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Dying young & alone Why?

I was diagnosed with IDC (breast Cancer) in August of 2007, I went through the chemo, the bilateral mastcetomy, My whole circle of family and friends were a huge support to me going through this. We had lost my father in 1996 to a brain tumor, he was only 49. In June of 2009 my oncologist told me that I have Adenocarcinoma effecting the inferior mediastinal nodes, on the outside on my lungs, he labled me terminal, 6 months to a year, I am now in my 8th month, enrolled Hospice since July. I am only (just)) 38. I have no one to talk to that understands what this is like, my whole circle for whatever reason, perhaps the burden of my upcoming death, have walked away from me. I ask my Hospice nurse "isn't there other dying people out there that i can talk to? Other terminally ill people that will TRULY understand my thoughts, my feelings?" She said simply, "no" So I decided to look online for a terminal chat room, and this is what i found. I am afraid to die alone, afraid to die when my Hospice people are not here. I need others that understand the harsh realities of being terminally ill with a very agile mind because i am young. I never married nor had any children, out of choice, I wanted to pursue my carrer in the arts before i settled down. I was able to have a final wish come true through The Dream Foundation, which was way cewl :)... At any rate, I just don't understand why everyone has walked away from me, it is my belief that my circle of friends and family are tapping their fingers "waiting for that phone call", i feel like a bad secret that everyone put in the closet..... Why can't birds of a feather flock together?- Why do the dying have no one to relate to? I feel very alone in my journey as my symptoms remind me everyday that i am Terminal...

Alone,

Terminal

  • Dear Tanya

    Hope you read this or someone reads this to you.

    We're still waiting and still worried that you have'nt answered. But here's the thing: I'm hoping you've read or had read to you the message from Webbster.

    Kathy

  • Dear Tanya,

    I hope you're able to read this; that (and I believe I can speak for everyone who's a member of this site) we've been thinking of you.

    I'm hoping, too, that you'll contact us soon.

    Best wishes

    Kathy

  • To My TonyPatrick of whom I am still concerned aboutKathy~And all of my special unknown readers,

    I am still here beleiving I am on borrowed time...I have learned something valuable that has kept me away from the people here that think of me Bless your Hearts I have made it past the 1 year mark & realised I was far too "Accepting" of my circumstaces, like a tornado; it hit me: There are 2 stages to accepting the fact I'm going to die because cancer doesn't care, in my "mind" I accepted it as soon as the Dr. gave me the news; I knew it was going to come back; What I did NOT know is that I had to allow my "Heart" to accept it. This part has had a crippling effect on me, yet I know, as hard as this has been, my Heart will reconcile... That being said, Here is the poem I promised ;~) Hugs to you all...............

    The Page.....

    Standing in fear,

    Waiting for time,

    An unknown journey,

    For this Heart of mine--

    These tears that fall,

    Stain my cheeks,

    No one knows why,

    Unaware of being meek--

    Depths of pain,

    Lights of rage,

    I walk through this tunnel,

    Seeking the final page--

    In blood & ruin I walk,

    Enduring the chills that be,

    Feeling the damage within,

    Then I see a key--

    In opening the door,

    I fall to my knees,

    For this final page,

    I doth seize--

    I wipe my eyes,

    And begin to read,

    These brittle pages,

    Have been written for me--

    Answers being waged,

    My heart is contrite,

    In silence, I still cry,

    I have lost this fight--

    So many moments,

    That I begin to see,

    These buried memories,

    That are here with me--

    Sodden with knowledge,

    Saddened by the page,

    My peers befall me,

    Finally knowing my rage--

    Hearts will break,

    Tears will fall,

    The final page written,

    The most critical of all----

  • Tanya, Tanya, Tanya....

    You gave me a fright...I didn't think I was going to get my poem

    Honestly though, I am so, so pleased to receive your beautiful words... please do me a favour and send me an email to tonysong@hotmail.co.uk (replace the AT with a @) as I have a question I would like to ask you.

    I personally will never accept cancer or my death - In my head and in my heart I have no space to entertain those thoughts and feelings.

    How are you dearest Tanya? Absolutely fantastic to hear from you.

    Much Love

    T xx

  • Praise the Lord! I'm so very relieved to hear from you. Poor Tony was suffering for his poem and you sure didn't disappoint! This is NOT an easy site to be a part of. It's so heartbreaking, all the hurt and fear. God knows our hearts and yours and Tony's and Kathy and Patrick all have beautiful, loving hearts. I have been told more times than I can count people saying, my loved one was givin three months and that was thirty years ago. Do you see the lab tech on the commercial with the little mouse going into an MRI machine? She had been n life support and everything and is still working to find a cure! I looked up that Peggy Kessler from that one commercial, the one with pancreatic cancer, they had givin her three months, that was thirteen years ago! She is still with us and doing just fine! Only God knows and He is the gtreatest physician of all. I praise God almighty that you are still with us. God love all of your hearts, He is with us always. It has made my day to see you've been here. God bless you Kathy and TonySong and all the rest of you. You have made my life better. I love you all very much, though I only know you from your post. Your hearts are so very kind and you all deserve many blessings. I pray for peace and happiness in your lives. Much love and many more blessings to you all, Maria

  • Dear Tanya,

    I swear when I saw your message I jumped out of my chair. I want to call you naughty or something but I'm so glad you contacted us with that beautiful poem.

    I've been so worried I came to a realisation the day before yesterday. Back when you first wrote on this site I remember asking you to reach out to people. Well, I'd thought you'd had yet another knock - back when you did. Then I realised how much everyone here cared about you; that you'd reached out to us, and you could never be alone.

    Kathy

  • Dear Tanya,

    It's a almost a day since wrote you that last message, when I was just glad to hear from you.

    Today I'm thinking a bit more clearly. I'm hoping that you're not in pain, or too much of it anyway.

    Mostly though I think of your poem, and that you're feeling so lonely in this journey. I have no answer to that. Maybe I can impart something to you; that your lonliness is ours, as is your fear.

    Best wishes

    Kathy

  • Dear Tanya,

    I'm thinking of you.

    Best wishes

    Kathy

  • Hello Readers~ I am still creating poems as I do deal with a bit more pain; my Hospice Team is "A little overwhelmed" with new people entering & asked that I go pick my meds up from the pharmacy.....Be right on THAT, consequently, I am currently without my back-up breakthrough pain medication until tomorrow; & I Quote: "We are here to keep you comfortable every step of the way....." end quote. Apparently that doesn't include everyday of this long Journey....I leave you with this:

    Only in Dreams

    I went for a walk late last night,

    Breathing in the evening air,

    Closing my eyes as I stretched,

    The summer breeze styling my hair--

    Above my head there is no Thunder,

    Only the moon to light my way,

    Some stars that seem to smile at me,

    And clouds from earlier that day--

    I felt so young as I walked,

    Carefree, I approached a stream,

    Twirling and laughing without concern,

    As my heart filled with joy, I beamed--

    In twilight, I sit on a bench,

    Remembering the days gone by,

    I look at myself up and down,

    And tears begin to fill my eyes--

    I did not take a walk this night,

    As I am too weak to do so,

    How is it that I feel no pain,

    When Cancer has kept me so low--

    I had fallen asleep last night,

    In depth, I've created those scenes,

    I begin to wake in my time,

    As this Joy remains only in my Dreams----

    T.S.M 07-20-2010

  • Dear Tanya,

    I love your poem, and in it I see your lonliness.

    But I know that with your entries you have kept us with you on a path that has only one set of footprints, which are yours now but will one day be ours too.

    I think of you and send you all the positive thoughts I can.

    Kathy