End of life or is she getting better??

Hi

 

I'm just looking for a little advice, family member went into hospital 5 weeks ago we were told they were at end of life and she seemed to not have long left however she bounced back and wanted to come home so we arranged this and got care in place. She seemed quite stable for a couple of weeks then a week ago deteriorated again, we're at the stage she has a catheter, isn't mobile at all, on syringe driver, very confused, hallucinating. We prepared for her to have hours then midweek she picked up again. Talking more, made peace with dying, eating a little, drinking slightly more, saying goodbye to people. She now believes she's getting better and has said she isn't dying. We're all so confused. Is this a rally or is it lasting too long? She's sleeping for most of the day but coming round and chatting although can be confused and speech is quiet. Eating soup in small quantities but mouth very dry and drinking a reasonable amount.

 

We're all doing what we can as she wants to remain at home but we just don't know what to expect now. Thanks if you can offer any advice in similar situation

Parents
  • Not sure about the duration of her bounce back, but there is a well known phenomenon that can occur towards the end of life, where the patient barely moves, and it seems they are indeed on the way out, then they rally. It can confuse a lot of people/families, because that patient then rallies for a short time, and in some cases seem healthier than they were before they even went into hospital. It gets everyone's hopes up. That the doctors could/must be wrong. However, the patient then goes downhill again. Medical staff sometimes warn you of this before it happens.

    What you're describing happened with my mother in law (wasn't cancer related). She was the picture of health for a wee while opposed to how she was for the weeks prior to her rallying. But yeah, she went back downhill again.

    That said, doctors just use educated guesstimates, and it's not an exact science when the person will slip away. It happens when it happens. What I'm trying to say, keep your expectations in check and enjoy what time you have with them because it could change drastically. Who knows!

Reply
  • Not sure about the duration of her bounce back, but there is a well known phenomenon that can occur towards the end of life, where the patient barely moves, and it seems they are indeed on the way out, then they rally. It can confuse a lot of people/families, because that patient then rallies for a short time, and in some cases seem healthier than they were before they even went into hospital. It gets everyone's hopes up. That the doctors could/must be wrong. However, the patient then goes downhill again. Medical staff sometimes warn you of this before it happens.

    What you're describing happened with my mother in law (wasn't cancer related). She was the picture of health for a wee while opposed to how she was for the weeks prior to her rallying. But yeah, she went back downhill again.

    That said, doctors just use educated guesstimates, and it's not an exact science when the person will slip away. It happens when it happens. What I'm trying to say, keep your expectations in check and enjoy what time you have with them because it could change drastically. Who knows!

Children
  • Thanks for your reply, I'm sorry to hear about your mother in law, I have read about rallying and initially that's what I thought but it's been 4 days now and I wasn't expecting it to be so long. She is more confused now but she thinks she's getting better the last couple of days. The not knowing is just so difficult isn't it. Everyone has taken time off work but now we're confused as to whether we should go back and save time off for later or if this is just a natural part of things and could change quickly again.