Mam ♥︎♥︎♥︎

My mother passed away on August the 30th 2019. Me and my family feel so let down by the hospital , I followed the rules of the chemo card that we were given on the signs of what chemo can do , on the day before my mother passed away I phoned the cancer Ward saying she was breathless,diahrea and the feeling of a cold on her chest and they told us to go down to our local GP , I took her and they pulled her off the blood pressure tablets cause my mother blood pressure was very low, during her visit to the GP she was very breathless. Next morning at 9:30am my mother passed away at home with me and my father there, as the cancer Ward asked her to come in straight away that morning but it was to late she died from a blood clot to the lung , why didn't I overrule the cancer Ward and GP , I knew she wasn't her self and it was her last chemo before a break . The chemo was working as there was no cancer on the lung the postmortem said so it was controlling it. People need to be aware of what chemotherapy can do and nurses need to talk to the carer of the patient if patient is unwell enough to talk . My mother should still be here , I'm so lost without her xxx. My mother won't be put down as a cancer patient death it will be as a blood clot, how many people have died because of chemotherapy unknown I suppose , cancer kills more than the government say. Chemotherapy side effects should be pumped into carers and family more to see the signs of when there is something wrong , patients and family know better than nurses and doctors when there is something wrong , better safe than sorry , to late for my mother ️ ️ ️

  • Hi Paulus.

    I just wondered how your Saturday's going? I'm staying in today. (Bloody cold). Plus the Lord Mayor's Show's on. The crowds are unbelieveable. Roads & tube stations are closed. Crazy time. I live slap bang in the middle of it. (I live off Drury Lane. No. I haven't  seen the muffin man). I've got a housing trust flat. I'm so grateful. I waited 6yrs for my flat. (i've lived here 16yrs!! It's a cosy 1bed flat. Just right for me & Ian!! I couldn't have a bigger flat. The cleaning would wear me out!! 
    Hopefully going out later. I love a proper old pub. Not a poncey bar or gastro pub. There's nothing like talking to the regulars. I get so sad when i read another pub's closed. We've got to keep them going!! I saw a really good documentary called THE RED LION on utube. About the types of people that go to pubs regularly. I went to Belfast with mum years ago. Very lively place. But i was only 11/12. Too young to join in the grown up stuff. My Irish family asked me over for Christmas. But i've turned them down. Will be too emotional. Mum didn't have a strong northern Irish accent. But knowing it's her family would make me worse. Plus there's a big group of them. I often get shy in big crowds. Eventhough they're my family. I know i'd feel overwhelmed. Going to have a lovely hot bowl of soup & bread. Soup's the best when you're not feeling 'normal'. Good luck with all your medical stuff. I know it's a pain. But we're all lucky to be living in a western society. Not stuck in the middle of nowhere. Relying on witch drs!!! 

  • Hi your right we are lucky i was having a chat with mri secretary my treatments would have been thousands.but she was saying about health tourists coming here for treatment and never paid a penny into the system . Ill be honest ive 3 adults kids and 7 grandkids i just like peace i have a mate ive known for 60 years ime 65 and genraly have exmas dinner with him i cook most of it and take it round as he cant boil an egg then come home and chill ime not like harry enfilds the old gits lol ive a motorbike boat etc so still young in a way some are old at 30 i still feel thirty ha ba althoe i look a bit craggy distigushed looking many say i think thats a polite way of saying ime old ha but i take it as compilment anyway .hey sounds like your in the midst of a fun spot and your a spring chicken realy you do right going out  chatting to locals is how we make friends  we have thousands of friends out there we just havnt met them yet . Myself i joined a social group and theres more ladies than men and i get hints .but i dont want another relationship its just to painful when you loose them . Peter my friend said get a dog i said you get one and ill walk it for you costs a fortun to have a dog and look after it properly .i think you in the right spot there with ian makes me smile now if anyone is called ian i think of your hamster lol maybe in a few years you may feel up to going over and seeing your irish side of the family you may realy enjoy it .paul

  • You sound lively. Like you've said. Some people are miserable old sods, even when they're young. What's that saying? Youth is wasted on the young. It's always nice when someone finds you attractive! I can understand you're not into finding anyone. When you've been as close to someone as you have. You would always be comparing other women to your lovely wife. But it's good knowing you could have a choice. 
    Dogs are great companions. But bloody expensive. You never feel alone with a dog. Inside or out walking. Mum & i went to a lovely old Hotel in Norfolk. There were more dogs than people staying in the hotel. 1 of the owners asked her what sort of dog she'd come with. She said. 'My daughter!!' I love dogs. But sometimes. The owners get on my nerves. 
    Tonight's come dancing night. It will be interesting to see if your tv starts flicking...

