This discussion has been locked.
You can no longer post new replies to this discussion. If you have a question you can start a new discussion

Dying young & alone Why?

I was diagnosed with IDC (breast Cancer) in August of 2007, I went through the chemo, the bilateral mastcetomy, My whole circle of family and friends were a huge support to me going through this. We had lost my father in 1996 to a brain tumor, he was only 49. In June of 2009 my oncologist told me that I have Adenocarcinoma effecting the inferior mediastinal nodes, on the outside on my lungs, he labled me terminal, 6 months to a year, I am now in my 8th month, enrolled Hospice since July. I am only (just)) 38. I have no one to talk to that understands what this is like, my whole circle for whatever reason, perhaps the burden of my upcoming death, have walked away from me. I ask my Hospice nurse "isn't there other dying people out there that i can talk to? Other terminally ill people that will TRULY understand my thoughts, my feelings?" She said simply, "no" So I decided to look online for a terminal chat room, and this is what i found. I am afraid to die alone, afraid to die when my Hospice people are not here. I need others that understand the harsh realities of being terminally ill with a very agile mind because i am young. I never married nor had any children, out of choice, I wanted to pursue my carrer in the arts before i settled down. I was able to have a final wish come true through The Dream Foundation, which was way cewl :)... At any rate, I just don't understand why everyone has walked away from me, it is my belief that my circle of friends and family are tapping their fingers "waiting for that phone call", i feel like a bad secret that everyone put in the closet..... Why can't birds of a feather flock together?- Why do the dying have no one to relate to? I feel very alone in my journey as my symptoms remind me everyday that i am Terminal...

Alone,

Terminal

  • The Immune Stars are also being asked to improve situation for ms.Grumpy and ms.Shirley.

    Maybe this will work somehow.

  • Dear Tanya,

    In reference to your last post; that nurse was saying you needed to go downhill every once in a while so she'd look good.  I hope you didn't take what she said to heart, and dutifully oblige.  If you did, you'll emerge from this episode, in the same way as you did the last. What's the point of getting ill, so a nurse can run around like a headless chicken; letting everyone know she's doing her best?  There's no point at all.  Best to think of yourself, dear, and just let us know you're alright (if you're over the novelty of that Merc bed, that is).

    Best wishes

    Kathy

  • Dear Tanya,

    I hope the weather's let up a bit, and you've fallen out of love with your bed enough to let us know how you're getting on.

    Best wishes

    Kathy

  • Hey Tanya,

    How goes it....How are you coping with the heat?

    Where I live in the Midlands of England it is pretty grey outside as I lie across my bed. It rained quite a bit earlier and although grey the rain appears to have fried up for a while....I even have the heating switched on....don't tell my wife as she would have me put a jumper on rather than turn the heating on ....

    My daughter has just finished her exams and gained good results so has managed to gain access to the college course she wanted...we enrolled her today and had lunch out at Nandos a Portugese/African Restaurent where the menu is based around lovely spicy chicken...a great lunch!!! Usually I demolish my food and have to have a dessert etc however like yourself my appetite is up and down!

    So even though your appetite is up and down what have you managed to cook and eat?

    It would be great to hear from you soon

    Much Love

    Tony xxx

  • ime so sorry that you feel alone  at this awfull time in your life i wish i could put my arms around  you and give u a massive hug  ive just found out that my husband is dying so ime numb but your post made me cry  i wish i could do somthing  for you  sending you big hugs  love jackie  xxxxxxx

  • Hey Tanya,

    How are things with you now....had my 14th dose of Irinotecan and 11th of Avastin but doing okay.

    Much Love

    T xxxx

  • It's interesting how cancer feels these days.

    There's impression it may be quite disappointed things go

    not in it's way.

  • Tannnnnnyyyyyyyaaaaaaaaa

    Are you in there dear friend, can you hear me shouting!!

    Much Love

    T xxx

  • Dearest Tanya,

    How goes it all.....I trust the heatwave is over...even tho it is not yet November!!! & that your 'Angel' is still bringing you big trays of fruit .Here in the UK definitely shades of autumn now. Do let all your friends out here know how you are....I can here Tony shouting....so am sure you can too....sending you lots of love as usual skyblue xxxxxxx

  • Dear Tanya,

    I've not been able to write for a while, and expected that message from you that always seems to come when I'm not looking.

    How about dropping us a line to tell us how you're getting on?

    Best wishes

    Kathy