5 months from the beginning to the end, the speed this thing progressed was disgusting.
1st seizure age 55 was the first symptom in November- went to hospital scan showed nothing
2 more seizures in December
1 big seizure in January
Mri in feb showed a 5cm tumour
end of feb given 2 months to live without treatment up to a few months more with surgery and chemo radio but said best case scenario
Decided no treatment totally healthy diet and cannabis oil wouldn't even take steroids or anti seizure meds.
seizure 2nd March - after this very confused , couldn't read or write, forgot how to do things like flush toilet find things in the house etc.
started bumping into things on affected side. couldn't be left alone confusion progressed.
remained fit walking everywhere but this thing effected cognitive and speech , couldn't thing what was trying to say or read or write happened so fast.
easter weekend was sick then never spoke or able to walk again.
had nurses and carers in to help us care for 2 weeks -Refused all meds. Couldn't speak still but got nods head shakes understood what we were saying.
The last week went into hospice as too weak for us to move, stopped drinking - the sleeping started. And syringe driver fitted. Never got any recognition again passed within 6 days in the hospice.
It's been 3 weeks and I'm constantly asking myself if we could have done anything differently to change the outcome.
My heart is broken x
