I can’t stop crying in front of my husband

My husband has fought stage 4 bowel cancer for 6 years and 9 months and we are now at the end of the fight.  He has extensive liver mestases that have in the last 2 months cause severe jaundice.  He had a stent put in about 6 weeks ago that didn’t work and finally 2 drains over a week but they didn’t work either.  He had sepsis without any symptoms and was on antibiotics for 10 days which they then stopped as the blood test showed improvement. However last night they started him back on the 3 intravenous antibiotics again (without telling him why) and he had a most horrendous reaction. He had shivering that was so hard he chipped a tooth, couldn’t get his breath and his heart beat was sky high, he was on oxygen and gradually recovered until they gave him the same antibiotics in the morning with the same reaction.  The consultant came round and no one had bothered to tell him so I had to.  Anyway the upshot of all that is that the infection is being given free reign now.  He is desperate to get into the hospice but we haven’t heard when that will be except that it won’t be over the weekend.  The ward is horrendous, hot and noisy with no chance of rest. The nursing care is hit and miss and I have no confidence that they will care for him properly. I am an emotional wreck that I can’t make his last few days better.  I just do not want him to die in that awful ward.  There is no privacy and I hate people seeing me crying.  

  • Hi artde

    So sorry to read this. 

    Being on a loud and noisy ward is the last thing you need right now xx 

    I can’t offer any advice although I wish I could...I don’t know if anyone else can help on here xx just wanted to say how sorry I am for your pain...it’s so heartbreaking your husband can’t access the support he needs right now xx 

    I think if it were me...(easy for me to say, I know) I’d demand some answers from someone very senior...when can he be expected to transfer? Why wasn’t he kept up to date about the treatment he was given? What is the alternative to treating this infection? I think most important is your husband’s comfort right now. I don’t know how this works but...could you call the hospice people directly....? 

    I hope they’re managing to keep him comfortable...it’s Sunday now and so really hoping whoever can make some moves on Monday to get him in to hospice xx

    I’m thinking of you xx please come back and let us know how you’re getting on xx 

  • I am with you my husband diagnosed with bowel cancer secondary liver and lung Sept 2011 after 6years of chemo and several major ops he to is now fading fast. He is at home on a hospital bed I sleep on the sofa he is under the community palative care team who are always on the end of the phone.  macMillan will advise you as will the hospice please call them they have helped me beyond belief I don't know how I would function without their advice and help.  Stay strong and fight in his corner.  Also put a complaint into PALS they always seem to act fast if they think there may be a complaint