live alone with an incurable diagnosis

Hi 

I'm 5 years in to an incurable diagnosis, and running out of options. I live alone and have finally taken time off work, but not sure how to deal with this next phase. I finished my third round of chemo in September and have been recovering since, but feel a bit lost as to what to do for the future, with a scan in about 2 months. Does anyone have any guidance on how to deal with this uncertainty? I feel well.... just tired sometimes. 

  • Hi Rose,  I am sorry to hear about your diagnosis.  I am not surprised you feel tired, working through five years of treatment.  Did you want to know about going back to work or if you are unable to, about claiming some help?   I have incurable breast cancer with extensive bone mets but only one year into diagnosis.  I gave up work in June this year.  I worked in the jobcentre for 21 years and could no longer sit at my desk as was too painful.  Please let me know how to try and support you.  Cancer is very lonely but I am luck enough to have a supportive husband.  I am on this forum every day so can chat anytime.  Please let me know how I can help or just chat if you want.  Sending you hugs.

    Lee x

  • Thank you Lee so much for your lovely reply. I’ve been away for a few days and away from tech. I’m very sorry to hear about your diagnosis and send you hugs as well. 

    I’m back properly at the weekend so I’ll pick up then when I’m back on a laptop and it would be great to share and support as possible,. For me it’s the emotional thinking about work and best living life at the moment, rather than the more practical side, as I’m just at the beginning of acceptance that what was normal, and expected ( working/juggling treatment) may not be the answer any more…

    thank you again so much , and wishing you well

    Rose x