When you refuse treatment. T4N1 orophangeal cancer

Hubby has been diagnosed with cancer for 3rd time .and has refused to see oncologist at another hospital as he can't face any treatment to prolong his life . The NHS doesn't seem to know what to do with him .Palliative care referral "symptom led"  but no clue as to where he is on  this last journey . No time scale suggested . Feeling adrift. 

Parents
  • Hi Zillah,

    Glad your GP is now helping you. I am only just starting my prostate cancer treatment, but have felt the same lack of support from the hospital. For whatever reasons, the NHS is just overrun, unfortunately, and most departments struggle with human contact and support. I wish you well in dealing with your husband's difficult diagnosis.

  • Thanks Whiskers , I'm sorry that you're dealing with prostate cancer   and hope the treatment goes well . We've dealt with urology in the NHS too as hubby had surgery for bladder cancer 18 months ago . Some depts. very good ,  others not so . We have to deal with 2 hospitals whose IT systems are incompatible despite being linked in other ways . I felt that the NHS protocols expect the patient to get on the conveyor belt as laid down in the protocol and when he jumps off early..... they are unable to change direction. 

Reply
  • Thanks Whiskers , I'm sorry that you're dealing with prostate cancer   and hope the treatment goes well . We've dealt with urology in the NHS too as hubby had surgery for bladder cancer 18 months ago . Some depts. very good ,  others not so . We have to deal with 2 hospitals whose IT systems are incompatible despite being linked in other ways . I felt that the NHS protocols expect the patient to get on the conveyor belt as laid down in the protocol and when he jumps off early..... they are unable to change direction. 

Children
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