Prostate Cancer Stage Y

Well I got my PSA reading for September,every 3 months I have to have a blood test just to keep track & inform my GP my PSA is 692

I will need to ask my GP to book a full body scan so they can see how far my prostate cancer has invaded my body

Death comes easy if you've had a great life which I have had so I just accepted my cancer diagnosis from day one,and after reading extensively I realized I had no chance of survival with:

Initial PSA in 2019 of 109 that means it advanced already invaded all my body tissues & the Gleason 9 indicates my Cancer is very aggressive.

I am a practical person so I im fascinated about how death will take me & how I will feel about it will I be aware etc etc 

I know my outlook is totally different from most people but I've never been afraid of anything in my life so why should I be scared of dying?

I'm 61y old I may see 62 but will not see my 63rd birthday the thing which bugs me is the state will get all my state pension that I have worked for from 16 years old!

  • Hi Cccxm02,

    I just wanted to welcome you to our friendly community. I am sorry you got this high PSA reading and it's not a bad idea to ask your GP for a full body scan. You might be interested in reading the information we have on our website about prostate cancer. I am glad you have lived life to the full and you seem to have a great pragmatic attitude but as it's really difficult to have an accurate prognosis, it may well be that you still have many more years ahead of you and I certainly hope that it will be the case and that you can still have access to effective treatment options and fingers crossed get to enjoy that precious pension!

     There are several members of our community who also are dealing with advanced prostate cancer at a similar age - one name that inevitably springs to my mind is  . You are definitely not alone here and I hope that you will get chatting soon to others who currently find themselves in a similar place. 

    Best wishes, 

    Lucie, Cancer Chat Moderator

  • Hi Cccxm02, and a warm welcome from me. I love your attitude and that you are ok with your prognosis having had a rich and full life, A sentiment I am happy to share. But I also agree with  Moderator Lucie  when it comes to your prognosis, I was in healthcare 15 years and did 5 years in palliative care and telling someone how long they might have left is mostly down to guesswork and out of date surveys with a little experience thrown in, so in my experience it's best not to take it as gospel, and I know a few people who's PSA has been much higher than yours and are still doing ok 10 years on, PS ny PSA never got above 8, I'm T4 N2 M1a and Gleason 10, my cancer is in 17 places and I have 15 co-morbidities and I expect to have a good few years yet, I have been blessed with 2 wonderful partners who are both a huge part of my life, 4 amazing kids and 10 beautiful grandkids, I worked from the day I left school until I retired 5 years ago in jobs I loved and like you I'm miffed that I won't see my pension, so will make do with PIP. Don't spend your money too quickly my friend, you may have longer than you think. my best wishes to you and all your family, take care. 

    Eddie 

  • I thank you for your kind words but I know my own body & if my GP had listen to me in 2011 I wouldn't be dying.

    Other things are starting to fail in my body which as a semi pro athlete all my life I know something is coming.

    I'll know more once I get a scan done but having no treatment at all with my details thus far isn't optimistic but I'm never down or  upset I've always been a happy person by nature so as I stated earlier biology has always fascinated me i love reading & knowledge so this prostate cancer is to me something to be studied.

    I'll update once again in December once I get my scans done.

    I've also found out by reading/study 

    The highest PSA levels ever recorded is 23,162 ng/mL in prostate cancer,so i have a very long long ways to go....

    My philosophy in life has always been "Make my character like steel" 

    Nothing phases me in life!