Aged 36 and stage 4 bowel cancer

Hi,

Writing this is hard as I can hear my 3 children playing so nicely. Just over two weeks ago I went to A&E with what I thought was a hernia or appendicitis. Little did I know that 12 hours later I’m being told I’ll be having  emergency surgery to remove a “mass” in my large bowel. What a difference a day makes. Now I have a stoma and bag fitted which I have become used to (if that was my only issue) as well as a 20cm abdominal wound that is healing (far to slowly for my liking). After seeing my oncologist on Friday I’ve been advised that the chemotherapy will be palliative care to lengthen my life (by how much they will not know until the first round of chemotherapy).

Now the support/advice I’m looking for is how me and my wife can break this news to my children who are aged 6,4 and 16 months. Then how to make however long I’ve left to make it memorable for them and me.

Lifeaquatic

Parents
  • Oh bless you! I feel for you as my husband is 40 and was diagnosed with terminal cancer back in April. We have a three year old and a 1 year old. How are you coping and how is treatment going? Sorry to jump in after your first post (not read any further as yet) but I hope you’re ok. Thinking of you and your family so please get in touch if you need to talk xx

  • Hi all,

    Sorry not caught up with this in a while. Husband's scan showed a second improvement in his tumours and the main secondary one in his liver shrunk to about 3cm. Unfortunately, since chemo stopped, he has deteriorated and we are waiting to find out if he has fluid on his lungs which means his ct scan will be brought forward to this week. So scared as I know it won't be good news. I feel lost for him, for the kids and myself.  I have no idea what else to do, we have literally tried diet, supplements etc. He had d and v last week and has lost all the weight we managed to get back on him. Anyone know how to get weight on quickly??

    Gem

  • Hi Gem,

    Sorry to hear about this. I know exactly how you feel. I hope the CT results come back better than expected and give you more hope? My husband had a CT on Sunday and we see his oncologist next week - absolutely dreading it. He has lost a significant amount of weight too and we are now trying protein shakes and bars for him to eat between meals and so far he has regained 2kg. The issue is chemo makes them feel so I’ll and unlike eating doesn’t it? The doctor also gave him some calorific fruit flavoured shakes on prescription but he hates the taste. 

    I have to get back to the kids now but will write again soon. Good luck and thinking of you x

  • Hi, hope CT scan goes ok, we  had an emergency one sat night as he was in excruciating pain in his stomach, unfortunately showed liver tumors have grown and there is now cancer in his abdominal cavity along with fluid build up and a lung tumor, he is in hospital while they try and address his pain and we have been told he has only a few weeks now... we were told the new treatment should be effective for a couple of years but unfortunately the cancer must have mutated so it's done nothing,I am devestated, crying all the time etc, had to tell the girls, conversation u never want to have, especially with an 8 and 12 year old, my heart is breaking , don't know how to get thru this, Life is so unfair

Reply
  • Hi, hope CT scan goes ok, we  had an emergency one sat night as he was in excruciating pain in his stomach, unfortunately showed liver tumors have grown and there is now cancer in his abdominal cavity along with fluid build up and a lung tumor, he is in hospital while they try and address his pain and we have been told he has only a few weeks now... we were told the new treatment should be effective for a couple of years but unfortunately the cancer must have mutated so it's done nothing,I am devestated, crying all the time etc, had to tell the girls, conversation u never want to have, especially with an 8 and 12 year old, my heart is breaking , don't know how to get thru this, Life is so unfair

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