She had been fighting since March for a diagnosis with the GP surgery ignoring her for week, saying she had anaemia due to heavy periods and this is why she was extremely fatigued. She had always had heavier than normal periods but never to this extent and non stop.
She was eventually referred to gynaecology, receiving scans and diagnostic tests (e.g. ultrasound in May). They discovered a 10cm fibroid and assured her not to be concerned that this wasn't cancerous.
Fast forward 2 hospital admissions in 10/10 pain with no further diagnosis, but two blood transfusions when her haemoglobin dropped from 75 to 60 in 2 days whilst in the hospital.....no morphine given just paracetamol and whilst doubled up in excruciating pain a doctor told her it wasn't an emergency. She was expecting a hysterectomy to help relieve the pain caused by what we assumed was the degenerating 10 cm fibroid.
Lump appears under chin (tries for 2 days to get a doctor's appointment and fails). She went to a&e on a Saturday and was told it was probably a malignant tumour in her lymph node.
Then hysteroscopy in which the gynecologist once again said nothing to be concerned about, even as she pointed out the lump in her lymph node, but then he also ordered an ultrasound where someone asked for a second opinion.
She was given an appointment for a CT scan 2 weeks after this, but 3 days after she coughed up blood and vomitted blood (31 st July). She had the CT scan that day and this was the day an atom bomb went off, we discovered she had 'masses' in her ovaries, lungs, peritoneum, head of pancreas and ureters.
The days that followed my dad, myself and my sister were allowed open visiting to the hospital. The doctors and specialist nurses put us at ease. At this point she was just a little weaker than her usual self but able to walk and etc. They adjusted her pain relief (morphine) and we were happy to wait the 10 days they quoted for a biopsy.
My mum ended up staying just under 2 weeks in that hospital, then had 10 days at home, it took 3 weeks for her biopsy results to come back (disgusting).
We were then told it wasn't ovarian as they expected, but a uterine sarcoma...so terrible news. But we had hope when they were immediately transferring my mum to a specialist cancer hospital, to receive chemo. The sarcoma oncologist and gynae oncologist were arguing on which chemo to give my mum. Then we were told cancer of unknown primary they said stage IV and grade 4 (so highly abnormal cells).
She had carboplatin 27th August, although by this stage her kidney function had started to decline, showing slight dehydration.
1st September we were told by the consultant gynaecology oncologist that things were improving and to stay positive. Two days later we saw the same consultant and then a palliative care consultant.
6th September we were allowed to bring our dogs in as she wasn't well enough to be moved to the hospice. But we did the best we could, playing music she loved to bring memories back and getting clips on YouTube to make her laugh and sharing funny memories. She was singing and dancing along to the music (waving her arms around).
My mum passed away peacefully at 53 8th September, she was fighting until the very end and we were in the room with her, myself my dad and sister. She was too young to go and there was so much more me and my sister had to achieve for her to see.
I'm a 28 year old graduate who had planned to study Therapeutic Radiography & Oncology this September, applying before any of this nightmare began. My sister is 24 and a self employed makeup artist, we both live at home and are single.
I am in a haze and as I was crying a lot in the evenings in those 5 weeks and 4 day, with anticipatory grief even though I had hope she'd get a year and we could get her out and about. I was barely sleeping and spending 12+hrs at the hospital and I lived in the hospital from the (5th) Sunday morning until (7th) Tuesday evening. My mum sat with me 2 days and slept in a chair when I had a head injury at school when I was 8, so I knew it was my duty to sit with her to look out for her as long as I could.
When I read through many of these posts on here people of my age seem to have a partner or husband to fall back on for support. I have nothing of that sort, my dad isn't coping well with his grief and is utterly heartbroken and just wants to be with my mum as soon as possible, whilst pushing me and my sister away and isolating himself. We are all very different people living under one roof and there's a lot of tension, my mum was the postive force that kept the family glued together and without her we are all truly lost.
I am feeling guilty for not constantly crying, as I assumed I would be. I don't know if I've fully accepted it and when I say this is the greatest loss I will experience, I truly mean it.