Found out my mum is dying on Christmas Eve

Hello all, I’m sorry if this post is very disjointed as at this point I haven’t slept in 2 days.

My beautiful strong wonderful mum got admitted to hospital 2 weeks ago because she had a couple of falls. A week later, after her birthday and retirement day happens in hospital, I find out that she has lung cancer. I have been very upset for days at this point. Christmas Eve rolls around, she gets discharged! No need for oxygen to come home, but I notice that there’s midazolam and hyoscine in the bag and I start to freak out internally. I read the discharge notes and I find out.

My mum has terminal lung cancer. She has metastases in her bones, her brain, her adrenal gland and her stomach and pancreas. I believe she may already be in the process of dying. 

I feel really really really frightened as anyone would do when losing their mum but I am 24 and I am autistic. I have severe mental health issues, namely OCD, which started around childhood as the direct fear of losing my mum to lung cancer. I knew something was wrong for months and I’ve been having an increase of my panic attacks and nightmares and my OCD has gotten worse and now to have my very worst fear confirmed I genuinely do not know what to do.

I am not alone in that I have my older sister and my dad and my sister’s partner and my own partner and my friends but I feel so sick and unwell. My mum is the one who wipes away my tears when I cry. She’s the one who looks after me when I have my panic attacks. What she has put up with as a result of my illnesses over the years, her last healthy years, I will never ever forgive myself for. She’s my rock and she’s dying and I’m scared.

I feel like I’m going to be so useless in the next coming days or weeks and make things worse for my mum and my family with how I am. I would move heaven and earth to make my mum happy but she’s spent Christmas Eve night consoling ME and holding ME close and telling me I’LL be okay. She is so brave. I love her so much. I feel like my whole world has been ripped apart

  • Hi jezzyfish,

    I'm very sorry to hear of the situation with your mum. This sounds so incredibly difficult and I can imagine how much you must be struggling.

    Firstly, please don't feel you have anything to be forgiven for in terms of your mental health issues that you describe. You have done nothing wrong and I'm sure your mum wouldn't want you to think like that.

    This must all have come as such a shock. It's important that you try to take things one small step at a time - try to break things down bit by bit and to not necessarily look at the whole big picture all the time. I know this can be easier said than done, but it can be a manageable way of approaching things.

    Please also know there is plenty of help available whenever you need it. It's good to hear that you have other family around you, as well as your partner and friends. Keep speaking to people and reaching out to others - you are not alone and it's important to speak about how you're feeling. Some people also find it helpful to write things down, either privately and/or publicly, such as on this forum.

    You may find it helpful too to write a letter to your mum, especially if there are things you want to make sure you say. Sometimes this can be a useful way of thinking things through and writing down the most important things.

    If you need any medical support at all, keep in touch with your doctor. If you need any urgent support out of hours, please have a look at the urgent care services information on the NHS website. If you'd like to talk things through with someone, we have nurses available. You can reach them on freephone 0808 800 4040 - Monday-Friday, 9-5 (except 25th, 26th December and 1st January).

    On our website we also have some information available, such as this page on how to support someone with cancer, and also resources and support when someone is dying.

    Also, Macmillan have lots of information and a helpline too.

    Do keep in touch as we are always here on the forum whenever you need it.

    Take care of yourself and as I say, try to take things slowly.

    Wishing you all the best,

    Ben
    Cancer Chat Moderator