I cannot process a sudden loss of my mum and I cannot cope

It is long, but I have nobody else to tell. 

My mum worked hard all her life (hard physical work at factory), retired in 2018 and got ovarian cancer, chemo started shortly with a view to remove the tumour after. She had very bad luck, she had a bowel obstruction after the first-round chemo, gets colostomy, continues with chemo, stoma fails and had ileostomy. Finishes chemo and had her debulking operation (which was very extensive as the cancer was spread everywhere). We were told a number of times she is not going to make it, but she pulled through, she was such a fighter. She had more rounds chemo in 2019, 2020 and 2021 but nothing in 2022 as her remaining tumour was stable (it was only few millimetres big but it was on a lymph node so they couldn’t remove it). She had a scan on 29 December 2022, the tumour moved by just millimetre or so but after 14 months it showed some activity. They decided for a short round of chemo, we had a chat with the doctors, they were optimistic as she has always reacted to chemo well. The doctor tried to reassure me, not to worry, there are other options if this chemo fails. Your mum is strong and stable.

She gets chemo on 9th Jan, I spoke to her that day, she was fine. I didn’t speak to her to for the rest of the week. Dad calls me on Saturday morning (14th Jan). Mum had some fever on Wednesday (~37C) but it was gone in the morning, so they did nothing and mum felt good on Thursday. She was a bit uncomfortable on Friday morning but didn’t want to go to hospital, but by afternoon she had difficulties breathing so dad took her to a local hospital. Apparently, they couldn’t find her blood pressure but excluded covid and called the specialist hospital where mum had chemo for a course of actions, antibiotics etc were administered immediately. Dad says when he left on Friday evening mum was not in pain, she just chatted to him as normal, they agreed to talk next day as when to pick her up. He gets a call at 3am when the full blood results came in, the doctor saying they found bacteria and with chemo wiping her white blood cells and not having spleen (had to be removed during the debulking operation), her body has no protection, she is not responding to antibiotics, and she is not going to make it. He called me in the morning, I understood what he was saying but I didn’t at the same time. I was sitting there, not believing, she was fine yesterday so why she would not make it? We also heard it so many times, that I found it hard to believe it would be this time, she was fine last week. I couldn’t find any flight to get me home right that day (I live in the UK, but my family is back in the Czech Republic), so I booked one for the next morning. Dad calls again at 5pm on Saturday, and she was gone.

It has been 3 weeks and I cannot explain how I feel. I am grateful for the extra years she had and somehow, I am grateful that she passed away sort of peacefully. I hope they never told her how serious it was, apparently, she was sleeping in the morning, and she slipped into coma after lunch, never woke up.

At the same time, I am so angry and in so much pain. I am so angry with myself, normally I called my mum every other day, but somehow that week I didn’t. I spoke to her on Monday, messaged on Tuesday but then didn’t call. Left it until the weekend and then I never spoke to her ever again. I am going through my mind why I didn’t call, I though of her a lot that week but didn’t call. I am so upset with myself; I feel like I could have saved her. If I knew she had fever on Wednesday, I would press on them to go to hospital sooner. I feel like I failed my mum.

I am angry with my mum, as she always left everything late, hence some of the issues she had. I am sure she felt bad for some time but waited until it was too late. She always did everything for everyone but neglected herself.

I am angry with dad for not taking her to hospital sooner. He knew she is high risk, and he didn’t take her when she had fever. He didn’t press on her on Friday morning to go, even though he knew she always hid her pain. I know that he suffers, so I would never tell him to hurt him, but I blame him.  

I am angry with the world. I went from being so proud of her, that she recovered to suddenly loosing her. In my mind, she was here for longer, I never expected to lose her so unexpectedly, never say goodbye. I suffered many miscarriages over the years, but my husband and I keep trying, I always believed that one day my mum will hold my child in her arms. Suddenly she is no longer, I don’t understand how it happened so fast, 24 hours and she was gone. I can never tell her how much I love her and how grateful I am for everything she did for me. How life can be so cruel and unfair. She was the kindest person ever; her funeral was so painful as everyone told me how kind my mother was. It didn’t help me, it just made me angrier that God made her suffer so much and when she finally had her smile back and was looking forward to finally enjoy her retirement, he lets her die. Something that could have been prevented, if she got help faster. She just turned 66, she had so many years ahead of her and she was robbed of it. I was robbed of my mum, my dad of his partner of 45 years. I cannot make sense of her death; I cannot sleep as I feel that we failed to save her. I don’t know if the pain will ever stop, but at this point it is unbearable and I feel like I cannot continue with my life, I keep thinking if only I called, she would be alive. 

Parents
  • Hi MartinaLi

    I am so very sorry for your loss... I have very similar thoughts to you. I lost my mother over a year ago and although time has made the pain a bit more bearable, there's a lot of it still here...

    My feelings when I lost her were the same as yours, a lot of anger, guilt, blaming the doctors, my brothers, my father, my mother, myself! Why my dad didn't take her to hospital sooner, why she left it until the last minute and didn't look after herself more, why I wasn't there the morning she died, why the doctors and nurses didn't try harder and seemed to be indifferent towards a dying person etc...