  • Now thats funny your mum saying that ime out tonight to see carol king with em all . Liz will think of something to let me know shes popped in she told me she will always be with me thats why i dont feel lonely .we used to go to northen soul does and the cruises over to holland they were great young and old just for the music we met later in life you see so liz hit the ground running in a way she had never done things like this but she always said i made her feel safe when out out etc as ime a big bloke . So like you say it wouldnt be fair on any lady i became friends with and to be honest just to have someone to go out with to pictures etc thats not me i want the lot lol so liz is still around so i dont need anyone realy hard to explain guess ive been lucky in a sense but dosnt feel that way

  • Hey Paulus.

    I wondered what you'd  be doing on this chilly Saturday night? 
    I'm having an awful time with mu arthritis. I went to mum's house on Thursday. My brother lives in the States. We're trying to sell it. It was my family home my whole life. So i find it extremely emotional when i go there. I woke up with very sore feet that day. (I'm used to having different types of pain, as i've had this medical crap since i was 21). I thought it could be the weather. Arthritis hates the cold, damp weather. Shame the NHS doesn't fly us off to a hot climate for free!! Anyway. I had a 40 min tube ride. By the time i got off. I was limping. I've had major flare ups. Like i've said. I've been having longterm treatment the last 15yrs. But the infusion i'm having stopped working. So they're switching me to a new drug. Thursday i was sore & exhausted when i got back. Slept for 3 hrs when i got back. The next day i was in absolute agony. My feet are locking. All the fluid in them. I can't bend them & they're so swollen. Like pigs trotters. I'm so bloody grateful i have a small flat. No stairs. Even in my flat, i've been using a stool as a zimmer frame. It's so hard to describe pain. But last night i couldn't sleep. Like someone pounding my feet with a brick. I was so desperate, as they were throbbing, aching, burning. I rang my gp for a phone consultation. She sent a electronic pres to my local chemist. Naproxen (anti inflammatory & zantac to protect the stomach). That's great. But i couldn't walk there. Only a 10min walk when you're normal. But i'm in total agony. My boyfriend collected them. I was so grateful. Like a junky waiting for their fix!! I'm lucky my tablet has been keeping me sane. Loads of comedys & pots of trifle!! I have to treat myself. I managed to do the washing up & felt fantastic that i could stand. Going to have a take away later. (Thank God for just eat!!) I'm on the strong anti inflammatories & painkillers. I was desperate enough to go to hospital yesterday. But i know they would have kept me in & done tests. I couldn't face it. I just know i'll be like this for weeks. So frustrating. But i'm so glad for technology my tablet & my phone. I nearly fell over a couple of times. I live alone so i would have been in trouble. I would have starved. I love my food! Anyway. Hope your Liz says hi to you with her come dancing trick!!

  • Hi your certainly going thtough the mill arthritis is a autoimun disease and stress realy flares it up it will work out your mums house will sell .then the stress will not be so bad for you .i have crohns and thats autoimune to ive had thoes biological infusions to stop our livers making to much antibodies that attack us by mistake ive had rebound pain in my sacroiliac joints and syatica its like toothache and the joints got imflamed and bang that was it crutchs for a week then stick hobbling around going to work i had to morgage to pay kids a wife to look after i was married for thirty years then my wife thaight she would have a better life fortunatly not with some one else and i was realy broke up plus i had just finnished the morgage now ime glad .was in the wilderness for 1o years then i met my liz and it changed . Well i started taking turmeric suplement then after a month or two i notice the pain had gone but it slow to work so you dont notice it working they sell it at holland and barret and there putting it in that seven seas supplement now it does work .ive had thoes naproxen you dont see them much now they made me sleepy like you ive had em all but they never just hit the spot .but my goodness the turmeric has .have a look at turmeric for arthritis i think there starting to stop poop.pooing stuff like that now . Ive just got back from tescoes had a silent weep as i walked past the cake ile and a blub at the checkout lol . They are still doing tests on me still ive been to hospital that much lately they should give me my own parking space ha ha ime sure they just like talking to me but ime not complaing much i beleive its every uk citizens right to have a wing about the wether and the nhs a love hate relationship dont you think imagine if we were in us we would be destitute with the med bills .a nice hot water bottle or a warm rice bag on you joints might help it certainly feels like it anyway.i think smart phones and tablets are the eighth wonder of the world they say a phone now has more computing power than the Apollo 11 moon craft . Well suppose you will be watching strickly so just take it easy in a few months when house has sold you will think why was i so worried its amazing how we worry about so many things that never happen .paul

  • Hi again!

    I'm actually not into Strictly. (Am i a freak?) i can't stand the way the men mince about in their sequence. (Sorry). Mum & i used to love x factor when it first came out. When they were auditioned properly in front of the judges with no music. Just their voices. Now it's like a conveyer belt & none of them are amatures. They've all been to stage school for years. Not real anymore. I was actually watching uktv play on my tablet in bed. The pilot ep of London's Burning. So dated now. Especially the uniform!

