Hi Hennaman

Firstly, I'm so sorry to hear of your diagnosis. It's such a difficult time for you and your family. 

Sorry to hear that you feel unsupported on the medical front. When you spoke with your consultant, was you passed on any information? A specialist nurse or Macmillian nurse contact details who you could speak to?

My mom was passed a lot of information on where she could go for support or if she had any questions when she was diagnosed. 

Sending best wishes 

Mel

Hi Mel

No, the information I was given was sparse but through my own digging and my brilliant GP I am now in touch with Macmillan and they have given me loads of information to be getting on with.

I guess I just feel lonely with this sometimes and if something is bothering me I dont want to upset the family by bringing it up. I am sure groups like this will be a great help.

Take care

H

Hello Hannaman

I'm sorry to hear about your diagnosis and that you've been left feeling so adrift by the hospital. It's understandable that you've been feeling lonely and frustrated. 

I'm really glad to hear that your GP on the other hand is brilliant. It's great that you have that support from them and that they were able to put you in touch with Macmillan. 

I wanted to give you the link for a charity called Maggie's. Hopefully there is a centre in your local area and I'd really encourage you to get in touch with them for some support. If your wife and son feel that they would like support too then they can also access the services at Maggie's. Cancer undoubtedly can leave you feeling very lonely but you're not alone Hannaman. There is support out there and hopefully you'll be able to access that. 

If you want to chat with our nurses at any point you're welcome to call them on 0808 800 4040, Monday to Friday 9 am to 5 pm. I know they will be happy to listen and to offer any advice and support they can. 

I also wanted to just share with you some information on our website about getting a second opinion. Sometimes getting a second opinion doesn't make a difference to the prognosis but it can help with coming to terms with the diagnosis, so if this is something you feel you need and the Consultant has been unsupportive then do chat with your GP. 

In the meantime, know that we're here for you any time you feel the need to chat, ask questions or simply offload how you're feeling in a safe space. 

Sending you my best wishes, 
Jenn
Cancer Chat moderator 

Truthfully, and i appreciate you're not me, but in your position, and faced with a similar prognosis, i'd seek a second opinion if i felt the same as you. Not saying it will get you far, and not insinuating it will change much, but you will know you've done all you can. Folk have discovered trials etc by widening the net, that weren't ever known to them.

Everyone is entitled to a second opinion.

Hi Hennaman 

That's great to hear you have got some information from your GP. Macmillian are just fantastic. 

Completely understand, even though we have lots of support around us, we have gone through the feeling of lonley and still do. Always here is you need a chat. May not have all the answers but here to support where I can. 

Take care and sending best wishes to you 

Mel