Losing a young adult son to cancer

My wonderful son Edward died aged 23 from a ridiculously rare cancer that was non life style and not genetic.

He was diagnosed in February 2014 and died November 2015.

There seems to be so much support for so many people with cancer but I feel so alone being the mum of a young adult son that I've lost. I understand that it is a small area but with all the terrible things we went through to even be able to talk online with a mother who had no choice but to put her dying son into a hospice full of old people would help me to feel less alone.

  • My son was also diagnosed with a rare cancer DSRCT. It is non genetic and non lifestyle.  He is 26 as of yesterday. In July he was given 2-4 months.  I see him fading away from me and I too feel lost and alone. My heart aches for you and myself.

  • I am so very sorry and sad to read your post.

    No one can truly know what you are going through other than someone going through or has gone through exactly the same thing.

    I send you kindness and an absolute understanding of how you feel physically and emotionally.

     

     

     

  • Thank you. If you ever need to reach out please do.

  • Thank you so much.

    I am here for you too.

    Please contact me at any time if you need to chat.I shall do everything I can to help.

    Karen

  • I lost my son 6 weeks ago with a rare form of cancer MDS Myloid Dysplasia Syndrome, most people have never heard of it, a blood disorder, he was fit and healthy and looked after himself. He was diagnosed in April and died in September, spent the whole time in hospital, I went through it with him every day. He was In a hospice for the last 3 weeks, I go over those months and weeks and everything he went through, the image of him dying in my arms will never leave me. 

    i don't think people have any idea how it feels unless it happens to you.

     

     

  • I am so very sorry and sad to read your post but yes I totally understand how you feel physically and emotionally.

    I lost my parents a while ago and was so sad and upset but how I felt losing them bears no ressemblance to the loss of my son,Edward.

    Edward died on 28th November 2015 so three years next week.He had to be cared for in a hospice for the last few weeks as it would not have been possible at home.This was heartbreaking for us all especially him.

    My head is like a show reel reliving, like you, the days,weeks and months culminating in seeing your child no longer alive.The loss,the shock, the grief and the utter unfairness of it all is like a tsunami of emotions that never leave you.Counselling,wonderful friends and the passing of time has helped me but the giant black hole left by losing my son remains just as big.

    My heart goes out to you.

    I am here should you wish to contact me again at any time.

    Karen

     

     

  • I lost my son to cancer 4 weeks ago .the pain is unbarable I can't believe he has gone nursed him for the last year life seems so empty without him now 

  • Hi there, I'm so very sorry to hear about the death of your son, 4 weeks is no time at all and you will still be in shock. I am now 14 months down this road and and I'm still coming to terms with the loss of Peter.

    I hope you have some support around you, there are no words really that describe the effect this will have on your life, there is no greater loss than that of a son or daughter. Thinking of you, take things easy, a day at a time. Take care, Vera X 

  • Thank you for your reply helps to know someone else is going through this I do not know if you felt as if you were the only one going through this at any time .

  • Sorry for your loss 6 weeks it is so early Iost my son 4 weeks ago nobody knows how it feels unless it happen to you.I feel son lost now my son was I'll with cancer for a year nursed him in that time in and out of hospital andxfinaly hospice feel a massive gap in my life now and completely lost