Aged 36 and stage 4 bowel cancer

Hi,

Writing this is hard as I can hear my 3 children playing so nicely. Just over two weeks ago I went to A&E with what I thought was a hernia or appendicitis. Little did I know that 12 hours later I’m being told I’ll be having  emergency surgery to remove a “mass” in my large bowel. What a difference a day makes. Now I have a stoma and bag fitted which I have become used to (if that was my only issue) as well as a 20cm abdominal wound that is healing (far to slowly for my liking). After seeing my oncologist on Friday I’ve been advised that the chemotherapy will be palliative care to lengthen my life (by how much they will not know until the first round of chemotherapy).

Now the support/advice I’m looking for is how me and my wife can break this news to my children who are aged 6,4 and 16 months. Then how to make however long I’ve left to make it memorable for them and me.

Lifeaquatic

  • Hi, i am so so sorry that you have to go through this, its a terrible disease and very distressing for all involved, i know how you feel about, one minute youre fine, the next you have a cancer diagnosis and your world is turned upside down in one second...we are also going through this and have two small children involved, its very difficult to know what to tell them as we`ve noticed saying nothing makes them scared and unsure about what`s going on in their lives, the upheaval of therapy and all the other stuff you have to go through with this diagnosis, constant hospital visits, feeling lousy for days after chemo (not always i hasten to add) and just generally not being able to  be yourself, is very difficult for children to understand (where did my happy mum go?!!!).....i truly believe it depends on the ages, your smallest will not need much except lots of love as usual, and the routine as normal as possible the 4 and 6 year old is a little harder and i think the best way is to tell them something wonderful, like Celine Dion did with her children....that daddy is always going to be there and watching over them but from up in the sky, like a star or an angel, they can get great comfort from this as they dont yet understand the concept of death......live every day the best you can and surround yourselves with love and only positive things as a family unit, enjoy you children and spend as much time with them as possible...the love you have for eachother will still exist even when you are not there......i really wish for you another outcome to your diagnosis, drs are not always right!...many  blessings xxxx

  • Hi proneto  iam new to this my son in law just been told today he has stage 4 cancer  and has a 12 year old son can't operate  but doesn't  no anything  else  me and my daughter judg don't know what to say just crying  all the time  I hope all the treat is still working for you xxx

  • Firefly how's Kevin  just read  your post my son in law just been been told today has stage 4 cancer of bowel  and liver   can't operate  but don't know what they are going to do chemo  I hope good luck to kevin

  • Sorry to hear about your son. I hope he fairs better than my husband. Unfortunately, Kev lost his battle April 2020, 10 months after being diagnosed :-(. 

  • Firefly  what supplements  did kev have 

  • I can't remember them all anymore but Turmeric was definitely one of them as well as Cbd oil 

  • Thanks  for your help hope you and children are OK 

  • Hi, i hope this post is okay. Two weeks go my dad got told he has stage 4 colon cancer. Since then he has had a PET scan. It's been 10 days now and still no news. Is this a normal time span to wait ? Or is my dad possibly not telling me.

  • Hi yes my son in law is 33 got told 2 weeks ago and stage 4 they are going to give him chemotherapy  on 18 Oct  he has the nurses coming out and I have been on the phone to GP so he is not missed  .