Oh bless you! I feel for you as my husband is 40 and was diagnosed with terminal cancer back in April. We have a three year old and a 1 year old. How are you coping and how is treatment going? Sorry to jump in after your first post (not read any further as yet) but I hope you’re ok. Thinking of you and your family so please get in touch if you need to talk xx

Hi all,

Sorry not caught up with this in a while. Husband's scan showed a second improvement in his tumours and the main secondary one in his liver shrunk to about 3cm. Unfortunately, since chemo stopped, he has deteriorated and we are waiting to find out if he has fluid on his lungs which means his ct scan will be brought forward to this week. So scared as I know it won't be good news. I feel lost for him, for the kids and myself.  I have no idea what else to do, we have literally tried diet, supplements etc. He had d and v last week and has lost all the weight we managed to get back on him. Anyone know how to get weight on quickly??

Gem

Hi Gem,

Sorry to hear about this. I know exactly how you feel. I hope the CT results come back better than expected and give you more hope? My husband had a CT on Sunday and we see his oncologist next week - absolutely dreading it. He has lost a significant amount of weight too and we are now trying protein shakes and bars for him to eat between meals and so far he has regained 2kg. The issue is chemo makes them feel so I’ll and unlike eating doesn’t it? The doctor also gave him some calorific fruit flavoured shakes on prescription but he hates the taste. 

I have to get back to the kids now but will write again soon. Good luck and thinking of you x

Hi, hope CT scan goes ok, we  had an emergency one sat night as he was in excruciating pain in his stomach, unfortunately showed liver tumors have grown and there is now cancer in his abdominal cavity along with fluid build up and a lung tumor, he is in hospital while they try and address his pain and we have been told he has only a few weeks now... we were told the new treatment should be effective for a couple of years but unfortunately the cancer must have mutated so it's done nothing,I am devestated, crying all the time etc, had to tell the girls, conversation u never want to have, especially with an 8 and 12 year old, my heart is breaking , don't know how to get thru this, Life is so unfair

How did you get on? We had an emergency ct scan on Wednesday and heard Friday that it's regrown and chemo starts again on Thursday. We find out more Wednesday. :-( 

Hi Firefly,

We got the results on Tuesday after 4 cycles of his second line chemo. Things are stable for now which is good news. Options after this treatment stops working are limited, perhaps even nothing as his cancer is so rare. Even though things are stable I’m worried about for how long? As between his first line and second line chemos to quote his oncologist there was “significant progression”  

How are you and your husband and family getting on? I know your husband is a similar age? Will is just 40 and it breaks my heart. What helps you to cope if you don’t mind me asking? 

Hiya, well stable is good news for now. Kev's tumours reduced with chemo but as soon as it stopped it came straight away. They may offer chemo to your husband again after a break (when it regrows) . They didn't tell us they would but they have offered it now.

My husband is 41 and hates not being able to work, lift, do normal stuff. I think that's the worse part for hi.. if he could have a normal life until the point when it's a few weeks away then he would be coping better but he can't and that's hard.

How do I cope, I keep very busy, I work 4 days as a teacher and we have dogs that need walking every day and demanding teenagers. I don't think about what will happen in the future. I research everything and give him loads of supplements etc so it feels like I'm doing something. I know it will hit be hard when the time comes though as I lost my dad at 10 and it will all come back x

Hiya, well stable is good news for now. Kev's tumours reduced with chemo but as soon as it stopped it came straight away. They may offer chemo to your husband again after a break (when it regrows) . They didn't tell us they would but they have offered it now.

My husband is 41 and hates not being able to work, lift, do normal stuff. I think that's the worse part for hi.. if he could have a normal life until the point when it's a few weeks away then he would be coping better but he can't and that's hard.

How do I cope, I keep very busy, I work 4 days as a teacher and we have dogs that need walking every day and demanding teenagers. I don't think about what will happen in the future. I research everything and give him loads of supplements etc so it feels like I'm doing something. I know it will hit be hard when the time comes though as I lost my dad at 10 and it will all come back x

Firefly how's Kevin  just read  your post my son in law just been been told today has stage 4 cancer of bowel  and liver   can't operate  but don't know what they are going to do chemo  I hope good luck to kevin

Sorry to hear about your son. I hope he fairs better than my husband. Unfortunately, Kev lost his battle April 2020, 10 months after being diagnosed :-(. 

Firefly  what supplements  did kev have 

I can't remember them all anymore but Turmeric was definitely one of them as well as Cbd oil 

Thanks  for your help hope you and children are OK 

Hi, i hope this post is okay. Two weeks go my dad got told he has stage 4 colon cancer. Since then he has had a PET scan. It's been 10 days now and still no news. Is this a normal time span to wait ? Or is my dad possibly not telling me.

Hi yes my son in law is 33 got told 2 weeks ago and stage 4 they are going to give him chemotherapy  on 18 Oct  he has the nurses coming out and I have been on the phone to GP so he is not missed  .