My poor mum

Hi, I'm new to this.

My mum has cancer of the lung, breast and brain. She's been battling this disease since 2016. First off it was on the sides of her esophagus and then she started to get tumours on her skin. She got a tumour in her right breast but was the size of a pea. I asked for mum to be referred to a breast consultant as I feared this was the start of breast cancer. I fought and fought for her to be transferred. She did get transferred about 11 months later to see a breast nurse who was more concerned about fitting mum with a bra for her to be more comfy. When she seen mums breast there was nothing she said she could give her, the tumour in her breast was now the size of a melon and had completely taken over the whole of her right breast. She then had a brain scan a few months later after a fall and found that she had brain mets. When mum had a fall she fractured  her vertibrea. Shes been in and out of hospital since 2016 and has been on all kinds of chemo/radio. My mum has been admitted into hospital now for approximately just over two weeks. She came in here with complaints of back pain and nothing else really. The pain in her back and the compression on her nerves meant that her leg wasn't working as well anymore. While I'm typing this my mum has been put on a syringe driver as she's in extreme pain, she has had another two fractures in her spine since being admitted. I am so angry at the whole situation. How can a woman so strong willed go from talking and laughing last week to nothing now. Before the driver her speech was becoming more and more gibberish and she was getting things mixed up. I'm looking at her now feeling so helpless. I don't know what to do. She got put on the driver last night and it is controlling the pain. I am so upset and angry that I'm losing my mum and my best friend to this disease. I am so close to my mum. My mum turned 54 on the 13th March, she had her last birthday in this hospital in pain. I am angry at her oncologist for not making that move for her to referred to not at least be checked out by a breast consultant is beyond me.

 

I don't know what I'm asking for and I know there is plenty of people in the same shoes as me but I know I'm not ready to lose my mum just like the majority of people. I love my mum dearly, I just can't believe this is happening. Palliative care has told us that she will be surprised if mum lasts until Monday. I can't believe it. 

I didn't want the drivers being used as selfish as I am I knew that once they put that in my mum would soon start to fade away. Out of my family I was the only one objecting until last night when I agreed. I don't know if I've made the right decision for mum.

I just can't believe that I'm going to lose her, whether that will be hours, days or weeks. 

  • Hello George; I understand you are going through h*ll at the moment and nothing I or anyone can say and do will change that.  Don't beat yourself up about the syringe driver.  If you were watching your mum go through intense pain without relief that would tear you apart even more.  Having lost  my mother from cancer some years again now I remember how nothing seemed right and I was full of many different emotions.  When the mists eventually started to clear I realised that mam had been well cared for - she was in hospital and given the restraints of 1980s hospital she was treated kindly and well.    In those days the nurses had more time to do the job they were trained for and wanted to do!

    54 is of course far too young to be losing your mum; mine was 70 when she died (which I also felt was too young).  I was angry (not sure who with!) because her own mam, my nana, had been unwell for a long time and my mam had cared for her every day until she died.  I felt that she should have been allowed to have some time for herself after my nana died but she didn't get that.

    Try not to waste this precious time by raging against the late decision to send your mum to a breast consultant.  If you wish, you can ask questions of the hospital later on; I am not sure how much it will help you but if you cannot stop being angry about it then you can at least ask.

    These next days will be very hard for you.  I am so sorry.  Annie

  • Hello. As I read your post I could feel your anger sadness and desperation. I'm so sorry your mum is going through this and as a consequence you and your family have also. I can relate to the speed at which you feel this is happening. I lost my mum to bladder cancer in 1995 when I was 24. She hadn't been to the doctors or complained and it was only when she stopped eating and complained of pain that she saw her gp. He called an ambulance straight away and she was admitted. She died less than 3 weeks later before the full extent of her illness was known. My mum was also put on the syringe driver and like your mum it was not possible to talk properly with her any more. I know from what you wrote that you don't know if the syringe driver was the right decision. All I can say to you is that after all these years I can honestly say that I would rather know that my mum was comfortable in her final days than able to talk to me. I believe that letting anyone you love go is the most selfless thing you can do....and you have done what is right for your mum. Take the time now to send with your mum. Each second stays with you. X

  • Thank you both for your kind and honest words. I know deep down that I would never want my mum to be pain and prior to the driver she really was. My mum is on the driver still and keeps waking up talking and is looking around her, she is still complaining of being in pain with her back. She is still there in some terms but in others she's not. Palliative care have spoken to us again and they have said that because she's in pain even on the driver and the extra doses of oxynorm that her driver medication should be increased. Shes comfortable now though  with the driver being at a low dose but was struggling this morning. I feel completely lost, sad and absolutely gutted that I know that she hasn't got long left. 54 years old is young and I feel angry that I've been robbed of my mum at such a young age, I've just turned 30. Thank you to you both x