I’m looking to find others with this rare cancer and how to manage and go forward.
My son who is only 23 was diagnosed recently with this. He has had his first session of 6 days 24 hrs Chemotherapy and goes back into hospital for his second round next Saturday.
As parents we feel hopeless this cancer is rare and very little information on it.
We would be happy to look into trials and options which may help in his recovery.