Syringe drivers at end of life experiences..

My dad got admitted to the Hospice on Wednesday this week after refusing to go to the Hospice as he was getting more and more ill at home despite us caring for him. 

Dad has B Cell lymphoma and is terminal the Drs at the Hospice have said he has days left if that. It’s been so painful sitting every day since Wednesday watching him suffer it’s awful and horrifiy painful watching a parent dying. Since dad had the syringe driver put in on Monday he’s got progressively more sleepy and dosey and since the hospice upped the doses of his driver meds including the pain med and sedative he’s just sleeping all the time and since yesterday he’s not really responsive and not talking at all. It’s awful why are the meds doing this to him? I feel the Hospice are just drugging him up it’s like my dads gone now he cant even speak now or move he’s just asleep but breathing. The dr told me it’s because his liver is probably failing and he’s not processing the meds properly and his cancer has also maybe got worse which is taking its process in the background. Does anyone else feel that when somebody goes on the syringe driver and the meds get upped in the hospice that they just drug the patient up until they pass away? It’s awful to witness I’m tortured by this week seeing dad like

  • Hi mistygrey, I am so sorry to hear about your dad, having lost my mum to this horrible disease, my thoughts and prayers are with you and your family at this time.

    I was in healthcare for 15 years 5 of which 5 were in palliative/cancer care and was very familiar with syringe drivers, and their only purpose is pain management, and having seen many people pass away, and not all peacefully, which is a truly distressing experience for everyone, I had to watch my mum go through hell for her last 2 weeks, pain management is so important, I know you would love to talk to your dad, even for just a little while, and maybe the Dr's can adjust his meds to you that chance, 

    Eddie xx 

  • Hi Eddie thank you very much for your reply. 
    my dad sadly passed away last night at 1 am he had an upped dose in the driver a few hours before he passed I don’t know if that’s coincidental or not, the day before his dose was also upped and he spent all of Friday and Saturday in a coma like state but breathing himself. It was truly distressing to witness this and him be in the hospice since Wednesday. 
    He must have been terrified unable to speak near the end, he was speaking fine on Wednesday and a little bit of Thursday but then it went downhill and he was just mumbling incoherently. I’m truly devistated. I’m so sorry you had to loose your mum also to this awful illness I wish it had better more humane treatments and more cures available it’s heartbreaking. Thanks for writing at this time.

  • Hi I just wanted to say how sorry I am to hear that your Father died last night ,you will feel very sad indeed after the days he had leading up to that ,you have a right to be truly devastated the only good thing is he won't be suffering anymore ,I hope you can have some comfort from knowing that ,God Bless you all x

  • So sorry to hear that your dad has passed away.  He was probably not aware of anything at the end, I know that with my mum, in addition to painkillers, there were also drugs in the syringe driver to reduce their distress and to relax her.  It is very hard to get over watching your loved die, but it does get easier I promise you.  You never get over it, just over time learn to remember the good times more than their final days.  I am now 2 years on from losing my mum, I still miss her every day, but I can remember her with a smile and know that she is at peace with my sister (who passed 15 years ago also from cancer).

    Please be kind to yourself, I hope that you have people with you to support you through the coming days.

    You are in my thoughts and prayers.

    Annie

  • Oh sweetheart, I am so sorry to hear this, please accept my sincerest condolences to you and all his loved ones, losing a parent is heartbreaking under any circumstances and I know it's an awful and difficult time for you and you will question these last few days, which we all do, but as someone who has cared for many people at their final days, and also has terminal cancer, this is the way I've chosen for my end.

    love Eddie xx 

  • Thank you so much Eddie. You must have done a fantastic job of caring for people in those vulnerable times, it must be a very difficult job. I think people who work in Hospice settings and palliative care are real angels x