Process and pain of dying with esophagus cancer?

Hi guys my name is Katie and I'm 14 years old. My grandad has terminal esophagus cancer, aged 56. I was just wondering if anybody on here could tell me if it's a very painful death and the process of dying with it. Feel free too comment with any stories from family members ect.

Thanks.

Parents
  • Hi katie

    How are things.Have you managed to talk to anyone in your family about whats happening with your grandad?I am sorry i cannot tell you about his cancer but i do have a lot of experience of pain control and the main issue is that it works.Modern medicine cannot always save us but it can give us an easyer time of it .I came very close to dieing and the knowledge that it has left me with is that it is not nearly as frightening as it seems. It seemed to me like a gradual walking away.It will always be sad but the sadness is because he is loved.

Reply
  • Hi katie

    How are things.Have you managed to talk to anyone in your family about whats happening with your grandad?I am sorry i cannot tell you about his cancer but i do have a lot of experience of pain control and the main issue is that it works.Modern medicine cannot always save us but it can give us an easyer time of it .I came very close to dieing and the knowledge that it has left me with is that it is not nearly as frightening as it seems. It seemed to me like a gradual walking away.It will always be sad but the sadness is because he is loved.

Children
  • Hey grumpy. I stayed at my grandad's Sunday and Monday night, he cooked me dinner on the Monday and still likes too get around and go shopping ect.

    He is getting his scan results back tomorrow too see if his cancer has spread, just hoping for the best.

    Thanks for the reply and sorry too hear about your experience. I just wanted to know how bad it would be for him, but it doesn't seem too painful which I'm happy with! Thanks a lot, hope you're ok xx

  • hi katie my husband died from the same cancer, eight weeks after being diagnosed(6/12/10) aged 58 he had his pain under control with patches and morphine, lost alot of weight could not eat, had a stent put in but never worked, then had fluid on abobdoment, his liver was infected to and they thought it had spread to his stomach, but never got a chance to find out but it took him quickly,  it has been thirteen weeks since he passed, we have three girls aged 17.12.12 and we all miss him so much.

  • I'm really sorry too hear that. Hope you're feeling okay..

    Grandad got his test back today, chemotherapy has not worked!

  • Ny husband died two werks ago with Esophagus and stomach cancer. He fought a long hard battle 17 mths. He put a stint in. Could  not swallow and vomiting alot. In the last two months had hospice. They kept him under  control from pain. Morphine and Lorazepam.  Fluid was taken off daily he lost 100 lbs. All the hospice stage kept him comfortable.  I am very sad. Losing  a wonderful husband we made alot of memories during this time. This teaches me to spread the word on living life to the fullest

  • My husband has just been diagnosed with oesophegus cancer that has spread to his liver Dr says it's terminal but should be try Chemo?

  • My dad was diagionised with stage 4 oesophageal cancer with secondary’s in the live and lung back in March. Started chemo a short time after, and too look at him you would not have known that anything was wrong. In fact friends were saying how well he was looking, so much so that dad felt he was a fraud and that he was not as ill as the Dr had told him. Then bang… second CT scan and the Dr confirms that the chemo has not worked as the tumour in the oesophageal has not shrunk as much as they had wanted and that there were more secondary’s in the liver. As such the plan was for dad to start five rounds of Taxol. The side-effects have been terrible, loos of his hair, loss of felling in his fingers, loss of energy, unable to eat or drink, being sick (black), so ended up back in hospital and required rehydrating and topped up with vitamin B6 and Magnesium, followed by a platelet transfusion. To make matters worse, dad lives in Cyprus, so not even a car journey down the road. The Dr appears wonderful, but the palliative care that is on offer is next to nothing, no equipment to support with living at home, and no care staff to call and support both dad and mum at this very difficult time. It sounds like the road that dad is going on is only heading one way, and I am at a loss as I do not feel that I am able to offer dad the support that he now needs. Where would we be without our wonderful NHS and palliative care teams, including the hospices that offer so much support to families up and down the country?
  • My husband had stage 4 esophageal cancer diagnosed in Sept 2016 and he died on 20th December that year. One attempt with chemo set him back and with hind sight  perhaps we were grasping at hope. All it did in his case was cause more discomfort. Also when your loved one is very ill in extreme pain at 2 am there is not much help out there, despite promises from cancer hospital and MacMillan. On call locum or district nurse. He hated being in hospital as pain relief was limited unless signed up by doctor. So I nursed him at home as was his request as best I could. I feel when family wish to take this route more help / training to give injections by family instead of having to wait hours for nurses to come should be available. I carried out my husbands wish to die at home but feel delays in pain relief did not make an easy end. I have to live with that memory every day. I learned 'on the job' so now feel more able should I have to nurse anyone else in a similar situation. My advice is, you need to discuss your own situation to decide. My husband had great difficulty with his diet once the cancer blocked his esophagus. He lost so much weight and was sick coughing up blood and bloody diarrhea too. This lead to anaemia and constant nausea. We were not warned about this. Also the cancer caused cacaxia which we were not warned about either. The better your loved one can eat and keep their strength up the better chance to face chemo. Also some surgeons will operate and some won't. I wish you all the best and hope my frank post is informative. My prayers are with you.

  • My husband had oesophagus removed 18 months ago. Cancer came back Sept 2018 in oesophagus lymph nodes and liver which is terminal. He's just had 3rd cycle of chemo which he's stopped over Xmas due to constant diahrrea. Chemo nurse is ringing Monday to review.hes got a scan in mid Jan and results end of Jan to see if it's working. We are hopeful and positive for our 2 girls we have to be but he's not really tolerating chemo very well. If the oncologist recommend it then try it. Hope all goes well..it's so hard

  • My husband was diagnosed with stage 4 oesophageal cancer in Dec 2018 it had spread to his lymph nodes and stomach. He had his first round of chemo just before christmas and it gave him blood clots in his lungs, he was treated for it and may l say the chemo made him feel so ill. Giving the benefit of the doubt he started his 2nd round of chemo in january and felt so ill he made the decision to stop all treatment and let nature take its course. For us its the best decision we ever made palliative and district nurses look after him at the moment and keep his pain at bay with morphine patches he is increasingly becoming weaker but we have been on a few short trips with the family making memories which he could not have done when on chemotherapy

  • hello Screwylouis1

    Just read your post.  i feel for you..... I really do.

    Wishing you all much courage

    Ruth x