I’m 25 and my amazing kind wonderful boyfriend has liver C.

My bf and I have been together three years and recently finished an amazing year of travelling in our van. We drove all the way to Thailand from the U.K. and I'm so lucky to have had someone to experience that with who loves me so much. We returned to the U.K. and after a few weeks (only days after moving into our first flat togeather) he has been diagnosed with cancer.

He has suffered from ulcerative colitis for 6 years and it has caused cancer of the colon, which has spread to his liver. 

The colon is due to be removed in a few days. If he recovers from the operation he will start chemo for the liver. 
 

The doctors gave us the impression that he may recover from the way they discussed his treatment plan, but I have since learned that liver cancer is almost certainly a death sentace. He is not aware of this and neither is his family. I am struggling to cope with this knowledge when they all have so much false hope and it is not my place to tell them. It is for the doctor to give them medical facts or if they choose for them to look into themselves as I did. I have told a few friends but it is not helping me feel much less alone.

 

The symptoms came out of nowhere very quickly, and the nurse I discussed my readings on liver cancer with confirmed to me that this likely means it is a very aggressive cancer. She also confirmed that chemo is only used on late stage liver cancer, which none of the medical professionals have told him or his family.

 

I have had a difficult life in terms of family, which has given me a caged nature and no people I really depend on. Until he came along I was fearcely independent and didn't get close to many people. When we met three years ago he changed that, and for the first and only time in my entire life I have someone I can depend on and it is wonderful.

 

This has given me the safety and comfort to open up to new things and ideas. We had started talking about family which is not something I ever thought I could want with someone.

 

In loosening him I am not only losing a boyfriend, but I am losing everything, because before him I had no stability in my life or dependable figures.

 

I am having regular panic attacks and breakdowns, and have considered suicidal thoughts frequently. Before him I lived a very cold and lonely life, though I didn't realise it as I was blinded by the self preservation left by my childhood trauma. Now I have experienced this wonderful life with him, I don't know if I can go back to that isolation with my sanity in tact.

 

I talk to new people easily, but I do not tend to trust people deeply or depend on them or feel valued, even after a significant amount of time. Atop this all my life plans, fresh from returning from our trip, are built on our relationship. I will not move back into the apartment we only got the chance to live in for a few days together. I do not feel strong enough to use the pan in which I cooked our meals. The beautiful camper van we built togeather I can not bear to sell nor sleep in myself. Everything I have is built on the foundation of our relationship, unlike many people who have family and lifestyles and homes which continue to exist after the tradgic death of a loved one, I feel like as the foundation of his existence crumbles, there is not a thing in the world for me to hold onto to keep myself and my sanity in tact.

  • Hi i can relate to a lot your saying about how you are and i can tell you liver cancer is not always a death sentence my elder brothers had it and he is still here and just turned 80 he had part of his liver removed . Your liver is the only organ that can repair itself its more if it spreads .my partner passed she had liver cancer and lung cancer but it was the lung cancer that took her actualy she had first course of chemo massive stroke 4 days later .contracted sepisis and gone in to days but it was the lungs mainly .  So dont give up hope just yet . The most importnt thing is excersise and drinking plenty of fluids and good diet sounds silly dosnt it just that but i cant stress how important it is and have a read up on symtoms of neutrapenic sepsis.the next thing is if you were thinking of marrige do it now as there has been quite a few caught out by this not just for the ownership of things but being in the control of your partners care as if anything does happen god forbid .unless its in your name you own nothing sorry ive brought this up as you must be in shock my partners daughter took

    her grief out on me because she hardly came to hospital said she didnt like hospitals as her dad died in one thoe she new her mum and i were total soul mates and i looked after her .she  wouldnt let me go to spread the ashs and i had no say whatsoever as i wasnt classed as next of kin i told her to grow a backbone she was 44 we had a big but up  so keep your chin up and look after yourself you have to be strong for him what i did when it got to much ime a strong guy i used to pop out and ring the samartans that quick chat now and again stopped me folding as i was lizs rock how would she feel if i crumbled think pos ive crohns so ime aware of these autoimmune diseses ive just had part of my bowle removed and bladder repaire ive had sepsis twice i thought my number was up but ime still here so think pos i wish i had known about this site at the time i wouldnt have felt so alone so keep talking there will be otheres come along but there seems to be a bit of a shortage of the regulars at the moment thats why you have seen me answere quite a few latly .paul

  • Thanks for replying Paul.

     

    unfortuantely in this case it seems we caught the cancer quite late because we didn't notice as we thought the symptoms were all part of his colitus. Sorry to hear you have chrons x

     

    the cancer in the liver is already too advanced to operate which is why he will hopefully have chemo. Atm they have said he will have chemo but I know if it spreads further from the liver they will tell us chemo will not work. 
     

    im so sorry to hear cancer has touched so many in your life. I imagine you can relate to the way I feel.

     

    its difficult because I'm so young, and we had our whole lives planned togeather.

     

    his parents will be his next of kin and I have a very good relationship with them. They have been visiting daily and are very great fun that I have not left the hospital at all and am staying overnights. (While we wait for his surgery).

     

    after he has his colon removed he will have to eat a low residue diet (with bread ect) and I am concerned about finding a balance between things he can now digest and good nutrition. I'm hoping a nutritionist can help us with this.

     

    i am looking for a therapy dog for both him and me. If I can find one that would give me something else to live for, as my whole life is built on my relationship with him and when he's gone I must start from scratch. Even down to where I live ect. The therapy dog would be a good start. 
     

    thanks for sharing your story x

  • O dear so sorry but dont give up yet its a funny disease is cancer it can take you in days or you can live for years . You look after yourself make sure you eat properly everyone looks after our loved ones but know one thinks about the main carrer i didnt realise how it had pulled me down in fact it made me ill is it whent on for some years not just with cancer liz had  complex health problems .i do hope your partners preatment helps . They must have some hope or they wouldn't be doing such a major op . Keep talking thoe dont bottle it up we are here not just me there are many on here that that are going through what you are .p ps ps just read up about sepsis thoe its realy important to know what to look for as cancer patiants are very very prone to it .

  • Hello Hannah,

                           l can understand the distress you are having to face,having been in a similar position, its utterly beyond anything l have ever faced before including a previous life threatening traffic accident.In the beginning l stumbled through a bleak ,bereft , barren wasteland of a mind and future,and these words do not begin to do it justice. Words are just spoken sentiment, but do not give up on individuals and their bodies to achieve incredible things. l don't profess to have the answers as to why this is, and will never understand why some can and others cannot, neither do l wish to use flowery prosaic words of false encouragement.l just want to say that some individuals can make the seemingly impossible happen,and it seems like your boyfriend is a very special individual with a very large incentive in his life to make this happen.

                 In my case cancer spread from bowel to liver and l had 60%  of it removed,and l was not in denial of my chances.Six years on l am living a very very good life

                                          l understand it is advanced spread that comes attached with a low odds,not no odds and your obvious clear and level headed appraisal and planning stands you in good stead in dealing for whatever your futures hold.My sincere hope is that whatever the outcome, the joy and pleasure you share together never ever leaves you,

                                                                                       David