END OF LIFE. SCLC

Anyone experienced loosing a loved one with SCLC brain mets.

Mum's feet are like ice. Breathing 26 per minute. 

No pain. At home, 24hrs a day in hospital provided bed. Some agitation in early evenings.

Mum's area around mouth goes a grey shade. 

Her urine has become dark and reduced in output.

SHE still eats a little. But since steroids stopped on Tuesday doesn't drink as much. 

Any ideas what stage she maybe at? Any thoughts wekcome. 

This sounds abrupt but I don't want sympathy just some facts. If anyone can help. 

Thank you

  • Hi Annie

    Thank you so much for taking time to ask about us. Means alot. 

    I am in the process of applyimg/applied for carers allowance. But not entitled is at all.till end of this month. As I was paid from my.job up until 23rd April. Apparently this means I can't back date til then. Which I understand.

    I am also trying to get housing benefit .... which is even harder. It would actually be easier if the company k worked for let.me go! Because I would have to.prove they have stopped paying me and i wouldn't feel the guilt that i do about not being there . I actually can imagine beimg sat at work whilst all this is happening .

    I have asked work to.provode my.last.payslip in physical form as it is now done online. And I cant.access all.of that from here . So it is all.taking time. 

    Mum has slept all day today. Her steroids are.beimg reduced again but kept on them.  They now want to.consider her taking them in tablet form. Instead of sub-cut but before she ended up chewing all.tablets and had horrendous oral thrush. 

    She seemed very unsure and scared when the carers came...amd have to roll her back amd.forth to cjange pad etc. 

    Yeah I am emotionally drained and feel.quite numb. 

    Hope you are doing ok Annie x

    BECKS