I am feeling a lack of confidence in my oncology team. First of all they guessed at my stage of Ovarian cancer telling me it was Stage 1c when in fact 4 months later my surgeon casually announced it is stage 3 clear cell which is very aggressive. Just before my 3rd chemo cycle the registrar informed me I needed a scan to see the progress. The scan date was fixed for after my 4th cycle. I asked my cancer nurse specialist if I should go ahead, she said she would check but didn't come back to me. Both my consultant and registrar were surprised. My 5th cycle was cancelled pending surgery but I was not informed until I turned up on the planned treatment day. The records were not updated and my surgeon had the 5th cycle as being completed. There have been other mistakes and j feel I always have to keep on top of them to look after my interests very disappointing and worrying.
