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Dying young & alone Why?

I was diagnosed with IDC (breast Cancer) in August of 2007, I went through the chemo, the bilateral mastcetomy, My whole circle of family and friends were a huge support to me going through this. We had lost my father in 1996 to a brain tumor, he was only 49. In June of 2009 my oncologist told me that I have Adenocarcinoma effecting the inferior mediastinal nodes, on the outside on my lungs, he labled me terminal, 6 months to a year, I am now in my 8th month, enrolled Hospice since July. I am only (just)) 38. I have no one to talk to that understands what this is like, my whole circle for whatever reason, perhaps the burden of my upcoming death, have walked away from me. I ask my Hospice nurse "isn't there other dying people out there that i can talk to? Other terminally ill people that will TRULY understand my thoughts, my feelings?" She said simply, "no" So I decided to look online for a terminal chat room, and this is what i found. I am afraid to die alone, afraid to die when my Hospice people are not here. I need others that understand the harsh realities of being terminally ill with a very agile mind because i am young. I never married nor had any children, out of choice, I wanted to pursue my carrer in the arts before i settled down. I was able to have a final wish come true through The Dream Foundation, which was way cewl :)... At any rate, I just don't understand why everyone has walked away from me, it is my belief that my circle of friends and family are tapping their fingers "waiting for that phone call", i feel like a bad secret that everyone put in the closet..... Why can't birds of a feather flock together?- Why do the dying have no one to relate to? I feel very alone in my journey as my symptoms remind me everyday that i am Terminal...

Alone,

Terminal

  • Dear Tanya,

    I want to ask you to write; that I'm waiting.

    However, someone here on Cancer Chat long ago said a person can't say that to another who's dying, and that the person who's not sick has to let go.

    I can let go of your pain.  I can say goodbye to your fear.  Those two are easy.  It's not so easy to let you go, or have you become your pain and your fear?  I don't know.

    It's strange, because as we grow, we come to realise that the old adages we were raised with are true.  Then something challenges a saying:  'You are not your cancer.'  That's not true.

    If I say goodbye to that pain from cancer and fear of yours, I have to say goodbye to you.

    There, I've written it (but don't forget to write tomorrow).

    Kathy

  • Dear Tanya,

    I was fully expecting to see a message from you, but no.

    I  have a terrible feeling, and that is because of an image I have of you laughing because I'm asking where you are.

    Just because I said goodbye, it doesn't give you carte blanche to do other than reply to my message.

    Of course, there could be another reason that you aren't writing.  Should I mention it?  Maybe not tonight.

    You'll write when you're ready.

    Best wishes

    Kathy

  • Dear Tanya,

    I'm wondering how you are.

    I wasn't going to mention Glastonbury, but that tree we tied messages/prayers on that daydream visit has been cut down by vandals today.

    Like the newspaper reads 'Tree vandals strike at the heart of Christianity.'

    The paper didn't mention Gog and Magog, two trees that mark a Druid path.  I bet noone cut those down.

    Maybe there needs to be a police station in Glastonbury now that will referee the battle between the Christian and Pagan tree lovers.

    Seriously, the loss of the Holy Thorn Tree has put me out of kilter and I feel as if I have to regain some sort of balance.

    Somewhere out in cyberspace you'll be giving this message a wide berth if I know you.

    Tell me that life is about people; humanity, and not trees.

    I need someone like you to write about life as it is and not life as I wish it would be.

    Kathy

  • Dear Tanya,

    Still not writing, eh?

    I'm waiting.

    Kathy

  • Dear Tanya,

    I've got a bit of an odd feeling about your not writing.

    I'll explain in a couple of days...

    Kathy

  • Hey T,

    Missing you my friend - I want to chat about my new motorbike - I finally passed my test and want to share it with you.

    All the best

    T

    [[ ]]

  • ......Phew.....As much as my beating heart pulled me to write, I simply was too ill to do so.  Hospice has their theories, I have mine;  I have been walking in this body of mine for almost 39 years, I dare say that gives way to my theory being correct, eh, I'm biased though.

