just told its not cureable.

I was diagnosed with breast cancer February last year. I had a mastectomy in the March and lymph node removal in the April. They couldn't remove all my lymph nodes . June I started chemotherapy but suffered really bad with constipation and was admitted to hospital twice in 3 months. They then found I had bowel cancer (another primary). The chemo stopped and I had another operation to give me a temporary colostomy bag. Then the radiotherapy for the breast started. I then had a 6 week course of radiotherapy and chemo tablets for the bowel. Between all this I've been great , everyone commenting on how well I look. Then in February this year had part of my bowel removed and they also carried out a Hysterectomy. Although the recovery was are I've bounced back. That was till Tuesday. I've just started a 8 cycle course of chemo and saw the doctor on Tuesday, believing I didn't have anything to worry about, I went on !y own. Only to be told there are 2 nodules showing on my lung which they believe is secondary from the breast and its not cureable. I have months and months and months apparently.I still look really well haven't any symptoms. I just cannot come to terms with it. How do you?. My daughter is 5 months pregnant with her 1st child and getting married next year. 

What does months and months mean?  I keep crying. Help

  • Hi Tonim,

    Don’t panic, there are still options.

    I have lung cancer stage 4.

    First line was 35 session radio plus 4 session chemo in combination.

    The main tumour shrunk by @55% but we found a new metastatic lump below my kidney last Monday.

    Now we have to make a new plan for the second line therapy.

    Looks like 4 or 6 sessions of Docetaxel with some Nintedanib to help it along.

    Docetaxel is very effective on a variety of cancers and might be an option for you too?

    It will not cure you, but it can hold the cancer at a stage where you could go on for years without any progression.

    So don’t give in just yet

    All the best

    Mike

  •  

    Hi Mike and welcome. Just popped in to say that I am about to have my 5th cycle of Docetaxol. On Monday I will have a CT scan to see how I am doing.  Glad to see your tumour has shrunk and fingers crossed that the one near your kidney will respond to treatment too.  Take care my friend x

  • Hi tonim ...I really do understand I to have stage 4 lung cancer with secondaries in my mouth and brain . please stay strong there are treatments to help , I'm about to have my last chemo on Fri ...I've had 4 and its shrunk my tumour right back . this will buy me some time ....I hope !! My consultant is brilliant and always forward thinking , and you need positive people on your side.

    I know only to well how you feel I'm only 51 and its such a shock ...please say hi if you feel like it 

    Best wishes Christelle xx

     

  • Hi again Christelle,

    Not sure if I'm replying to you in the right way, still new to the forum.

    Toni xx

  • Hi tonim

    i think I understand how you are feeling!  I went into hospital because of a constant headache in March and found out I have secondary triple negative breast cancer which has spread to my spine.  I still can't seem to get my head around it all and there's rarely a day I don't cry.  I know everyone says be positive but it's difficult to keep it up when all you can think about are the 'incurable' words.  I'm wondering if as time goes on you cope better.  I know some days I feel strong then others it's back to crying.  It does help to hear others stories of how they cope.n I don't think anyone can give us a time limit as everybody is individual and we all respond to treatments in different ways.  I'm only 49 and not ready to go anywhere yet!    Xxxxx

  • I totally agree with you sallyk. I'm also hoping that as time goes on I begin to cope better. Its just so hard, its the first thing in the morning, and the last thing at night you think about. I know there's a few hours of me doing something that I don't think about it, and also I try to be upbeat for the sake of the family and friends but, its hard.

    I'm hoping with more treatments and tests, things will hopefully level out and not be so all consuming. Its great to hear from others, going through this, because unless you are I don't think you really understand. I know the family are going through it as they may lose their mum/wife. Awful as it sounds I can't be dealing with theirs. That sounds terrible and I don't mean it to be, as I can't think of not being here for them.

    Keep in touch, hopefully we can lift each other

    Toni xxx

  • So sori to hear this tonim, but as pple say . It's not fair to put a time on any1, every1 responds different , u'd left me a message on my post the other day saying about your bowel cancer, as I've just been told I've rectal cancer , although they say it's confined to the rectum & an op will remove it along with having a bag, they did say they seen a few speckles on my lungs , but told me not to worry about them.atm & they will investigate further , I did have a chest infection 2-3 wks ago , so I'm hoping that's what has showed up . I start my 6 wks of radio/chemo nxt week :(. I will be thinking about u , keep u in my prayers xxx katrina

  • Hi Toni ..I'm new to all of this too , I never did really introduce my self on here I just kinda joined in !! Thanks for saying hi ...we all need to talk to some one and if its some one who understand s then so much the better .chat away as much as you need to !! Hope to hear from you soon ....Christelle xx

  • Hi Toni, not been on here in a while but thought I'd check in and see how you are doing. I'm on my second round of chemo and I'm really struggling with it. Not managed to keep anything down for four days.  If there is a plus side it does take your mind of everything else!  I'm not quite as do and gloom as I was initially so wondered if you'd managed to deal with it any better xxxx

     

  • HiSallyk,

    I have just had the operation to cut out the nodules from my lung, so I'm very sore at the moment.I had to stop the chemo for the operation to go ahead, but once I've got the biopsy results I expect to continue with the chemo. I was really sick with the first round, but they changed my tablets for the second round and I wasn't sick at all. It maybe worth a mention.

    I will have to have a ct scan soon and that will tell us all what's going on inside, I'm hoping it will be good results, but I also know there could be more secondarys, but I fill more positive than I did, suppose I've got my head around managing it.  I say that now haha. Just enjoy what you can, I have made a decision to go back to work part time only so that I can have more me/family time.