I just cant move on from my mum's death

My fantastic mum died in April of this year, I lived with her and cared for her for the last 5 years of her life, she had breast cancer and got the OK but later it spread to her bones. What I would say to ANYONE, no matter what your relationship is with your mum, to give up everything and go care for your mum in those last years (if you financially can). It was the most rewarding - although physically tiring - experience I have ever had in my life. We grew so much closer and I know that I could never have got those moments back again after she died, so I am SO GLAD she never went into a home or a hospital or a hospice and that she died at home, with me and my daughter by her side. Its what she wanted, this is what she told me she wanted, when she knew she was going to die. So I have no regrets.

The last weeks of her life were heartbreaking, and I will never forget her last 3 breaths as they haunt me so much and how helpless and frantic I felt that I couldn't bring her back to life, feeling her grow colder and just wanting to reverse everything. That was another feeling i was not expecting because a big part of me had already accepted that she was going to die and a big part of me wanted to see her out of pain, in the end I wanted her to die but I didn't want her to die, if that makes any sense.. 

The cancer team never informed me of what to expect at death or the dying process and so I was shocked by some of the things I experienced and it was very traumatic to say the least, I guess they were just there to relieve the pain and administer medication. So I was disappointed in them for the lack of information / preparation which would have been so helpful.

Christmas is just a few weeks away and Im going to take a fold up chair to the grave and have a drink just like we would always do on christmas day, Im going to be with her, to talk to her and let her know how much I miss her. Its going to be so hard, I cant imagine Christmas without mum.

I often get panic attacks just thinking about not being able to speak to her again, the most overwhelming and devastating feeling I have ever experienced, it really is totally unbearable. I guess she was my best friend and my soul mate in so many ways. We used to chat and laugh for hours. So much in common. She was the most wonderful mum anyone could hope to have and she was a very spiritual person too. As the months have gone on, I have got worse and worse and now I cry every day and sometimes for hours. All the things that were lacking in my own life have now become magnified a hundred times, just to add to the burden and pain.. I don't understand why that should happen but it has.

The truth is, I don't think I will ever get over her death, EVER. I can't seem to function properly without her around. She was such a big part of my life. She was so kind and loving and caring and thoughtful and generous. I cant say one bad word about her. I lost my dad and I lost my sister and that was bad, but this is another dimension of grief.

I don't know where to turn or what to say to people or what to do. I keep myself busy but nothing really works. Even being with friends I find so difficult now, I just want MY MUM. I love my mum so much she is a part of my soul. I know shes with me, so many things have happened to show me she is with me. I found a lovely card last week that she wrote me when she was ill to say how grateful she was for my help and how proud of me she was and that she would love me to the end of time. That card is my most treasured possession.

How do people cope over the years, losing their mum? How do they get through? I would be grateful to hear of other people's experiences of how they have got through it. ive read so many posts on here saying similar things, how they cant get over their mum's death. So I know I am not alone.

Jan

Parents
  • Dear Jan

    I lost my mum to lung cancer same month as you last year and one plus year I echo all you feel and say.

    As a guy (gay) I lived with my mum all her life even though I owned my own place less than 10 minutes away. She was my best friend and though I was  never that outgoing listening and enjoying my mothers active social life once retired never failed to make me laugh. Again like your plight I cant say palliative nor her GP gave much insight to how she would die nor totally conclusive of her condition .THey used words like probably/likely stage 4 cancer . Alas my mum had only recently not long been diagnosed with Dementia and that journey involved me giving up my job 5 years previous to get positive diagnosis and a tough battle getting GP to do their job. Mum was the sort of person who was very private and independent and I think she may of disclosed to her GP (years before ) when she had capacity that she did not want any ailments discussed with her children . I had no hesitation in giving up work to look after mum and so glad I was able to care for her at home. Against all my hope and prayers as Indictated by hospital her illness took her within 6 months which broke my heart. I m glad I was by her side and she died without pain and knowing I was there. One year on I still feel empty and that life has no meaning or purpose but I do take comfort that I have her ashes and often speak to her. It's really taken a toil on my MH and though on a waiting list for counselling feel it's very much a journey that we see our own way out of. And as an x social worker I am quite disgruntled with the care system and lack of communication, especially in my mothers care co ordination and management.  I cant imagine ever getting g over my mums death as she was the best confidant and person to be around and always was so positive on life . Like you I am so glad I took time out and even if I had all the contentment t and salary a job could of afforded I would not of changed my action in a heartbeat. My thoughts are with you and your post was very refreshing and akin to my thoughts/views xx

  • Hi snowpatrol123.

