Confused

My dad was told he had lung cancer in April and there was nothing they could do. Five months on he is still with us, they have told me he has brain mets and one has become a large tumour, he also has heart failure. My emotions are all over the place. He is in a hospice. One day I visit and he is asleep the whole day but another day I go and he is awake and quite jolly. He eats and drinks. I have gone today and they have said his breathing is laboured, but he seems the same to me, however the base of his finger nails have started to go a grey/blue. I get so confused with how up and down he is. Is this normal? Any advice would be so appreciated. 

Parents
  • I know this was posted a few days ago so not sure if anything has changed but rhought I would reply anyway. I am very sorry to be reading this post about your Dad. I sympathise with what you're saying... my Dad had bowel cancer which had spread to his lungs and liver. Then in April this year it had also travelled to the brain. From then on it was awful and he really deteoriated. Nobody tells you what happens when cancer travels to the brain and wow it was a shock. I won't go into detail but it was horrendous to watch. My dad also ended up in a hospital. He had sleepy days and then other days he'd perk up. When he would perk up I'd get my hopes up that he wasn't as bad as they were saying but the doctor brought me back to reality. He said that dying patients do experience good and bad days but the good days don't tend to mean anything because a dying patient is deteoriating every day inside. Sometimes they also refer it as the patient 'rallying' around this means a dying patient will get a burst of energy where they appear quite well but it doesn't usually last for long. My dad was allowed to come home to die. And towards the end his breathing became laboured days before he died. This then followed by the death rattle. The death rattle doesn't occur in everyone, but it did with my Dad. Unfortunately my Dad died on 23rd August. I'm now a 28 year old with no Dad and feel very robbed. 

    Other signs my Dad had before he died: he ate less and less around a week before. This followed by hardly any fluids too. So we started using a sponge to moisten his lips. He slept a whole 3 days before he died. The day he died a death rattle developed which was awful to hear and luckily medication was given to quieten it down. He also had a temperature when he died...not everyone is cold beforehand. 

    Big hugs to you feel free to msg me if you like x 

Reply
  • I know this was posted a few days ago so not sure if anything has changed but rhought I would reply anyway. I am very sorry to be reading this post about your Dad. I sympathise with what you're saying... my Dad had bowel cancer which had spread to his lungs and liver. Then in April this year it had also travelled to the brain. From then on it was awful and he really deteoriated. Nobody tells you what happens when cancer travels to the brain and wow it was a shock. I won't go into detail but it was horrendous to watch. My dad also ended up in a hospital. He had sleepy days and then other days he'd perk up. When he would perk up I'd get my hopes up that he wasn't as bad as they were saying but the doctor brought me back to reality. He said that dying patients do experience good and bad days but the good days don't tend to mean anything because a dying patient is deteoriating every day inside. Sometimes they also refer it as the patient 'rallying' around this means a dying patient will get a burst of energy where they appear quite well but it doesn't usually last for long. My dad was allowed to come home to die. And towards the end his breathing became laboured days before he died. This then followed by the death rattle. The death rattle doesn't occur in everyone, but it did with my Dad. Unfortunately my Dad died on 23rd August. I'm now a 28 year old with no Dad and feel very robbed. 

    Other signs my Dad had before he died: he ate less and less around a week before. This followed by hardly any fluids too. So we started using a sponge to moisten his lips. He slept a whole 3 days before he died. The day he died a death rattle developed which was awful to hear and luckily medication was given to quieten it down. He also had a temperature when he died...not everyone is cold beforehand. 

    Big hugs to you feel free to msg me if you like x 

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