I was given this diagnosis 16 months ago and consider myself young at 59. I went to the doctor with a croaky voice, being a non smoker I was shocked to go from being a healthy, fit, fulltime teacher, fulltime wife, mother and grandmother to a person with stage 4 lung cancer that was terminal all within 2 months. Making the ordeal worse was discovering it’s a rare forum with only 2-5% world population which meant even my oncologist who was amazing and continues to be amazing, with an equally amazing team around her, can’t always answer all the questions. Medically they can without question but with so little statistically available, finding information can be hard. I aim to write a blog to help others in the future with my story, but does anybody out there have my form of lung cancer and would you like to chat? I have been taking targeted therapy pills since diagnosis which has up until recently kept everything stable. We have a meeting next week to discuss the next steps due to tumour growth. We are not UK based we are overseas UK territory and my team work along side The Royal Marsden so our care may differ but it would be nice to talk with anybody out there with this same gene mutation. Staying positive mentally and physically but would be great to hear from someone in my position.