    It's a shame when you loose a close family member, be it mum dad brother or sister. always hard to get over such a loss to a horrable disease such as cancer. my wife died from aggressive cancer last July. from her diagnosis to her passing away, she lasted 6 weeks.

    The thing with a GP is patient doctor confidentiality.  I was worried about my wife many years ago. I said while on a routine visit to my GP for myself, I told him about my worries, But my GP said unless my wife comes to him and tells him, there was nothing he could do.

    Like you because of covid19 we brought her home for end of life care. my wife did not want to know how long she had left. so we all chatted about going on holiday and Christmas, knowing she was never going to see. I'm welling up now even as I type this. it's 11 months since she passed away.

    There is no body who can say they will pass away at such a date and time. So palliative nurses can only try second guess approx time.Like you Snowpatrol Because of covid19 we have not fore filled the wife's request  to have her ashes where her mum dad and her brother had there's scattered. I have my wife's ashes on a table and have  comfort that she is still with me.  I'm always talking to her, asking if she wants to watch her soaps, she like coronation street and eastenders. I'll be sad when all the family come together  for her scattering, I don't want to feel her wrath by keeping them. I'm in floods of tears here just thinking when she's finally gone. I'm going to be alone to deal with my own liver cancer. But I know in my heart of hearts she's looking down as is your mum, looking after you. good luck for the future to one and all.

Reply
  • Hi snowpatrol123.

    It's a shame when you loose a close family member, be it mum dad brother or sister. always hard to get over such a loss to a horrable disease such as cancer. my wife died from aggressive cancer last July. from her diagnosis to her passing away, she lasted 6 weeks.

    The thing with a GP is patient doctor confidentiality.  I was worried about my wife many years ago. I said while on a routine visit to my GP for myself, I told him about my worries, But my GP said unless my wife comes to him and tells him, there was nothing he could do.

    Like you because of covid19 we brought her home for end of life care. my wife did not want to know how long she had left. so we all chatted about going on holiday and Christmas, knowing she was never going to see. I'm welling up now even as I type this. it's 11 months since she passed away.

    There is no body who can say they will pass away at such a date and time. So palliative nurses can only try second guess approx time.Like you Snowpatrol Because of covid19 we have not fore filled the wife's request  to have her ashes where her mum dad and her brother had there's scattered. I have my wife's ashes on a table and have  comfort that she is still with me.  I'm always talking to her, asking if she wants to watch her soaps, she like coronation street and eastenders. I'll be sad when all the family come together  for her scattering, I don't want to feel her wrath by keeping them. I'm in floods of tears here just thinking when she's finally gone. I'm going to be alone to deal with my own liver cancer. But I know in my heart of hearts she's looking down as is your mum, looking after you. good luck for the future to one and all.

Children
  • Hi blobs,

    ive just read your reply on this post and wanted to message. 
     

    firstly I'm so sorry to hear of your wife's passing and your own liver cancer diagnosis. 

    the part you mention about not wanting to spread your wife's ashes as you take comfort in the fact that she is still with you really struck a cord with me and I just had to reply. 3 weeks ago today I lost my mum to gallbladder and liver cancer, just 3 weeks and 4 days after her diagnosis. My dad is in absolute bits and me and my sister are just being there for him as best we can whilst trying to grieve ourselves. My dad actually mentioned how he really wants to put my mums ashes on a table next to where he sits in the living room so they can watch the soaps together (Corrie and Emmerdale for them mind you) ... I find it really sweet that there are others out there who do the same and it brings comfort to them - I hope it brings comfort to my dad when we collect my mums ashes this week. 
     

    I know you are going to fulfil your wife's wish of having her ashes spread, is this something that needs to be done straight away? It really saddens me that you are going to feel so alone. I know that my mum wants hers spreading as does my dad so me and my sister have agreed to wait until that time eventually comes to spread them both together - that way we are still keeping and respecting my mums wish. Is something like this a potential option/solution for yourself? 
     

    how is your own liver cancer diagnosis going if you don't mind me asking?