*update - my mum passed away* drugs making my mum worse

Sadly on the 5th my mum passed away. Im shocked at how fast it happened i wasnt expecting it to be so soon. She died in her sleep. Does ovarian spread really quickly? and how does cancer take your life during your sleep? there's so many questions i keep asking myself. Apparently when my dad went over to her, her oxygyen tube thingy was out of her nasal, so im worried she might of taken it out herself for some reason or could of it perhaps fell off itself somehow?

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my mum was diagnosed with ovarian cancer 3 months. however my mum was diagnosed years ago with pulmonary fibrosis so shes always on oxygen and had TB in the spine 20 years ago which left permanant pain. 

She got taken in to A&E 3 months ago due to not being able to pass urine and discomfort.  they thought it was maybe just fluid retention and tried to take fluid out but didnt work. After loads of tests they finally told us my mum has ovarian cancer and its spread around the bowels too.

When she first got diagnosed she was absolutely fine, could laugh talk eat walk around and just genuinly looked happy and well. After her first chemotherapy she was still fine. Although they stopped giving chemo after 2 weeks because it made her breathing worse and wasnt healthy enough to carry on. 

Then they started giving her these strong painkillers, syringe driver that i believe had morphine. That messed up my mum so bad she wasnt herself. We got her off it then they started giving injections inside (oxycodone) along with the fentantyl patches. thats what my mum wanted. That was even worse. she wasnt being responsive, not being herself, it was so scary to see my mum like that. she got taken in to hospital and they thought she was going in to coma and didnt have long to live. turnt out that was wrong because my mum is still here. how could they make a judgement like that without being sure? i was preparing myself for the worse, left work and ran to the hospital like a maniac.

Now my mums on oxynorm oral liquid along with the fentantyl patches because my mum was fed up of nurses coming round 3x a day putting needles inside her, left lumps in her arms. I really believe these morphine based drugs are making my mum worse and worse because before my mum took any of these drugs she was competely fine. now shes just in more pain and looks worse, cant keep her food down. what am i supposed to do? she has to eat. the nurses keep saying its the cancer thats making her worse not the drugs but im finding it hard to trust or believe anyone, especially after all the false information we've been givien previously. Im finding it hard to believe she even has ovarian cancer. They didnt show us no evidence. Should i trust these drugs? Is it the cancer? just need peoples opinions please. ive never posted on a forum before. i figured this might help.

  • Hi Sabrina and welcome to Cancer Chat.

    I'm really sorry to hear about your mum's diagnosis and the tough time she has had over the last three months. I'm sure other members who have been in a similar situation themselves or with a loved one will reply soon to offer their thoughts and advice but in the meantime I just wanted to let you know that I have made our cancer nurses aware of your post and they will reply to you in the next few days. If you would like to speak to them sooner you can call them on 0808 800 4040 (which is free to call from a UK landline) Monday - Friday between 9a.m-5p.m.

    Best wishes to you both, 

    Steph, Cancer Chat Moderator

  • Hello Sabrinax and thank you for your post.

    I am very sorry to hear about your mum’s situation. I wish I could give you a reply that offered you some hope that your mum could remain well and live with advanced ovarian cancer but I cannot. Unfortunately without active treatment such as chemotherapy ovarian cancer will progress. In this situation women often become more unwell and this can happen in a fairly short period of time, and for those who are close to a person it can be scary. I can understand that this is not the reply you were hoping for.

    It is often hard for the families of people with advanced cancer to know what exactly is happening and to want to know how things are going to go. In some cases it can seem that healthcare professionals are not helping as the treatment they recommend such as drugs are making the person worse. Also they can get the time a person has left to live (prognosis) wrong. This can lead families to distrust and worried that the person they care about is not being looked after properly. It is hard to believe in this era when there has been so many advances in medicine that it can take some time to control the symptoms that people with advanced cancer have. It is also still not possible for doctors to predict how long someone will live for. It may help to explain this a bit further.

    Symptom control such as pain particularly in someone who has several different sources of pain can take longer to control. There are different types of pain and different types of painkillers. It is often a question of trying different combinations to find the best control over time. However cancer does not stay the same and as it progresses it can spread anywhere and cause new symptoms or make existing symptoms worse. Sometimes healthcare professionals will be unsure if a person is going to be able to survive if they have an episode where they get worse. In some cases this may be related to the side effects of necessary treatment. If there is a possibility of death doctors will usually advise families so they can have time to be with their family member. In many cases a person makes a recovery, and this can happen several times when someone has advanced cancer.

    When someone you care about is diagnosed with cancer it’s natural to experience many different emotions. Living with uncertainty about what the future might hold for your mum can understandably lead to feelings of upset and anxiety. I am not sure if you have discussed how you are feeling with the health care team caring for your mum. I wondered if your mum has the support of a community palliative care/ Macmillan nurse. They are very good at giving advice on the management of cancer symptoms as well as providing emotional support to the whole family. People vary in the care that they need and the Macmillan nurse can also help to co-ordinate medical and nursing help  as well as other resources if needed. The GP or specialist can make the referral to the Macmillan nurse if your mum would like access to this service.

    Macmillan Cancer Support has information on their website about supporting someone else with cancer that you may find helpful.

    I hope that this information is useful and that your mum and the family get the help and support that you need.

    With kind regards,

    Mary