       It seems our President put this new Healthcare Bill into place; effecting the dying.  I am not a political person but this part of my Life I can not leave out.  Because I have not died in their alotted 180 days, I now have to see a Nurse Practitioner in my home, HE will be recertifying me every 60 days, HE will come on a weekend; ALONE; in the States, it is the Law that when a woman visits a Dr., a female nurse is to be present because, unfortunately, we have had sick minded doctor's taking advantage of women.  Apparently the NP for the dying has been excluded from this law.  HE will want to check out my visable tumors which are not in areas where I can just pull up my sleeve or pull up a pant leg!  HE may discharge me because I am not going to be that cooperative 90 year old that can't speak for myself!  So as not too ruin my "Birthday weekend", I refuse to carry this thought with me; I will cross that bridge when I come to it (January 8th)...

       Although I really do love the Christmas decorations, my home speaks of a silent Christmas feel this year.  An old friend has just recently broke-up with her "best friend" & is now contacting me. (There is a very long story behind this I may touch on at a later date) some people just don't understand that once you have burned a bridge to ashes; you'll never cross it again....She offered to come over Sunday to put up my tree & decorate the house for me, I do think its a nice gesture but good luck swimming the waters that that old bridge use to cover..  I love to give; enjoy lighting up everyone's eyes; but when taking a shower & making some 13 - 15 minute muffins requires a 4-6 hr. nap, how am I supposed to put up that pagan tree with a Christian Heart? A weak, from being sooo ill, body?  I wished there were two of me........

      

    Dear Santa,

       This is my very 1st Christmas list, I hope the riendeer & Mrs. Clause are doing well.

    1. That Old Holiday feeling I remember from years ago

    2.  To find the energy to enjoy this Holiday Season

    3.  Not to give my Family & Friends the worst Holiday memory a person can ever have; dying

    4.  To be able to make that one dish to pass

    5.  Please let my Niece & Nephew remember me

    6.  I don't want to shed anymore tears until next year

    7.  To have a Wonderfully well-rounded Christmas

    8.  Not lose anymore wieght

    9.  Have an appetite to be able to feast & not be stared at because, "She must not be doing well, she only had a little bit of food."

    10.  Not be "talked about" after I leave~ "I can't believe how much wieght she has lost!"  "I think she will die soon."  "Did you pay attention to how

          pale she was?"  I could go on & on Santa but I think you get the idea

       I'm sorry my home is void of a Christmas tree this year but you can put my gifts under the tree that lives & twinkles in my dreams...

    Thank You Santa, I'l be sure to leave cookies & milk out for you just know the cookies will probably come from the store & not my kitchen and you might have a tall glass of cold water instead of milk just in case I was unable to make it to the store.  I was very, very good this year.....

    Sincerely,

    Terminal  

  • Hey Terminal T.

    Good to hear your lovely words even if they are a little sad...here is my response to your Christmas List if I may...

    1. Watch it's a wonderful life with James Stewart - my favourite film and as big as I am brings a tear to my eye every time :-)

    2. Pick something that takes no or little energy...put on some choral Christmas tunes and sing along...get a good Turkey dinner and eat what you can...full of flavour, or even a good home made type turkey soup.

    3. I am sure you will make it past the Christmas season just so you get the chance of No's 1 & 2

    4. Don't understand that one, please elaborate :-)

    5. How old are your niece and nephew - write and frame one of your beautiful poems and get them framed - dedicate them to your niece and nephew, how can they forget you with a framed poem which they will carry through on their journey.

    6. Then don't, although watching It's a wonderful life I can't guarantee it but then that is then allowed.

    7. and YOU will...

    8. See number two, plenty of tasty Turkey soup and you will be sorted!

    9. Whatever you do people will say things and think things, their problem not yours...you cannot change that.

    10. Then make sure all those questions and statements are answered and spoke about if not to everyone a couple of key individuals so the proper update can be given.

    I think Santa will love the statement on what will take the place of a tree so much that he will forgive you for not having a tree.

    I love the 'swimming the waters' comment typical poetic statement from you.

    Santa loves cookies from the store and is sick of milk although the reindeers will have a dim view if there is not a carrot in sight!!!!

    Speak soon and make sure you get skype sorted out for Christmas or at minimum MSN messenger!

    Much Love dear friend,

    Your Tony xxxx

  • Myself also had strange feeling about the process in past 2 weeks,

    like, my intuition, which gets sharper while reading this thread, supposes

    the "immune hits" plus muscle pain may have repeated during that time,

    but not as sharp as before.

    What if stars are favourable for pushing it to work, who knows?

    Interesting enough, the same may have been happening to Fatcat123

    and Grumpy.

  • As for 4-6 hours of nap for the simplest act, I know a person which had smth worse than cancer

    in terms of energy lack; the same lasted for 3, now almost 4 years day after day.