Bowel cancer. Nothing more can be done.

I just wanted to get my story out there. My dad died of bowel cancer last week. 

He was diagnosed last August after taking himself to A&E with constipation pains. The following day he received emergency surgery to remove a huge rumour together with his colon. He had an ileostomy fitted and seemed to recover really well. 

He then had the news that it had spread through the peritoneum and that there was no cure/treatment but that chemo might shrink it enough to give him a couple more years. 

The first chemo didn’t go well and he was rushed to hospital with an infection. They discovered an impaired kidney and so fitted a nephrostomy. 

Time went by, infection after infection. E-coli and sepsis but he still fought back. 

6 moths after first diagnosis he was rushed in again. CT showed an obstruction in his stomach. They tried steroids to shrink blockage but that didn’t work. 

They said nothing more could be done and that he should move to a hospice. It could only be a few weeks. 

 

3 days later he passed away with all of us by his side. 

I know this probably sounds blunt but I was looking for similar stories to my dad so I could really get an understanding. 

He was fullly aware of what was happening and during his last week he pretty much planned his funeral. He thought he had a couple more weeks to get organised to be honest, but it was not to be. 

It’s heartbreaking and my thoughts go to anyone else going through the same situation. 

  • I am a teacher. I teach year 6 in manchester. We had a child lose a parent about 6 months ago, I think he took his own life too. 

    I'm off this week as we get 2 weeks for whit.  I've phoned my head and said I won't be in next week either but I don't know what to do past that. I don't know what I'm entitled to. Is it reasonable to be off while dad is still alive? If anything were to happen, I'm an hour away and to be honest, I'm not sure what good I'll be at work anyway.

     

    How long is it since your dad passed? I can't see me ever stopping crying...the stupidest things set me off.

  • Hi,

    My dad died in February. I had two weeks off with him in the hospital/hospice. After he died, it was half term. I went back to work on the Monday but wasn’t in class. Our head gave me little jobs to do. I had Wednesday off to collect flowers. The funeral was then on the Thursday. I do a job share and the other teacher did much of the planning for a few weeks until I felt almost human again. 

    I’m taking anxiety tablets which I have just had the dosage increased! I just can’t wait for summer to be honest. 

  • Oh I'm sorry to hear that. I've been lucky that I've had 2 weeks off with him now, while it's half term. I won't be in next week but then I'll take it day by day. I've moved back to my parents for the time being so will be commuting every day for a while I think...it's a long commute but my head said I can go in late if needed and leave early. I think work will be a welcome distraction after my dad had passed. My 2 TAs are amazing and will look after me:my deputy on the other hand....

    I don't want to go down the route of anxiety tablets if I can help it. I took them about 6 years ago and they played havoc with my belly but if it comes to that, then so be it. They did help. 

     

    I can't wait for the summer holidays either. It's a time to really relax and spend quality time with family. I think me and mum and my sister will go away somewhere for a week which will be nice. 

     

    Xx

  • Hi,

    How’s your Dad today? Any change? 

    How are you?

    Em x

  • Hi 

    I feel the same about feeling guilty going out. My dad got put on the driver yesterday afternoon as he cant cope with swallowing. he isnt eating or drinking now and i just dont know what to do. 

    Like you i am sick of people asking if im ok as im not and how do you say that because i cant deal with their pity replies of 'o im so sorry you are so strong' i know they mean well but i am far from strong i cant even go sit with my dad because i start to cry after about 5 minutes because i hate seeing him like that. 

    i just dont know what to do as we are a family who dosent really show emotion as i tend to deal with things on my own.

  • Hi Suzy,

    I'm sorry to hear about your dad. My dad is eating and drinking little bits but because of the blockage he's getting no nutrients from it and it eventually comes back up!

    I feel invisible in my family at the minute. Mum.and my sister seem to want clean and cook and and I just want to sit near dad. I try to help but get told not to bother then get told I'm not doing anything. I can't win.

    X

     

  • Hi,

    Been thinking about you. How you doing??

    Emma x

  • Hey, 

    We're doing ok. Dad is still with us. Still very weak and not feeling great but he's hanging in. He's gone into the hospice today to try and stabilise his drugs as he's up and down. He had a really good weekebd the other weekend where we managed to go out for the day and he ate a meal and enjoyed sitting in the sun and now he thinks he's going to live forever! He wants to go away in the caravan for a week (only local) and he's talking about getting back to skiing next year! A bit of denial.

    T