Hi Migi. 

Something i just remembered from over fourteen years ago I'd just been diagnosed with addisons syndrome. (my adrenal glands don't work so i have to take permanent steroids to put into my body what the glands usto do or i go into a coma and die).

Specialist put me on two different meds, when i picked up prescription there was two more meds on it, i just took them. Saw specialist after 2 months and he played hell about what Dr had put on. He sent me for a blood test results came back and he put Me back on Dr's meds it made wonder who was the expert.

Love Billy xxx 

Hi everyone, 

I hope you are all ok and doing well. I haven't posted for such a long time but I have an update....

We heard back from the NMC on Friday and the nurse responsible for my dads care is being investigated. It took over a year for them to decide but now it seems like they are doing something. 
I am exhausted from it all and we still haven't had any answers but that's where we are at the moment. I'm not giving up, I am still fighting for an apology for what she put my dad (and us) through but it takes so long. 

Sending my love to you guys. 
Migi. Xxx

Hi migi, lovely to hear from you, glad you got paperwork sorted and in, but terrible it's taking so long to get things sorted. 

Things chaos here Brenda had a bad uti and wouldn't take antibiotics and turned nasty, throwing things at carer and me, carer thought i was at risk and called police, they thought same and called ambulance took Brenda in hospital she hit a nurse so she was checked and sectioned, she is improving but don't know if she'll ever be completely right. 

She's had 8 TIA, and she's got white matter brain disease, as well dementia  

Im temporary stopping cancer meds as always tired and lacking energy puffing very often, oncologist wants to see if meds are responsible. My cancer count is going up but sticking with it. 

Bella had a lump lucky after op not cancer. 

Hope you and yours are doing ok. 

Love Billy xxxx 

Hi Migi

So nice to hear from you. Good for you pursuing the NHS for the awful treatment your dad had. Unfortunately it seems to still going on and that is just so sad, it could and should be a wonderful health system . However its just getting worse,  so difficult to see a GP etc. Dont give up because you are helping others as well by complaining. So Thank you. xxx

Betty

I

Hi Betty!

Its so lovely to hear from you. Its been really difficult. The system is geared up to stop complaints I am sure of it. The absolute rubbish I received back from the health board after two supposedly 'Robust' investigations was dreadful. I pointed out a lot of evidence from the nursing notes, my dads drug chart etc and they refused to answer my questions. 

The NMC are more helpful and their solicitors have agreed with me but it has taken a long time and like you say it is still ongoing. I won't give up though, I think they know this now! I have almost given up a few times but I was trying to explain to someone the other day the reasons why I am doing this and its because sometimes in your life things happen that are not fair but we let it go, we can't always be arguing our case BUT sometimes something happens and it is so bad and so unbelievably wrong on so many levels that we feel we have no choice but to do something about it and thats how this got me. I feel I have to do it. 

I really hope you're doing ok, this sun is killing me-I am melting. I don't like it! But I do like how it seems to make everyone happy! 

Best wishes and take care,

MIGI

Hi Billy!! 

It is really great to hear form you. It sounds like you are having such a rough time. I feel for you. The whole cancer thing just sucks so much, I hate it. I was feeling really poorly for a while and I was terrified that I had it but it turned out I am just anaemic and have a B12 defficiency but for those few months I was thinking I cannot go through cancer in this area where the care is so dreadful, it was scary. 

I'm ok, my family is OK. Its been tough because when we think of dad now we are apologisong to him up in the sky or in his garden or to his ashes for what happened, rather than having nice chats to him where we can tell him we miss him you know and we haven't been able to really move on and remeber the good times so much because the case is still ongoing and his death and illness is totally overshadowed by what happened. 

I really hope you are doing ok despite how terrible things are for you. Somehow it seems like we find an inner strength that helps us through the horrible times I don't know but that's how it felt for me. Looking back I just don't know how we coped but at the time we just did and I know that it is the same for every single person on here too. 

Has anyone heard from DaveK? Do you know if he is still ok and doing well? You have all been such a great support for me I am so annoyed that the system is so bad. I feel like there is no need for it to be like this, its cruel. 

Please take care!! 

MIGI XXXXXXXXXXXXXXXXXX

I seriously forgot to leave you kisses and hugs Betty!! What is wrong with me?!! Obviously I am sending you the biggest hugs and kisses imagineable and lots of love too. XXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXXX

Lol. Thank you MiGi. I think of you often and the others on here. Remember there is a lot of caring people around as well as the few rotten apples. When people are ill and so vunerable it is the time that solid support is needed and someone to fight in their corner. that is what you are doing. 

Love and best wishes to you and all on here.xxxx

I am  having a grouch again. I have  tested positive  for covid on Tuesday. Apart from all the issues with this I have had a very sore  throat and this morning I had to try at least 10 times to swallow a paracetamol. Also found it difficult to talk.Tried calling my GP for advice and was told by the receptionis he was fully booked even for a call, she suggested I call the pharmacy to see if they could recommend something that might help. Still feeling awful. Our NHS service is non existant it feels to me. Im 74 and find this is just unreal. So nothing has changed for the better only becoming worse daily. Wish I could do something about it.