Having treatment for breast cancer that has spread to spine - is it worth it?

I have recently been diagnosed with stage 4 metastatic breast cancer which is also in my spine.  I have been told it is not curable, but treatable using hormone therapy.  The side effects are very unpleasant, and as this will only slow down the cancer cell growth  not get rid of it, is it really worth going through all this for the end result to be the same.  My initial reason for having MRI etc was increasing pain in spine, loss of balance, weakness in legs and arms, and this treatment will only make the pain worse and have no benefits.  Please advise

  • Welcome to Cancer Chat Pandorax, although I'm sorry to hear about your diagnosis and the increasing pain you've been having in your spine. It must be very difficult to live with.

    I know you have some concerns about going ahead with the hormone therapy so if it would help to talk to someone about this, our cancer nurses are available on 0808 800 4040, Monday - Friday between 9a.m - 5.pm. They're very insightful and will do all they can to support you.

    I also wanted to put you in touch with one of lovely members,  . She was diagnosed with secondary breast cancer with extensive bone mets in September 2024 and has been having a combination of Ribociclib, Exemestane, and Denosumab for just over a year now, so hopefully hearing about her experience and talking to someone who really does understand what you're going through will help you with your decision. 

    I hope this helps Pandroax and you're able to come to a decision that's right for you.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Hi Pandorax  I am so sorry to read about your diagnosis.  Like Steph says I am in the same boat as you.  I have mets in my pelvis, hips, spine, ribs and skull.  I have been on treatment for over a year now.  The treatment for me has definitely not been too bad and it has not made the pain worse, in fact it has made me feel better.  I also had radiotherapy for one of the big tumours on my spine for the pain which really helped.  I think there are definitely benefits to the treatment, no it can't cure it but it does slow it down and make it stable and you can live for many years with this condition.  I really have a good quality of life, I walk my dogs, go out with friends and enjoy life.  My husband and I went on holiday to Portugal last year and we went to Iceland this year.   I make plans and look forward to them.  In the beginning it is harder to believe that you can live a relatively normal life with this cancer, but you can.  I had some counselling in the beginning that Macmillan organized maybe the help line on here can point you in the right direction also Maggies centre can be helpful.  I am doing various courses with a cancer charity called Penny Brohn and they are so helpful.  They are all online zoom courses and do weekly clinical hypnotherapy with them which really helps me relax and destress.  I know I am rambling on but I wanted you to know that you are not alone, I am here.  Take care and please believe me, it is worth it.

    Lee x