    I believe it is very common when you're in so much pain to feel like that. To believe that you could have saved her and maybe yes, you or your father or your mother or the doctor could have done something to keep her alive for what, another day? Week? I think my mother was very very very tired from all the chemo, hospital visits and all that. Maybe your mother was too! Maybe they wanted this to end, to be finally in peace. It is what it is. It is still very fresh for you. I've found some comfort in therapy and I'm starting to remember all those happy times I had with her! They will start to come back for you too. Your mother gave a long fight and I cannot even imagine the exhaustion she must have been feeling from all those operations, rounds of chemo, hospital visits. My mother too. I miss her badly but I think she wanted to leave... 

  • Thank you for your kind words. Indeed, my mum endured a lot and the chemos were making her tired. But she was a fighter, she knew that her prognosis was good and it was driving her, she was always full of smiles regardless of anything. 

    I questioned my dad again, I know that I have to stop but not being there, it tortures me that I don't know what happened and I could not help her. Her fever was 37.2/37.3C on Wednesday, just below the recommended 37.5/38 when you are supposed to call the helpline, and it was gone the next morning. I sort of understand why they were not worried and did not pay attention, I know they just seriously underestimated the situation and never expected this would be the outcome. But she was a bit under the weather and they should have acted faster, not to wait until Friday evening. The idea, that if they went to hospital sooner and they could have saved her, is just killing me. My mum loved life and I was always amazed how she was so happy and excited about small things. She came from a very modest background and she was grateful for so little, I dont think I can actually describe it. And now, when I am in position to repay her for everything, she dies of something that could have been prevented at such a young age. Life is pretty cruel to many kind people. 

  • Hi MartinaLi

    I hope you are doing a bit better and I am sorry for taking so long to respond to your message. Your mother reminds me a lot of my mother! All what you're saying about her appreciating those small things, loving life and all that! I remember when my mother was already going downhill and I asked her if not being able to even leave the house or take a walk made her feel depressed and she would smile and say that being able to see a beautiful sunrise or her flowers from inside the window and simply waking up to a new day made her very grateful! The quality of her life was bad but she loved life and I understand how you're feeling... Life is cruel indeed and usually towards those kind people, maybe because they cared for others more and did not look after themselves as much as they should have!

    I really hope you'll start to feel a bit better day by day!

    Sending you a warm hug!

    B

  • Hi Betty, 

    Thank you for coming back to me. Not sure if I am better, I got some pills from my GP which keep me sort of sane. I continue to miss my mum so much, but mainly it is the regret that she lost her life so early. 66 is not the age to go. And the way that was done.... beating cancer and then she passes away from bacteria... I  have an endless loop in my head of how close she was to saving if they went to hospital faster.... it is like a self torture but it doesnt want to go away. All I see is her smile. 

    I promised to take her on holiday after she finishes chemo, a little treat for being so brave. The chemo would actually be nearly over now, I should be planning a holiday with her and not be going through this. The thought of it is just slowly killing me inside. 

  • Oh I wish I could give you a very warm hug just now. My mother passed away from bacteria too, her blood pressure was so low that when both my mother and father decided to go to the hospital her pressure was that of a dead person's. And believe me, I had been insisting for a week but she hated hospitals after 30 years of being in and out so I kind of understand it.

    I really don't know how to help you feel better. Our stories have so many similarities but I understand your mother's very sudden death from one day to the other is harsh. But it's also harsh to see someone not giving up for days and the medical staff chatting above her head about their dinner the night before.

    I was also on medication and tranquillisers to help me sleep and the first year was real hell, torture as you described. I also promised her a nice holiday to Switzerland and she never got to travel abroad... 

    I really feel for you MartinaLi and I wish I could say something to make your pain more manageable but this is a process you'll have to go through yourself. What I learnt is that when you reach deep deep down bottom and you see no light, this is the time when you push the ground so hard to get up again. 

    It'll take time. I'm still in that darkness but now there's some light ahead.

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  • Oh I wish I could give you a very warm hug just now. My mother passed away from bacteria too, her blood pressure was so low that when both my mother and father decided to go to the hospital her pressure was that of a dead person's. And believe me, I had been insisting for a week but she hated hospitals after 30 years of being in and out so I kind of understand it.

    I really don't know how to help you feel better. Our stories have so many similarities but I understand your mother's very sudden death from one day to the other is harsh. But it's also harsh to see someone not giving up for days and the medical staff chatting above her head about their dinner the night before.

    I was also on medication and tranquillisers to help me sleep and the first year was real hell, torture as you described. I also promised her a nice holiday to Switzerland and she never got to travel abroad... 

    I really feel for you MartinaLi and I wish I could say something to make your pain more manageable but this is a process you'll have to go through yourself. What I learnt is that when you reach deep deep down bottom and you see no light, this is the time when you push the ground so hard to get up again. 

    It'll take time. I'm still in that darkness but now there's some light ahead.

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