Oncology team issues and mistakes

I am feeling a lack of confidence in my oncology team.  First of all they guessed at my stage of Ovarian cancer telling me it was Stage 1c when in fact 4 months later my surgeon casually announced it is stage 3 clear cell which is very aggressive.  Just before my 3rd chemo cycle the registrar informed me I needed a scan to see the progress.  The scan date was fixed for after my 4th cycle.  I asked my cancer nurse specialist if I should go ahead, she said she would check but didn't come back to me.  Both my consultant and registrar were surprised.  My 5th cycle was cancelled pending surgery but I was not informed until I turned up on the planned treatment day.   The records were not updated and my surgeon had the 5th cycle as being completed.  There have been other mistakes and j feel I always have to keep on top of them to look after my interests very disappointing and worrying.

Parents
  • I was diagnosed with womb cancer had the scans, biopsy etc and MRI . They thought it was a stage 1A. I had my fallopian tubes, ovaries, womb and cervix removed.

    It turned out to be a stage 2A… I was told the total hysterectomy would cure me. Since the operation I have now found I have cancer in my pelvic lymph nodes. I am currently under going radiotherapy.

    Scans can’t always pick up the exact stage , I am afraid - keep strong x

Reply
  • I was diagnosed with womb cancer had the scans, biopsy etc and MRI . They thought it was a stage 1A. I had my fallopian tubes, ovaries, womb and cervix removed.

    It turned out to be a stage 2A… I was told the total hysterectomy would cure me. Since the operation I have now found I have cancer in my pelvic lymph nodes. I am currently under going radiotherapy.

    Scans can’t always pick up the exact stage , I am afraid - keep strong x

Children
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