stage 4 rhabdomyosarcoma at 14

hi, my name is eva and this is a summary of how my life turned upside down in less than a month.

it started with a minor stomachache, which grew to be unbearable, and then a lump, multiple trips to the A&E, a CT scan (hugely traumatic, a story for next time), and then finally 'we suspect cancer'. i got moved to a specialist hospital, where they performed a biopsy and bone marrow aspiration. they told me the official diagnosis just under a week after my 14th birthday. the cancer had spread to my neck and collarbone from my abdomen/pelvic area. chemo started and left me immensely tired, weak and fragile. the first 2-3 cycles were brutal and i dreaded them. fevers, blood transfusions, wearing masks everywhere became the norm. it got better after the 4th cycle, thank God. 

more than all the pain, suffering and wondering how long i'll live, it was missing out on trips with my friends, school, day outs with families that shattered my heart. i had everything planned out. i was great at school, discovering myself and my hobbies and it all just came to an abrupt stop. that's what i hated most about cancer. i knew life would never be the same. 

year 10 is starting in a month. i've picked my options, and i wanted a clean, fresh start and pour my soul into passing my GCSE's with flying colours. radiation therapy also starts in a month. 5 days a week, for God knows how long. side by side, chemo too. how the hell am i going to achieve my goals with this in the way? i cannot let cancer take this away from me. 

i find myself crying over the stupidest things, which is so unlike me because i'm usually made of stone and don't show my emotions ever. and no matter how hard i try, i just can't stop. cancer picked the worst time possible. i have plans. they're all ruined now.

what do i do? i'm losing myself.

  •  Hello evaaa

    Welcome to the Cancer Chat forum, although I'm sorry to hear about the rollercoaster that you've found yourself riding since your 14th birthday. It sounds like it's been really difficult for you at different times since you were given a cancer diagnosis, and I hope that you're feeling well supported by your family, friends and the health professionals involved in your care. 

    You're right when you say that life is never the same after a cancer diagnosis. I know that many of the other community members here will understand how that news can change us as individuals and often change the future that we hoped we would have. It's a big change that many adults struggle to process, so please don't feel that you're not allowed to feel angry, upset or to cry. These are all very normal emotions to experience, and it can be difficult at times to cope with all the things that cancer brings into our lives.  There's some helpful information, tips and advice about managing your emotions on our website, but I'd really encourage you evaaa to talk with your parents or a trusted adult about how you're feeling. Hopefully, you have a particular teacher or member of staff that you can also confide in at school who can help and support you with your studies and goals as you start these new courses. 

    Hopefully over the coming weeks, you'll find a new norm that balances your treatment with your aspirations to be able to study and work towards achieving your goals. Don't be too hard on yourself evaaa if there are days when you struggle. Try to take each day as it comes and lean on those around you for support. You can also ask at the hospital if there is additional support such as art therapy, that you can access to help you understand and process your thoughts and emotions. 

    Hopefully, you will be able to enjoy the last few weeks of the summer break but keep in touch and let us know how you get on with this new treatment. We're here for you. 

    Sending my best wishes, 
    Jenn
    Cancer Chat moderator