughout the process. Some of the stuff is pretty hardcore, so it depends, on whether you want to know everything, but personally, I found researching this quite helpful as not knowing was making me more anxious than not having the information. Thinking of you x

  • Hi London88  thank you for your reply.  Sorry to hear of your loss.  Can't image what my life will be like him without him. 

    I have read some bits about it and that says 6 months life expectancy.  He will be going through another treatment of chemo (last 2 didn't work so not hopeful it will this time) in the hope that this will extend his life.  I have asked my Mum if they gave him any indictation of how long he would have left and she said they didn't.  I don't know if they didn't because it's stressful for him to know or because there is no time they can give him??  I'm guessing it's the first option :(

    I will do some more research but it's upsetting to read.  I know everyone is different so it doesn't apply to everyone.  It's such a horrible disease, so unforgiving and unfair :( 

    Sending love and hugs to you for you loss xx

  • It is a horrible disease. Only other thing I would say is that you take it each day at a time. I know it's easier said than done, but anticipatory stress or anxiety can be very debilitating. I'll be thinking of you and hoping the new bout of chemo works xxx

  • Hi Susiewoo,

    We are in a similar boat :(

    My dad was ready for the esophageal cancer operation a few weeks back after intense radio and chemo to be told it had spread to his liver. We were given the blow this week that he can't even have chemo as the ducts are blocked and it is agressive.

    It is so painful to not only see him so upset, but because of the esophageal cancer not even being able to enjoy the small things in life like eating.

    I don't know how long we have, but I am 34 weeks pregnant and praying every day he will meet his first grandchild and spend some quality time with them.

    Just needed to say I know how you feel right now and it is heartbreaking x

  • Bless you sunshine1987, I'm so sorry to hear that you are in the same situation.  My dad had the esophageal surgery that did get rid of it from there but it was life changing for him.  He can't eat too much, can't enjoy a pint of beer because it's too much for him and has to sleep sitting up but he's still here.  Lost a lot of weight as you would do not eating properly but then his spread to his lungs.  It's hard sitting back and not being able to do anything about it.

    I lost my brother to bone cancer 4 years ago, he was only 38.  His passing was a shock because he had been fighting it for 8 years and then it just over took him and he passed away in his sleep.  Not sure what is worse, getting a call to say they have gone without any warning or watching and waiting.  Either way it is so painful.

    Sending you my love and thoughts and hope that your Dad is able to meet his first grandchild xx

  • I can’t even begin to imagine how you cope with more than one horrific event, my heart really goes out to you. 

    Until experiencing something like this you can have all the sympathy in the world for others, but now I can appreciate truly what a living nightmare it is and the pain so many have gone through. 

    I don’t know what’s worse either and I often wonder this. I personally have always been very close to my family so don’t feel I have any regrets or anything I even need to say, but I guess for some the time albeit painful is best for them so they can say what they need to. 

    Also sending you everything positive and all the strength in the world, we will get through this one way or another x

  • Keep me posted on your Dad.  I'm here for you if you need to talk, sound off or just want to say hi.

    Strength in numbers xx

  • Hi Susiewoo,

    I’m very sorry to hear about your Dad and I can totally sympathise - my Gran is terminal too with oesophageal cancer. She was first diagnosed New Years Eve 2009 and received chemo and radio for a number of months. It seemed to keep it at bay for a while, albeit she struggled with her eating. Fast forward to 2018 and it’s back with a vengeance. It spread to her voice box which resulted in her having to have part of it lasered away which helped with her breathing but of course, affected her speech. We’re now pretty sure it’s reached her lungs. 

    At the moment she is in the Marie Curie Hospice. I have to say the staff have been amazing and my gran looks so much more relaxed and comfortable since being moved here after spending almost 3 weeks in hospital. My gran had a peg feed fitted in October last year as her swallowing became so bad - some days she couldn’t even drink water. 

    My advice would be to take each day as it comes. You will have good days and bad days. Spend as much quality time with him as possible. It might be worthwhile chatting to Macmillan, Marie Curie or something like that for some extra advice. 

    I agree that it’s a horrific thing to watch someone go through - some days it’s unbearable. It’s also sad that they can’t even enjoy the simple things in life like a beer or a nice home cooked meal anymore.

    Sending lots of love and hope the chemo gives you more quality time with him. 

    Siobhan x