My 22year old husband is under palliative care.

Hi There,

 

Ive just signed up here, In august 2018 my then boyfriend was diagnosed with treatable AML in his bone marrow. Hes had so much treatment and in March we were told there was nothing more they could do for him. I have been so strong throughout this, Ive completed a university degree and carried on working part time to ensure that I keep sain. However, my degree has finished, I hate my part time job and I'm still studying for some exams. We got married 4 weeks ago, It was the best day of my life. But currently, Im just in such a dark place, I keep running off to cry, keep snapping, im just very emotional and scared all the time. We live with his mum and dad and I adore them, but I feel like im getting in the way or aren't wanted sometimes. Im just so fed up of this rubbish that is being thrown at him all the time. I am trying to stay so strong for him but It is so difficult when you don't know the future. 

 

I don't know why im here on this forum, I think i just needed to rant or maybe get some stuff off my chest. 

Thankyou for listening. 

Parents
  • Hi hun,

    Congratulations on your marriage! I'm so sorry to read this- 22 is absolutely no age at all and you're absolutely within your rights to feel the way you do.

    My lovely mum was diagnosed with a stage 4 brain tumour in Feb this year and was told the prognosis was 18 months- despite her currently doing well, it still feels like there's a clock above all our heads.

    I'd be lying if I said I knew exactly what the right advice is, as I'm still figuring it all out too- but please, if you ever need a chat just let me know! I'm currently coming towards the end of my masters degree, I'm 23 so sounds like we're a similar age :) the best thing to do honestly is just take each day at a time and don't try and predict anything. As for his parents, I'm sure that you are wanted there, they're probably just feeling just as scared and cheated as you are. If you really hate your job, I can't stress enough then honestly look for something else. I had a full-time job at a law firm whilst I write my dissertation but I absolutely hated it, and as soon as I left I felt so much better. 

    As for snapping and being emotional- I'm exactly the same, this is all just part of coming to terms with the rubbish hand you and your family have been dealt.

    Don't be so hard on yourself, you're doing great xx

    Sending a huge hug <3 

Reply
  • Hi hun,

    Congratulations on your marriage! I'm so sorry to read this- 22 is absolutely no age at all and you're absolutely within your rights to feel the way you do.

    My lovely mum was diagnosed with a stage 4 brain tumour in Feb this year and was told the prognosis was 18 months- despite her currently doing well, it still feels like there's a clock above all our heads.

    I'd be lying if I said I knew exactly what the right advice is, as I'm still figuring it all out too- but please, if you ever need a chat just let me know! I'm currently coming towards the end of my masters degree, I'm 23 so sounds like we're a similar age :) the best thing to do honestly is just take each day at a time and don't try and predict anything. As for his parents, I'm sure that you are wanted there, they're probably just feeling just as scared and cheated as you are. If you really hate your job, I can't stress enough then honestly look for something else. I had a full-time job at a law firm whilst I write my dissertation but I absolutely hated it, and as soon as I left I felt so much better. 

    As for snapping and being emotional- I'm exactly the same, this is all just part of coming to terms with the rubbish hand you and your family have been dealt.

    Don't be so hard on yourself, you're doing great xx

    Sending a huge hug <3 

Children
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