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Dying young & alone Why?

I was diagnosed with IDC (breast Cancer) in August of 2007, I went through the chemo, the bilateral mastcetomy, My whole circle of family and friends were a huge support to me going through this. We had lost my father in 1996 to a brain tumor, he was only 49. In June of 2009 my oncologist told me that I have Adenocarcinoma effecting the inferior mediastinal nodes, on the outside on my lungs, he labled me terminal, 6 months to a year, I am now in my 8th month, enrolled Hospice since July. I am only (just)) 38. I have no one to talk to that understands what this is like, my whole circle for whatever reason, perhaps the burden of my upcoming death, have walked away from me. I ask my Hospice nurse "isn't there other dying people out there that i can talk to? Other terminally ill people that will TRULY understand my thoughts, my feelings?" She said simply, "no" So I decided to look online for a terminal chat room, and this is what i found. I am afraid to die alone, afraid to die when my Hospice people are not here. I need others that understand the harsh realities of being terminally ill with a very agile mind because i am young. I never married nor had any children, out of choice, I wanted to pursue my carrer in the arts before i settled down. I was able to have a final wish come true through The Dream Foundation, which was way cewl :)... At any rate, I just don't understand why everyone has walked away from me, it is my belief that my circle of friends and family are tapping their fingers "waiting for that phone call", i feel like a bad secret that everyone put in the closet..... Why can't birds of a feather flock together?- Why do the dying have no one to relate to? I feel very alone in my journey as my symptoms remind me everyday that i am Terminal...

Alone,

Terminal

  • Hey Tanya,

    Cant wait and hope it will as beautiful as the previous poems...my personal favourite so far is 'Tomorrow Never Comes' - haunting but beautiful.

    Cheers

    T xx

  • Hi I just wish I could help you. Please ask your macmillan nurse or even cancer uk for counselling or a befriender to be linked up with. My husband has lung & brain cancer, the side effects from the drugs are horrendous. Everyday is a challenge for both of us. Its the unknown that we are all so frightened of. Please also go on to the macmillan site there is a live online chat room for sufferers & carers there is always someone to chat to 24/7. So please dont think you have to travel this journey alone, help & caring people are out there. Just ask and you will be answered. Take care, Joanne.
  • Hello all, Tony Song and Kathy, I have recieved notification that you had responded to one of my post, I just couldn't ever find it. Tanya, your a true artist, your poems touched me to the core. My husband left me two days ago. My son, who is his son also, got into a fist fight, my son won. I'd seen him get picked on for years, living in fear of his father, never again! The cancer is taking it all from us, anything that was ever good or comforting. Everyday just keeps getting worse. I am so angry. They will look at the spots on my lungs again on July the 10th, our 21st wedding anniversary is on the 3rd. I will find out on the 17th whether it's back or not. I'm terrified to read on multiple my, the last time it took me two weeks to get over the wiki page I was on. I cry every morning now, again. I miss my husband but he was so stressed that he was treating us all very badly. I have seven dogs and two cats. We have started a Numbian Goat herd, originally for hormone free milk. I'm having to feed three kids bottles, twice a day. It is hard work, I should have had more respect for all that he does. We have a shack we originally lived in, on our property and that's where he's at. If I must face being rediagnosed alone, he will not be welcome back then. The first time my test came back clean, I noticed he acted very strangely, not near as happy as me. I figured it out about half way home, he was having bathroom issues that made him think he had cancer. He had the colonoscopy and now denies ever being afraid he had cancer. Issues he must work out alone that I don't understand, even after all these years. Another thing, he screams at me to' hurry up and die'! It hurt quite a bit the first 3 or four times, now that we're at a half dozen, it doesn't hurt near as much. My dear neice, whom is very smart, said he is trying to hurt me with his worst fears. She reminded me that he's read up on everything, bought, grown, havested, juiced and is trying everything out there to try to help me. We love each other still but, the agony of it all continues to seperate us. I miss him very much but he hurt us all very much. I want him back, a big part of me. The other part of me hates him for the hurt he caused my heart. He's complaining now, behind my back to the head nurse of my onocologist. It's true I'm enraged but, who wouldn't be? Someone with alot more sense than me. I love you all, the pain we share together makes us blood. Our broken hearts form new foundations to help us stay strong and FIGHT! I pray you all have a good day and find the peace you seek as I do. My love to all, Maria

  • Hey Tanya,

    Not heard from you in a few days and you know I worry

    Much Love

    T xx

  • Hello TonySong, I'm worried about TT! I haven't logged in in a while and now that I have, I'm very worried. I know you also must be getting desperate to hear from TT. God bless you all. I am still here, with love in my heart for you all, Maria

  • Hey Maria,

    Yes I was thinking of Tanya only yesterday, waiting on my promised poetry

    I hope and pray that she is still here with us.

    God bless all too.

    Much Love

    Tony

  • Hey Tanya,

    I am hoping that you get this and can respond...'Your Tony' is waiting for his poem...and as it is nearly a month since your last post I am getting increasingly worried.

    We all know that the time would come when we had to say goodbye to you but not yet as I want that one last poem of your lovely words.

    If you get this please let us know how you are my dear friend.

    Much Love

    Your Tony xx

  • Dear Tanya,

    I'm waiting...

    Kathy

  • Tanya have only been on this website since June. Lost my husband in March. Sorry I didn't see your posts earlier. I also live in Michigan call me xxx I will come, you are only 1 1/2 hr away

  • Dear Tanya

    Hope you read this or someone reads this to you.

    We're still waiting and still worried that you have'nt answered. But here's the thing: I'm hoping you've read or had read to you the message from Webbster.

    Kathy