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Dying young & alone Why?

I was diagnosed with IDC (breast Cancer) in August of 2007, I went through the chemo, the bilateral mastcetomy, My whole circle of family and friends were a huge support to me going through this. We had lost my father in 1996 to a brain tumor, he was only 49. In June of 2009 my oncologist told me that I have Adenocarcinoma effecting the inferior mediastinal nodes, on the outside on my lungs, he labled me terminal, 6 months to a year, I am now in my 8th month, enrolled Hospice since July. I am only (just)) 38. I have no one to talk to that understands what this is like, my whole circle for whatever reason, perhaps the burden of my upcoming death, have walked away from me. I ask my Hospice nurse "isn't there other dying people out there that i can talk to? Other terminally ill people that will TRULY understand my thoughts, my feelings?" She said simply, "no" So I decided to look online for a terminal chat room, and this is what i found. I am afraid to die alone, afraid to die when my Hospice people are not here. I need others that understand the harsh realities of being terminally ill with a very agile mind because i am young. I never married nor had any children, out of choice, I wanted to pursue my carrer in the arts before i settled down. I was able to have a final wish come true through The Dream Foundation, which was way cewl :)... At any rate, I just don't understand why everyone has walked away from me, it is my belief that my circle of friends and family are tapping their fingers "waiting for that phone call", i feel like a bad secret that everyone put in the closet..... Why can't birds of a feather flock together?- Why do the dying have no one to relate to? I feel very alone in my journey as my symptoms remind me everyday that i am Terminal...

Alone,

Terminal

  • ....As faithful as I am with honesty; two nights ago of being so alone, throwing up (yet again), being in tremendous pain & now my adrenaline releasing so much of it I wanted to claw my own eyes out; I sat on the edge of my bed, pulled out the top drawer of my dresser, propped a pillow on top & folded my arms to rest my head upon.  I rocked back & forth from the burning pain that came on with every heartbeat...as though I had a horrible toothache in my pancreas.  This time it decided to add insult to injury & my entire neck also burned. (If only a fire hose could have put it out).... All I could say with every exhale was, "Let me die, let me die, let me die."  After what seemed like hours went by ( it was maybe a half an hour) my medication began to sedate me.

    ....I have never been in any situation where I was truly begging to die.  How sobering.  Its a good thing I do not believe in suicide.  I certainly have a great understanding for those who had called on "Dr. Death" back when it was not legal just un-lawed.........

    ....I do not know what's in store for me but I am keeping my eyes peeled.  Eating any real food has been similar to dropping a vice, I do still hope for the day(s) I am able to eat nice meals.  I told my nurse practitioner yesterday, "I want to die with a full stomach & the fork full of food hanging out of my mouth!"

    .......Please, please say prayers from your heart of hearts that I never experience THAT type of pain ever again.  Thank You from the bottom of my heart for being my angels.

    TT

  • Dear Friend,

    Prayers said and I also prayed for the day when you can delight us with your food eating...there was many a time you made my mouth water....

    I am so sorry you are in so much pain and glad that the meds are working.

    Not much of an update from me, still chugging along, had my birthday on Tues and had a nice slice of pie with mashed potatos, gravy and green beans...one of my faves!

    Speak soon with prayers and much love

    T xxx

  • So the pain medication seems to not work all the time, is it being admistered

    constantly?

    Can't you yourself dose the painkiller?

  • Dear Tanya,

    I think you're an angel too.

    With you suffering and still being thankful for the little things life has to offer, it's not easy to say that I can't do something in my little world.

    I dare anyone who's read your posts; seen you down and watched your reaction to some terrible knockbacks then come back, say then that they can't go on.

    It's like they say 'angels come in different guises.'

    Kathy

  • Dearest Tanya,

    Prayers said for you from the bottom of my heart. I feel for you so much, both for the level of pain that you are going through & for the fact that you are alone.....everything always is so much more magnified at night too...'The Dark Night of the Soul'. I really admire  your ability to be able to express & communicate your experiences & feelings so openly & honestly to us, it is truly inspirational...thank you. I am sure all the angels are really with you in spirit, willing you along, to become more pain free.....& to be able to enjoy some delicious, delectable,tasty dishes!!!

    I send you much love & bug hugs & kisses

    skyblue xxxx

  • Dear tanya

    I am sorry to hear you are feeling so rough and not able to eat lovely things yet.I am sure you have a choir of angels at your back.Their wings will blow you up a storm.However  it does not seem to be angels job to take away human pain , so i am with midway on the idea, could you not get better medication to at least take some of the edge off.I heard pot can help with pain control.I am not at that point yet myself but it is an appealing idea.

    I cannot send you anything useful so i throught i would send you an imaginary feast

    It will be served by a lake in the woods with the blossom on the trees which will drift down on the table and the spring bulbs in flower.You can drink from goblets filled with chilled white wine or honeymeed( i dont actually know what that tastes like i just think it sounds good)The bread will be hot from the oven and the butter freashly churned.There will be asparagus to dip in melted butter,golden fish caught from the lake will be lightly grilled on the fire where potatoes would be baking,then for pudding it will be chocolate eclairs and fresh strawberries.

    You are in my throughts .I hope things go easyer for you.

  • ... and to continue your feast ... after all that extravaganza of tastes you need a bit of relaxation and this is when a team of four men step in to massage and relax your body. two on each side , working gently on the areas hurt you the most , baby oil , ambiental music or the sound of waves, the whisper of the wind, a flute or a pan'pipe , your choice.

    reflexology does wanders, its a bit magic... i had it after my cranioctomy in 2009 ... i was stressed and in pain ... 10 sesions of reflexology brought me to heven and made me relax so much.

    keep fighting girl !

    you are not alone in this one. we are an army of milions. lets kill this ***!

    livestrong

  • Hello Tanya,

    Thinking of you especially today.....lovely Spring Day here in UK. After a long horrible winter it is great to see signs of spring with a little warmth in the sun & the cheerfulness of the daffodils & tiny lambs everywhere...hoping that  maybe your pain is easier & under control...perhaps you are able to eat something delicious?

    With much love as always, skyblue xxx

  • Dear Tanya,

    Still thinking of things to appreciate?

    It's time to write about them.

    Kathy

  • Hi Tanya

    You were in  my throughts so i throught i would say hello.I hope the sun is shining on you and you are having lovely food.