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Dying young & alone Why?

I was diagnosed with IDC (breast Cancer) in August of 2007, I went through the chemo, the bilateral mastcetomy, My whole circle of family and friends were a huge support to me going through this. We had lost my father in 1996 to a brain tumor, he was only 49. In June of 2009 my oncologist told me that I have Adenocarcinoma effecting the inferior mediastinal nodes, on the outside on my lungs, he labled me terminal, 6 months to a year, I am now in my 8th month, enrolled Hospice since July. I am only (just)) 38. I have no one to talk to that understands what this is like, my whole circle for whatever reason, perhaps the burden of my upcoming death, have walked away from me. I ask my Hospice nurse "isn't there other dying people out there that i can talk to? Other terminally ill people that will TRULY understand my thoughts, my feelings?" She said simply, "no" So I decided to look online for a terminal chat room, and this is what i found. I am afraid to die alone, afraid to die when my Hospice people are not here. I need others that understand the harsh realities of being terminally ill with a very agile mind because i am young. I never married nor had any children, out of choice, I wanted to pursue my carrer in the arts before i settled down. I was able to have a final wish come true through The Dream Foundation, which was way cewl :)... At any rate, I just don't understand why everyone has walked away from me, it is my belief that my circle of friends and family are tapping their fingers "waiting for that phone call", i feel like a bad secret that everyone put in the closet..... Why can't birds of a feather flock together?- Why do the dying have no one to relate to? I feel very alone in my journey as my symptoms remind me everyday that i am Terminal...

Alone,

Terminal

  • Dear, dear, dear Tanya,

    Hugs right back you little tinker!

    Glad the oxygen and meds are doing some good.  Hope the weather becomes bearable.

    I've sort of had to rethink my 'quality of life is as important as life itself' saying.  You write of merely existing, but I'd have you for the informative, supportive and interesting person you are.

    I've got to realise, though, that my choices are not yours.  So I send you positive thoughts and prayers and hope too that you get all you want.

    Love

    Kathy

    PS:  Don't forget  to write though

  • Do I have to wait THAT much longer?  I've known many to see their loved ones just before they pass on, I see nothing.......I honestly can not take much more of this mere existing, taking up space in this world.  Its tiring to be so tired  (hang in there T, you'll get used to these meds too)....

    What if this is not to happen?

    In case the Immune Stars reparing the immune system:

    I haven't ate anything worth speaking of on here but I did put on 4lbs so I weigh a buck.

    what if this is the right path to consider.

    Then if such reaction to simple oxygen intake then things are possibly not

    100% hopeless.

  • Dilaudid is well-known thing under this name since 1920s,

    and one of slightly structure modifications of morphine.

    Turned out a valuable potent analgetic but certainly to develop

    dependency though considered not as severe as for morphine.

  • Dear Midway,

    I think I'm reading a lot of positivity from you.  Keep writing (then I'll know).

    By the way, I'd love you to start a thread.

    Kathy

  • Dear Ms T,

    I got to thinking (no change there).

    Just a reminder.   You've loads of hands from here reaching out to you across cyberspace.  Hope you're holding them...

    Best wishes

    Kathy

  • Thank you, but positive things exist just because Tanya is keeping up

    much better than predicted by med stuff and seems to be far from deterioration.

    I got one thread in Off-Topic, with aircrafts images there.

  • I love the new hands that reach out for me & the hands that have been reaching out to me since I 1st started this thread.  Never stop reaching & I shall never stop grasping.  I believe I have so many out there that I may have to start using my feet !!

       I haven't got much to say but I would like to express that I believe Kathy has more writing ability than I :-)  So many times I have read your notes and many words & think; what a clever woman she is....So I send Kudos to you my friend, I do hope you feel the admiration.

       & My Tony, :-)  I have, several times, tried to send an email to you but it bounces back everytime (I am thinking there is an evil cyber gnome out there swipping those emails I send!) at any rate, know that I do try....

       I received my "bath stool" last week ~I may have mentioned it in my last post~ Well, I have a conundrum with this bath chair- when I started my road of cancer, i weighed 164lbs, i now weigh 96lbs, i'm 5'7; the math isn't good.....A very large man came & brought me my seat, he put it in my bath tub & the person that I am, I say it like it is; ask questions etc.  I said more in a ritoricle way; Who makes these things??  This thing is harder than my bath tub itself!  The seat & the back rest!  Let's think about this for a moment; apparently thee "inventor" has never had a loved one pass from cancer, deteriorate from it or any other disease that eats your body like a meal, before!  I am skin & bones, stressing on the "bones" part.  How am I supposed to take a sit down shower on a chair made of cement?? My spine hurt when i sat back, my butt bones burned for the very same reason, does the inventor want my body to smell of death so the funeral director has to deal with me?  Or.....did the inventor have some vandeta against a loved one that was mistreated at a funeral home & this is his/her way of pay back?  For now I am thinking of taking a few of my longer beach towels, wrapping them a few times to cusion my boney rearend & drape a couple more beach towels so i dont get bruises on my spine, if any of my "people" out here have better ideas?  I am all ears indeed.  If my body was more available to me, you can best believe i would certainly invent something of a chair to make bathing much more comfortable for the people who are deteriorating & dying.  Who doesn't enjoy a clean body I ask?  No need to answer; we all know that answer.....Maybe the next time we get a good downpour of rain, I'll find a way to get on the roof with my hygeine supplies & wash that way.....It would be more comfortable than that chair !!!!

    Keep writing; new & old, I love that all of you stay in touch with me <3 !!

    TT

    P.S. Please forgive any bad grammar or misspellings, my eyes seems to be working against me these days...

  • That's what may be named positivity: cursing those who made

    uncomfortable item for bath and leaving the very origin why

    all this happens resting.

    From my point of view, this again may indicate things are

    not that bad as predicted.

    Hope the Immune Stars will go on.

  • Hi Tanya, Just sitting here in front of my computer & wondering how things are with you & ping...up pops your message....lovely to hear from you...seat obviously designed by a man...I can't think of a better solution than the  towel idea, except of course you end up with very wet towels...is it still heat wave temperatures  with you? ...... you are in my thoughts very much & I send you  love & hugs , skyblue xxxx

  • Dearest Tanya

    I recently joined this website and wanted to make contact to say hello and hopefully send out one more friendly hand for you to have if you want or need it.
    I have not stopped thinking about you since I first read your thread and I have been overwhelmed at the love and support that has been shown by all your friends on this site.

    You have built such an enormous network of support which reflects what a fantastic, positive, intelligent and funny person you are.

    I hope you don't mind me making contact and hope that you've managed to have a shower without bruising your bum!

    God bless & take care of yourself.
    All the love in the world from me to you x

    Ps ¿ you write beautifully!