Was my mum in pain? Did she just give up?

My mum died earlier this year from breast cancer, she was diagnosed 18 months ago and we knew it was terminal for 3 weeks before she died. I was with her at the end, she choose to stay at home (I moved back in). She was out of bed and downstairs the day before she died, with the help of a stair lift and wheelchair (her choice to get out of bed) The day she died she had a few sips of tea, a bite of a strawberry and was awake off and on throughout the day (not out of bed, but awake enough to say when she wanted more pain relief and answer me when I spoke to her) I just wanted to know of other people's experiences at the end. I know there's not really much point. I can't change anything. But my mum was awake in the day, was still taking her pain relief orally, she was on low flow oxygen 1.5. Is this normal at the end? The nurses had brought syringe drivers, diamorphine and whatever else to the house ready. I was in her bedroom the whole night, she had some more oramorph, went back off to sleep. She moved around a bit later on, I asked her if she wanted more oramorph she didnt answer and then she was gone. I'm just curious as to whether this is common? Still taking pain killers orally, still lucid, still moving herself to get comfy? And then gone. The paramedics when they came were so surprised nothing like that had been used. I am grateful that it didnt get to that stage, but just wondering is it normal and would she have been in pain and not been able to say? Although she had spoken to me 3 hours earlier to say she wanted more oramorph? Just a little confused.

  • Hi sorry your going through this and i know the dreaded guilt that comes with grief it seems a natural progression through grief i can tell you will never figure out what happend cancers so unpredictable it sounds like you did everything you could and more i was much the same the nurses asked if i had been a retired nurse but the outcomes the same if drs oncologists cant save our loved one or tbere own come to that what chance have we got all we can do is our best and thats what you did might try b.councilling it may help hospices do it youcan ask an expert all these questions and get some answers next time you start with these tell yourself the good things you  did it realys helps its its training your brain best wish to you and your family its hard but we get through .paul

  • They were just about to put the syringe driver in when my mum passed. I think she knew and chose to leave us. I had been talking to her hours before too .As long as she wasn’t in pain i have comfort. It’s so hard xxx

  • My mum passed on 11th Sept. She was out with us at a restaurant 2 nights before. She was terminal Ovarian for 2.5 years and the day she died my dad couldnt wake her, he called an ambulance and she arrested in there.  She had low blood sugar which was unusual and her BP very low. This was usual. The doc said that there must have been a catastrophic event which we couldnt have prevented, or multiple organ failure. She too had been on oromorph, gabapentin and a cocktail of other drugs.  I have double guessed myself every day for the last 3 weeks and I doubt I’ll stop.  The doc did say she would have known nothing about it and would have been painless.  I’m sure it was the same for your mum xx