LOSS OF ADULT CHILD 22, 5 YEARS OF Ewing sarcoma

5YRS ago my son got told he had Ewing sarcoma, he had 3 ribs takon out, but it came back in his lungs, on 17 June 2019, 1030hrs he took his last breath in my arms, the last 3 weeks was the worst, but the last 3 days were even worser, it was not the pain, it was the groth in his cheast, he could not move proberly, breath, no sleep, it was a waiting game, due to family problums, his mum, he has banned her from knowing where he is, how he died, I have it in writing, this has upset a lot of people, family, my parents are no longer talking to me, as they think it is wrong, me, yes and no, but I will not go against my Sons wishes, his mum has tried to find out where he is and timings, even had people knocking on me door, asking, but NO, they got told were to go, my Son did not have a good child hood, dur to the parents seperating, but I did the best for our Son, he got to see both parents, 50/50, the mum hated it,  just as he got to the age of 16/17, thats when it hit, this coused more problum, but 2yrs ago, his mum kicked him out, as he was living there full time medicle reason, he then lived with me, then moved in with girlfrend, my son done well, as when we got to UCLH, THEre was 5 other teenagers there, all same simptums, my son was the last to go out off that group, he done well, now, 2 weeks in, I am at a lost, picking ashies up soon, he did not wont a big do, just a little one, no mum, just close freinds and family, most off my family are banned, I have to go though all his stuff soon, that is going to make me cry, Ewing sarcoma is not a nice cancer, it is not a common one, no reserch, or much, just a case of, lets try this, they gave him all that they had, slowed it down for a bit, but run out of drugs, now I am at a loss, no son, 

  • Hi crazy crabb its bad enough going through that terrible thing and family problems realy cause trouble .i had it with my partners daughter she was pretty awfull i suppose she was using me as her punchbag for her counciouce and grief to the point i told her i didnt want to see her she responded by stopping me going to spread her ashs petty or what eh punnishing her mums memorie just to get at me didnt work i feel my partner around from time to time my counciler even aggreed . The way i read this is your son must have been realy angry at his mum at this time.personaly if it was me i would tell her where her sons buried i couldnd be that cruel and it will probably stop all the anger continuing so sorry about your loss .p.

  • thanks for reply, not easy trying to find things you post, took me 10mins, :0, any way, I wish it was as simple as that, Jack has stated what he does not wont him mum any were near him, I know it is hard, but, does one go against his last wishes, as his Dad, I can not, I have now got my Sons ashes, got drunk last night, with brother, feel ill now, my son did try and work things out a month ago, we went round there to talk, but she would not listen, so at the end of the day, she has lost out, I know this sounds hard, harse, but my Son comes first, 

  • Yes difficult situation when so much anger it sucks people try to put there guilt onto you she probably is racked with guilt and trying to use you to take it away perhaps in the future we do things in anger then wish we hadnt but unfortunatly it backfires your lad wouldnt wouldnt hate his mum just angry at the time maybe as time wore on it would dwindle but wish you well i know liizs daughters just made it worse for herself if you tried what more can you do regards