Glioblastoma

5 months from the beginning to the end, the speed this thing progressed was disgusting.

1st seizure age 55 was the first symptom in November- went to hospital scan showed nothing 

2 more seizures in December 

1 big seizure in January 

Mri in feb showed a 5cm tumour 

end of feb given 2 months to live without treatment up to a few months more with surgery and chemo radio but said best case scenario 

Decided no treatment totally healthy diet and cannabis oil wouldn't even take steroids or anti seizure meds. 

seizure 2nd March - after this very confused , couldn't read or write, forgot how to do things like flush toilet find things in the house etc.

started bumping into things on affected side. couldn't be left alone confusion progressed.

remained fit walking everywhere but this thing effected cognitive and speech , couldn't thing what was trying to say or read or write happened so fast.

easter weekend was sick then never spoke or able to walk again. 

had nurses and carers in to help us care for 2 weeks -Refused all meds. Couldn't speak still but got nods head shakes understood what we were saying. 

The last week went into hospice as too weak for us to move, stopped drinking  -  the sleeping started. And syringe driver fitted. Never got any recognition again passed within 6 days in the hospice. 

It's been 3 weeks and I'm constantly asking myself if we could have done anything differently to change the outcome.

My heart is broken x

  • I'm not a medic but know how serious glioblastoma is. And the doctors made that clear too. So the patient (your partner?) makes his/her choice: medical treatment, with heavy side effects, in exchange for a few more months of life, or no medical treatment. You respected that choice. So you definitely did the right thing.
    Your loved one fell ill, then died, in an incredibly short space of time. This is so sad.
    Wishing you all the very best. xx Harry

  • Hi Harry,

    Thank you for your supportive message this has helped me see things for how they were. 

    The patient was my mum xxx

  • Hi Merlotmemories,

    I'm very sorry for your loss. 

    It sounds like there was nothing more that could be done. My Dad was re-diagnosed with cancer after being told he was cured (first diagnosed 2020), his only symptom was back pain. We lost him 8 weeks after he was diagnosed. He went from being incredibly fit and active to deteriorating rapidly and passing away in hospice in November 2022. 

     

    I have been over everything that happened a million times in my head, esoscialky in the first months after dad died. When we first found out it was cancer I went into "fix it" mode and looked for anything that could help prolong Dad's life. My Dad died before we even got to discuss if there was any treatment options but I know he wouldn't have wanted any as the cancer was advanced. 

    I do not know about glioblastoma but when a cancer is as aggressive as it seems that our parents cancer was there is often nothing that can help. Feelings of regret, unanswered questions and guilt plagued me for months, it is part of the grief. I now know I did everything I could and more for my Dad and things were out of my control. 

    It has been six months since I lost my Dad. He is my favourite person in the world and I miss him everyday. I didn't think it possible but I have been able to carry on despite the sadness and I am now starting to remember all the great years we had together. 

    Please be gentle with yourself. 

    Xx