Hope your doing OK and they will release your Dads body. My husbands funeral was delayed as the GP was waiting for reason for death from the hospital. No one it seems wanted to take responsibility, possibly the same with your Dad. It is awful the similarities and imagine how much is going on that we have no idea about. It truly is shameful. You are doing good for others by just sharing. I cannot find the words to say how wrong and inhumane it is that people who are suffering enough should   have to do so in awful circumstances as well. You are right try as I can to forget it I never will. I am definately getting used to living alone, still don't like the dark , but can laugh at things again. Just wanted to let you and your Mum know its an old cliche but time will help you. I will be thinking of you next Monday, Love to you and your family and well done, You are helping others as well. xx

Hi Betty, I think mums doing better than she would be because she’s here with us and our house is really busy. When you have small children it helps to keep some joy and normality going. You can be crying one second then one of them will do or say something and you end up in fits of laughter. I think if mum decides to go home it will be hard for her like it is for you because it’s then that you start learning to live alone without your best friend. I’ve told mum we will never get over it or forget it but in time especially if we get answers from our complaint that we will find a new way to live. It won’t be the same, it will be different but we will still eventually be able to enjoy things again and be more at peace in ourselves. We’re a long way off that and so are you but each day  that goes by is a day of showing we can cope and we can live through it. Not that any of us should have to. The hospital are trying to release dad’s body ar the moment And are physically driving the paperwork to the crem now then they are going to sort out the funeral directors for me and hopefully get the funeral back on for Monday. It’s shambolic. I do have great support from the senior bereavement nurse though, she is fighting my corner with me. I’m supposed to be having a flu jab today Betty but I feel like I’ve already got the flu! If you haven’t had yours yet it might be worth booking it. The last thing you need is flu on top of all your heart ache. Xxxxxxxxxxx

Thanks for the reminder I must book the flu jab. My sons had pneumonia, not sure if I said that in the post. Yes Children are brilliant, my 7 year old grandson visits me every weekend, they definately keep your feet on the ground and  are great at making us feel better, unintentionally most of the time.  Hard work too though so try and take it easy. xxx

Hi migi glad you've got someone fighting on your side it'll sertenley help, hope everything gets sorted so Monday is the day but make sure you look after yourself best wishes.. Billy x

Hi everyone,

Its all sorted out we cn have the funeral Monday. The doctors just hadnt had time to fill in the paper work but they did it and the bereavement nurse drove it to the crem herself for me and called the funeral directors to tell them the funeral was back on. What a fuss. But Im so happy we can stick to the original plan and have it on Monday. 

The minister came out to see us again yesterday. I have this awful cold so I was feeling really sorry for myself and kept bursting into tears every five minutes but mum was really strong and asking all the right questions. My dad is at the funeral home now so at least hes out of the hospital but they moved him yesterday and it really unsettled me. I cant explain why I just feel like he doesnt want to be moved around. Ill be happy once his ashes are in the urn and on mums sideboard which is what he wanted so that he could still be there with us all. 

My letter of complaint is almost done. The advocate lady sent me a copy and I only had to ask her to change two little things so shes doing that, then shell send me a draft copy. If Im happy ith it (which i will be because shes done a good job) then she will send it off probably Tuesday she said. The health board have 30 days to respond then and shes asked for us to have my dads notes too which will be interesting.

I dont think Ive got any other news. Its just a case of getting through Monday now.

I hope everything is ok here with you guys. Hugs and love to you. xxxxxxxxxxxxxxxx

Hi migi glad to hear all arranged for Monday, hope it is only a cold you've got amount of running about you've been doing your probably run down be careful, hope everything goes well for you and your family next few days days, you really nead a rest anyway best wishes for Monday... Billy 

Hey Billy,

I know Im absolutely exhausted. I cant sleep though. Ive been like it for months . I have a telephone appointment with my doctor today so hopefully he will do something about my cold Im also going to tell him about my lack of sleep. Its stress. Im just not able to switch off. I sleep for a few hours then Im wide awake. Like now, Ive been uo since about 4am and Im so tired but if I lay down Ill just lay there annoyed that Im awake!! 

Are you ok? How is everthing?

xxxxxxx

Hi migi bren nearly right now had a bit of good news, years ago bren had cancer on her top lip it started like a cold saw then changed. Any way they cut it out, other month a sort of blister came right over the scar went to Dr he wasn't sure anyway we'd took her to specialist it wasn't cancer a big relief for us both, I've got new oncologist he's sending me for pet scan he wants to check my cancer isn't coming out other places (not a nice thought) I know it's coming back slowly, but he's not to bothered, again hope all goes well from now on... Billy xxx 

Thank you for taking the time to write and please keep us updated. It seems to me everyone here is thinking about you and wishing you well at this awful time. The counselling helps a little,and the sleep problem will be helped a little by sleeping pills but the Dr's don't like prescribing them  for long. I know that is because they are addictive, but a good nights sleep natural or not does help a little.  Take all the help you can get for now, also your Mum. Sending love and hugs to you and your family xx

Betty