    Thanks for the turmeric tip. I will look into it. The pain is so awful. Constant. I have a feel i'll need to call an ambulance tomorrow. I can't carry on like this. I've been in bed since Thurs night. Hardly seen my lovely little Ian. He'll think i'm sulking with him! My boyfriend's coming over soon. Might get a take away. Thank God for just eat! By the way. I love a roast. Shame there's not a dial a roast!!

  • Yes dont hesitate to ring ambulance there no reason to be in that type of pain ime not a dr or anything but ive had kids etc etc so ive been throught the university of life and like yourself we have both had probs and liz had a very complicated medical history so i had to study it all my eldest brothers a retired authopedic urgeon the other two one was a r&d chemist they other a head teacher so there was a few good brain cells left just a few of them gave me mild dyslexia but i wouldnt be without it daft as it sounds theres stronger pain killers than naproxin no reason why they cant give you some .they stopped giving tramadol to me then gave me some morphine thats a contradiction in terms dont take no for an answer you should be referred to the pain clinic realy you might aak about that but ime not a medical trained person so i cant realy give advice its it what ive done for liz and myself so maybe get on to gp about it you shouldnt have to suffer .let me know how you get on hope your partners giving you suppor a takaway sounds nice a nice Chinese curry sounds beaven ime tempted to have one myself if i can be botherd to go there only in next street but ive got me lazy head on lol catch you later .paul

  • Hi Paulus. I’ve had an awful time. The worst arthritic flare up for years. Like i said. I was in such agony with my right ear & both feet. Finally couldn’t take anymore. Rang my gp. He said call for an ambulance. This is getting serious. Rang 999. They wouldn’t send me one. I nearly had a row with the guy. He was quite rude to me. Of course i know it’s not a cab service. But i couldn’t walk. Couldn’t get my shoes on. They told me to ring 111. He said if they think it’s serious. They’ll ring one. I did that. Was told told it could take up to 2 hrs! Put the phone down. It came 10mins later. I thought they would have had a wheelchair. No. But at least my lift was working. Got there. Told i needed to go on steroids, more antibiotics & steroid ear drops for my ear. So i’m on so many meds. Anyway was out in about 3/4hrs. They did my bloods. My ESR which measures how much inflammation is in your body. About 2 weeks ago, it went up to 13. The other day. It was 50!! No wonder i’ve been in so much pain & feeling so ill. Anyway. I was given a box of steroid (20mg) for a week. Then taper down by 5mg weekly. On Mon night, they didn’t have enough for me to take home. So they gave me 6 tabs of 20mg. I was knackered & in agony the next day, (Tues). I wasn’t concentrating. The regime is i’m meant yo take 20mg all in 1 go. Not spaced out. So i took what i thought was 20mg of 5mg tablets. (4 in a row). I was a wally & took 4 20mg tablets!!!!! (80mg!!) The minute i swallowed the last 1 i panicked. I rang 111 again. They said there were no drs to talk to. But it was safe to wait. Could take an hr! I was so nervous. So i rang my rheumatology nurse. She said call 999. Could be considered an overdose! Rang 999. They said again. Could take 2hrs. Anyway. Nearly an hr later, an ambulance arrived. Got to a&e. Did some blood tests. I was wheeled to different departments. In the end. They said i should just feel crap for the next 24hrs. (I could have told them that!) but not life threatening. The thing is. I was wheeled in there at 11.30am & didn’t get out until 6pm!!!!!! I was exhausted. A guy helped me into a cab & the driver helped me out. Also. On the 2nd day my lift was buggered. So i had to walk up & down the stairs with my stick. I live on the 4th floor! So i had the most awful days Mon & Tues. (The lift’s working now. Sod’s law). But i’m in bed watching as many funny things as i can find & catching up with my soaps. I will always say it. TECHNOLOGY’S GREAT!
  • O .dear was it predisalone .i know londons supposed to be a hip place but our nhs seems much better .althoe funnily enough my steam paper strip lid blew off and scalded me on my arm right side off uper chest and ear badly blisterd got to go to burns unit tommory so bit miffed myself but it will get better ime sure the grim reapers trying to get me well ime giving my funeral a miss ha ha so sounds like a bunch of a.holes you need your gp go refer you to pain clinic if there is one i suppose big city they will be busy . When you ring ambulance lay it on a bit saviour pain is serious i know the press are nocking labour but this bunch have done nothing for anyone try that turmeric its brill anythings worth a try .some people think it will not work as its its not a medical drug but its been been used by millions for thounsands of years so thats proof enough for me and it works for me . Ive had predisalone did nothing for my crohnes just made me put on weight but taper off slow i was on it for months i had to realy tapper off slow as i felt terrible .you dont need to suffer theres better painkillers out there than paracetamol and cocodamol naproxen ibruphen they are no dam good for seviour pain keep your chin up .paul