This discussion has been locked.
You can no longer post new replies to this discussion. If you have a question you can start a new discussion

Dying young & alone Why?

I was diagnosed with IDC (breast Cancer) in August of 2007, I went through the chemo, the bilateral mastcetomy, My whole circle of family and friends were a huge support to me going through this. We had lost my father in 1996 to a brain tumor, he was only 49. In June of 2009 my oncologist told me that I have Adenocarcinoma effecting the inferior mediastinal nodes, on the outside on my lungs, he labled me terminal, 6 months to a year, I am now in my 8th month, enrolled Hospice since July. I am only (just)) 38. I have no one to talk to that understands what this is like, my whole circle for whatever reason, perhaps the burden of my upcoming death, have walked away from me. I ask my Hospice nurse "isn't there other dying people out there that i can talk to? Other terminally ill people that will TRULY understand my thoughts, my feelings?" She said simply, "no" So I decided to look online for a terminal chat room, and this is what i found. I am afraid to die alone, afraid to die when my Hospice people are not here. I need others that understand the harsh realities of being terminally ill with a very agile mind because i am young. I never married nor had any children, out of choice, I wanted to pursue my carrer in the arts before i settled down. I was able to have a final wish come true through The Dream Foundation, which was way cewl :)... At any rate, I just don't understand why everyone has walked away from me, it is my belief that my circle of friends and family are tapping their fingers "waiting for that phone call", i feel like a bad secret that everyone put in the closet..... Why can't birds of a feather flock together?- Why do the dying have no one to relate to? I feel very alone in my journey as my symptoms remind me everyday that i am Terminal...

Alone,

Terminal

  • Hello Tanya,

    Yes a clean body is a lovely feeling but a hassle to achieve as bits of it go wrong I know!  How about something plastic and inflatable attached to your tortuous chair? I don't know what's available where you are but I'm thinking of a child's 'rubber ring' that goes round their middle or a cushion that's designed to attach with suction cups to the side of a bath.  I know you don't have a lot of puff but there's probably a way round that....or you can get mats meant to go in the bath made of a sort of heavy duty jelly...

    angelinthemaking

  • Dear Tanya,

    Sorry I've not written until now.

    Until two minutes ago I was locked out of every computer when I tried to get to this site and I've been beside myself because I couldn't sign in.  I even emailed Tony to tell you (sorry Tony, I'll send you a proper apology later).

    Thanks for acknowledging what I write to you.  I know you get the good intent behind the words.  But you know, it's you who's done so much and has all the words.  I wonder if you realise it.

    You're the voice of so many people. Rewind to how frustrated you were with the 'cancer - equates with silence of the sufferer' attitude of people who didn't have cancer.  You weren't silent.  I liked that.

    I was fed up with some of the comments people without cancer made, sometimes made from the best intentions and sometimes not.  The worse thing was that people without cancer seemed to be getting the last word; while the person with cancer seethed silently.  It seems that just because a person gets cancer, they don't stop thinking like a person without it.  That means they sometimes accept being silent!

    I've been able to look at posts over the time I haven't been able to sign in.  I often look at Angel in the Making's crew.  They acknowledge death, but treat it like piped music that can be heard but not listened to.  Cancer may turn the volume up and they'll have to take notice one day, but not yet...

    When I see those posts, I think you're writing here has had a lot to do with those people who have but aren't cancer.

    On a personal level I have to refer to a post from Angel in the Making.  Someone suggested she contact you and one of the things she said was 'they say people live longer who are loved.'  Think back to the lonely person who first wrote here to the person who's loved now.

    Best wishes,

    Kathy

  • Dear Tanya,

    I hope the weather's bearable for you.

    It must be hard when you need to weigh yourself so often.

    Have you noticed that you keep telling us how much you weigh.  Is it one of those questions you had that you just had to find the answer to?

    Best wishes

    Kathy

  • Dear Tanya,

    You're getting dangerously close to page 2 so you need to get writing.

    Love and prayers.

    Kathy

  • Dear Tanya,

    In answer to your post, yes, you are in our minds and prayers.

    Now, I have something to ask you (don't take it the wrong way).  I tend to wonder if you play a game to see who'll write to you for the longest.

    If so, does the winner get a prize?

    Best wishes

    Kathy

  • I am trying to set up a group that does nice things like theatre, meals out, walks etc when we are well to focus on the good times and the future, please let me know if you are interested, manchester area or travel, I am also incurable but have had a break from chemo to recover so have had a few good weeks and realised how good life can be again, had chemo again today, then starting a a different one in 4 weeks.my tumors havent shrunk but thy havent grown so not that bad i suppose.

    Hothead xx

  • Dear hothead49,

    That's a good idea.

    Can I ask you to post your message as a new thread, in the Dying with Cancer section as well?   Then it'll reach even more people?

    Thanks.

    Kathy

  • It is my total scheme to see how many people actually leave me messages mo ha ha.... Hugs to Kathy =)

    No, I'm really not fairing well at all with this weather!!  It has been absolutely making everyone ornry becuz its ungodly too muggy!!  Heat we can handle but when i cant breath in it cuz I'm not a fish?  Its just too much so I've been rather madusa like in my ways. Gimme winter, gimme spring, gimme fall but lemme skip Africa hot!

    I speak of my weight becuz the RN makes me speak of my weight once a week, I can stop writing that part of my life if it bothers too many of my friends; just holler, I'll take no offense =)

    I haven't got much to say as this evening I am just discouraged with this weather, my apologies for lacking creativity, as a matter of fact, I haven't had creativity in quite sometime, I've been great with rambling however.......Ugh

    Time to take my 5 Dilaudid & no offense taken btw Kathy =)

    Someone come take this wet air aay from here for me pleaseeeeeeee, I thank you all in advance......

    <3 XOXOXOXO <3

    ~-~-~-~TT~-~-~-~-~

  • Dearest Tanya,

    It's good to hear from you.

    I'm sorry the hot weather you're having is such a trial to you.  Have you hijacked all of the fans in the area and left everyone else gasping?  I hope so.

    I hope your pain medication is working for you too.

    I don't see how your weight loss could offend anyone; certainly not me anyway.  I find it comforting in an odd way.  Let me explain.  The saying here in England (you might say it in America) is that 'it's not over until the fat lady sings.'

    Love and prayers

    Kathy

  • Wonder who's to dare to blame someone in such situation

    for the lack of creativity.

    I also suppose many people here would agree to lack new poems etc

    if the energy would instead go into improving condition of the writer.

    There are also encouraging shifts in author's writing style, how many smiles

    in the text.

    Well, the Immune Stars are being asked to alter the action to strengthen

    body on the deepest levels... hope they'll do.