END OF LIFE. SCLC

Anyone experienced loosing a loved one with SCLC brain mets.

Mum's feet are like ice. Breathing 26 per minute. 

No pain. At home, 24hrs a day in hospital provided bed. Some agitation in early evenings.

Mum's area around mouth goes a grey shade. 

Her urine has become dark and reduced in output.

SHE still eats a little. But since steroids stopped on Tuesday doesn't drink as much. 

Any ideas what stage she maybe at? Any thoughts wekcome. 

This sounds abrupt but I don't want sympathy just some facts. If anyone can help. 

Thank you

  • Your Mum isn't getting enough oxygen when her lips go greyish. Her legs are cold from poor circulation. Can they put her on oxygen?

  • botmy husband has small cell lung cancer in remission third time. He's going to be 63 in November. Every 3 months he has a ct scan. This time again the dr wants a PET scan to check rib spots. Though they havent changed she said. So my husband broke down, saying he wants to go to sleep and not wake up. He's scare and tired. I'm beside myself. It's so rough trying to stay strong and needing recognition at the same time. I feel selfish but so sad. Griev i n g the loss of our relationship

     It's hard. 

     

    Prayers to you and your mom. 

  • How are you, Monicaschild?  Are you getting help from MacMillan.  Thinking of you and wondering how you and your dad are managing with your poor mum.  Annie

  • Oh bless you . So young. Thus is very sad. 

    Morphine shouldn't be given for calming a patient. Mum has been prescribed Haloperidol for nausea/vomiting agitation and HALLUCINATIONS .

    Midazolam for anxiety and seizures.

    MORPHINE for pain only. 

    Please speak again with docs. Xx steroids have pulled mum back from headaches. And given her alittle.more energy.

    Lost my sister to bowel cancer aged 42.  Hun I feel.your pain x

  • Hiya. Macmillan nurse been again today and district nurses 

    Reducing steroids again to a much lower d2sage.and will maintain  this. 

    Mum is eating and drinking. But not talking alot and all is very confused from her.

    I am battling with myself.abpit returning to work. But I just can't face going. 

  • Hi Monicaschild

    Reading your posts is like viewing my life at the moment. My MIL has SCLC too and it has been rapid. She is in her last days. Her toes have been blue for about a week, her oxygen sats is 80% and she has had diarrhoea for 4 days now. The doctor wanted to admit her to hospital yesterday but she doesnt want that. 

    Since April i have moved in with her and have been sleeping on her sofa. Since the beginning of this month my husbands auntie has also moved in.

     Weve got a hospital bed with air mattress for her now in the living room. She's on 4 ltrs oxygen 24 hours a day. She has to use a commode and cant wipe herself. What quality of life is that for her, bless her?

    Every night when im watching her erractic breathing i swing from willing her to breathe to willing her to stop! I feel so guilty. 

    She will eat a few sweets but that's it.

    It's not about me i know, and I'm a bad person to think about myself but i feel so torn about where i should be all the time. I've not been to work but have had to work from home and do the odd stint to keep things ticking over. My husband has been home on his own every night since his father died 3 weeks ago and i should be with him, but cant leave his mam. Ive hardly seen our 4 year old or any of my own family. My friend has just had a big op but i havent been able to visit her once! 

    I wonder what type of person I am. I will happily do anything for my mother in law and i dont want to lose her and here I am reading through end of life pages hoping to see her symptoms confirming that it's going to happen soon....

  • Qualifying life is zero. Mum can no longer ger.out of bed . Hasn't been able to for about 4 weeks. 

    So is totally reliant on pads  

    Do you have carers coming in?

  • We have got carers but she wont let them near her! She is the proudest, bloshiest woman ever and the first time she met the carer the carer made a few crass remarks. Immediate dislike at this point and because of the changes in my MIL behaviour/personality she will not tollerate her. It doesnt reallt matter as Im there for personal care any way.

    We also have a hospice nurse who visits and daily district nurse visits. All the help in the owrld avilable but not a thing that can be done to relieve her suffering.

    So cruel :-(

  • Any joy with claiming allowance for caring for your mum?  I can understand that you can just cope with so much at the moment but MacMillan would be very helpful as I am told by people on this forum.   Can I do anything to help? This sad state of affairs must be wearing you out apart from all the other emotions;  You are doing so much and I am impressed by how you are maintaining everything that needs to be done.  And your poor mum, who craves peace so badly.  Annie