Bowel cancer, secondary liver cancer

Hi anyone,

My ex husband (40) was diagnosed with bowel cancer at Christmas, stage 4, spread to his liver and was in 36 of the 40 lymph nodes they took out! 
 

We have 4 children together and I'm just wondering how everyone in a similar situation helped their children through it. Being the Ex I'm not sure I get all the information, although he assures me he will tell me everything, but what if he's not asking the questions because he doesn't want to know? It's hard knowing what to tell the children when I'm unclear of the whole picture myself. 
 

At the moment they've told him the liver is not operable, but he's only had 3 rounds of chemo so that may change. If anyone reading this has a similar diagnosis and has more info, I'd be really grateful. 
 

2 of my children are really struggling with anxiety so I really need to get them some help. 
many advice would be greatly received. 

Parents
  • I am very familiar with this story. My husband was 41 when he was diagnosed with bowel cancer which had spread to his liver. They told us at the time that his liver was inoperable but he had an amazing response to chemotherapy. 18 months later he had a liver resection. He recovered really well from that operation. Unfortunately he passed away with a problem with the tumour they had to leave behind (they were planning to go back in and get in 8 weeks after the first operation) as this tumour was in a really awkward place. Even though the outcome wasn't good for us, I wanted to say don't lose hope. We got through 2 years by keeping postive and having hope. A lot of bad luck came our way in the end but everyone is different. 

     

  • Thanks for taking the time to tell me your story. 
    my Ex had a scan about 2 weeks ago and has a 30% strinkage of all his tumours in his liver, (they are all over) he's feeling really positive and said the doctor wanted to hug him she was so surprised. He thinks he has years to live now, but I can't help being a realist. His liver has tumours all over and big ones at that. His biggest was 10cm before the shrinkage, now 7cm but that's massive. Been doing lots of research to see if the size of tumours have any influence over how long you can survive, but can't find anything. Obviously I'm hoping he has got years but concerned he's telling our children he has, when he doesn't really know. 
    Then of course they can have complications at any time, like your husband. So sorry to hear that.

    I just wish there was more information out there, but it's so individual it's impossible. 
     

    Again, thanks for replying,

    x

  • Have you had a second opinion?

    Looked into nano knife?

     

     

     

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