Now it's terminal

Hi, sorry I'm very new to this.  My Dad has been fighting Prostate cancer for nearly 8 years. About 18 months ago it spread too his lungs. After 2 rounds of chemo we thought we had it under control only to find out last Friday that it has returned and has spread further in his lungs. His consultant has said that his body is to weak now to deal with a third round of chemo but has put him on some strong tablet (I forget what there called). Hopefully it will give us some more time but ultimately he's nearing the end of the fight.

The reason I'm writing this is because I don't know what to do or how to handle this situation. I feel distraught and ashamed, ashamed because in my head all I can think about at the moment is how I'm going to deal with losing the greatest man in my life. It's my dad going through this and my mum and sister as well, but since Friday I've stayed away from them all because I really don't know  what I meant to say  to any of them.  The pain is unbearable and I hate the idea of what's to come and how the hell it going to deal with seeing what my dad is about to go through. I'm so scared. I can't explain my behaviour, I know I'm being so selfish but I just can't face what's happening. I need some help from people who aren't connected with me. I need to know how the hell it meant to deal with this, so I can be strong for them, because right now I'm a mess, a selfish, self absorbed ball of pity, and while I know this , I don't know how to stop.  Anyone, anything ....please. 

 

  • Hi Matthew, I'm sorry to hear about your dad and welcome to the forum. Don't be ashamed, you've just been dealt a big blow. You need to try and put the feelings into little boxes, ie the here and now, the future, don't start grieving before it's happened. Your dad is still here now so make every moment count with the time you have left. You don't have to say anything, just be there. The night my dad passed away I sat and watched strictly holding hands with him, I never knew what was going to happen that night as he'd only just been diagnosed. Your mum and sister will be feeling the same as you, you're not alone. Be strong for each other, just be there. Don't pressure yourself in to being strong, you don't have to be. I use to contain myself (more or less) when at my parents then be an emotional wreck the rest of the time. I never had the weeks and months of torture with my dad, just 3 days between diagnosis and passing, those 3 days were torture having to imagine life without my dad, friend and neighbour not around anymore.  I hope you find the strength to go and see him and be there for him. Take care

  • Hi Matthew, 

    So sorry you're going through this with your father. I can sympathise with you because my father has incurable bowel cancer which has spread to his lungs and liver he was diagnosed 11 months ago and we are now facing whether there's much else they can offer him. I don't think there's a wrong or right way dealing with bad news like this I just think we have to let ourselves be and if we want to cry or scream then allow ourselves to. I really don't think your family are expecting you to say anything I'm sure their lost for words too. I don't think any word quite cuts it or explains how we feel inside. Give yourself some time but also make sure you see your Dad and support your mum and sister through this awful time. Time is very precious and it should not be wasted. You aren't selfish for thinking about how you will feel once he's passed, it's only natural to think this way. Your life has been turned upside down and your having to learn how to adapt to these changes and prepare yourself for what's to come. You'll find strength inside you that you never knew existed and this will help you cope. Don't rush yourself, it takes time. Take a deep breath and go see your family create those precious memories, take some photos, say everything you want say and ask everything you want to ask. I'm sure your Dad doesn't want to see any of you fall apart, he will probably take great comfort from knowing his family are supporting one another and are trying to stay strong. 

    Big hugs. 

  • Matthew,

    What you are feeling is quite common - just don't stay away too long or he could die without ever seeing you again which would make you feel far worse than you do now.

    There is a grieving process that we all need to go through, this doesn't just apply after someone dies but kicks in far earlier. Somehow you need to get to a place psychologically where you can accept that your Dad is going to die quite soon and that there is othing you can do to prevent that. Once you are there, you will be able to help support your Dad and the rest of your family through this.

    I speak from experience here. When my Mum died of cancer my Dad, sister and myself all managed to accept the situation which made my Mum's passing easier for her and for us (we were at her bedside when she died). Not everyone in our family had reached that point and they felt awful when they realised they'd not had chance to say their final goodbyes.

    Good luck
    Dave 

  • Matthew - I understand how you feel. Most of my family has died from this and now I don;t have long. I have learned that withdrawing yes saves you some pain now but makes it worse after they are gone. I regreted every moment I chose to withdraw instead of spend with them while they were here. When I didn't withdraw yes it hurt but there werent the life long regrets... I don't know if this has helped... but it is what I have found with my family members.

  • Hi Matthew,

    The forum is a great place of finding others who feel just as you do.  You are not alone in this horrid journey. My Dad (would have been his birthday today) also had prostate cancer which spread to his lungs and passed away 8 years ago this month. It was very hard to accept that I was losing my Dad and as an only child also thought I should be supporting my Mum (but then I  had my own family to care for too).  I found it terribly hard seeing him and like you did not know what to say at times.  In the end I decided I would feel so much worse if I could not see him, so  I allowed my emotions to spill over and shared my thoughts with him and we comforted each other - it was a turning point and thankfully I have no regrets even though I could not be with him at the very end. Whenever I did see him in the weeks he was in the hospice we always said what we wanted to say - most of it mundane chit chat but it was still special to us and when he was too tired to chat he enjoyed listening to music of having us read the paper to him.

    I am sure your Mum and sister are devastated also and you will all be trying to protect each other, probably without realising it. I hope you can find an inner strength to get you through this time and the forum is always a good place to come for a chat.  Regard  Jules