I cannot process a sudden loss of my mum and I cannot cope

It is long, but I have nobody else to tell. 

My mum worked hard all her life (hard physical work at factory), retired in 2018 and got ovarian cancer, chemo started shortly with a view to remove the tumour after. She had very bad luck, she had a bowel obstruction after the first-round chemo, gets colostomy, continues with chemo, stoma fails and had ileostomy. Finishes chemo and had her debulking operation (which was very extensive as the cancer was spread everywhere). We were told a number of times she is not going to make it, but she pulled through, she was such a fighter. She had more rounds chemo in 2019, 2020 and 2021 but nothing in 2022 as her remaining tumour was stable (it was only few millimetres big but it was on a lymph node so they couldn’t remove it). She had a scan on 29 December 2022, the tumour moved by just millimetre or so but after 14 months it showed some activity. They decided for a short round of chemo, we had a chat with the doctors, they were optimistic as she has always reacted to chemo well. The doctor tried to reassure me, not to worry, there are other options if this chemo fails. Your mum is strong and stable.

She gets chemo on 9th Jan, I spoke to her that day, she was fine. I didn’t speak to her to for the rest of the week. Dad calls me on Saturday morning (14th Jan). Mum had some fever on Wednesday (~37C) but it was gone in the morning, so they did nothing and mum felt good on Thursday. She was a bit uncomfortable on Friday morning but didn’t want to go to hospital, but by afternoon she had difficulties breathing so dad took her to a local hospital. Apparently, they couldn’t find her blood pressure but excluded covid and called the specialist hospital where mum had chemo for a course of actions, antibiotics etc were administered immediately. Dad says when he left on Friday evening mum was not in pain, she just chatted to him as normal, they agreed to talk next day as when to pick her up. He gets a call at 3am when the full blood results came in, the doctor saying they found bacteria and with chemo wiping her white blood cells and not having spleen (had to be removed during the debulking operation), her body has no protection, she is not responding to antibiotics, and she is not going to make it. He called me in the morning, I understood what he was saying but I didn’t at the same time. I was sitting there, not believing, she was fine yesterday so why she would not make it? We also heard it so many times, that I found it hard to believe it would be this time, she was fine last week. I couldn’t find any flight to get me home right that day (I live in the UK, but my family is back in the Czech Republic), so I booked one for the next morning. Dad calls again at 5pm on Saturday, and she was gone.

It has been 3 weeks and I cannot explain how I feel. I am grateful for the extra years she had and somehow, I am grateful that she passed away sort of peacefully. I hope they never told her how serious it was, apparently, she was sleeping in the morning, and she slipped into coma after lunch, never woke up.

At the same time, I am so angry and in so much pain. I am so angry with myself, normally I called my mum every other day, but somehow that week I didn’t. I spoke to her on Monday, messaged on Tuesday but then didn’t call. Left it until the weekend and then I never spoke to her ever again. I am going through my mind why I didn’t call, I though of her a lot that week but didn’t call. I am so upset with myself; I feel like I could have saved her. If I knew she had fever on Wednesday, I would press on them to go to hospital sooner. I feel like I failed my mum.

I am angry with my mum, as she always left everything late, hence some of the issues she had. I am sure she felt bad for some time but waited until it was too late. She always did everything for everyone but neglected herself.

I am angry with dad for not taking her to hospital sooner. He knew she is high risk, and he didn’t take her when she had fever. He didn’t press on her on Friday morning to go, even though he knew she always hid her pain. I know that he suffers, so I would never tell him to hurt him, but I blame him.  

I am angry with the world. I went from being so proud of her, that she recovered to suddenly loosing her. In my mind, she was here for longer, I never expected to lose her so unexpectedly, never say goodbye. I suffered many miscarriages over the years, but my husband and I keep trying, I always believed that one day my mum will hold my child in her arms. Suddenly she is no longer, I don’t understand how it happened so fast, 24 hours and she was gone. I can never tell her how much I love her and how grateful I am for everything she did for me. How life can be so cruel and unfair. She was the kindest person ever; her funeral was so painful as everyone told me how kind my mother was. It didn’t help me, it just made me angrier that God made her suffer so much and when she finally had her smile back and was looking forward to finally enjoy her retirement, he lets her die. Something that could have been prevented, if she got help faster. She just turned 66, she had so many years ahead of her and she was robbed of it. I was robbed of my mum, my dad of his partner of 45 years. I cannot make sense of her death; I cannot sleep as I feel that we failed to save her. I don’t know if the pain will ever stop, but at this point it is unbearable and I feel like I cannot continue with my life, I keep thinking if only I called, she would be alive. 

Parents
  • I know you don't really blame your dad, and you're just feeling lost and hurt as most people would. But As someone who has been in your dad's position, I can see why you're saying what you are about him. But something i learned after my wife's first few hospital visits during chemo, no adult can make another adult do anything they don't want to do.

    My wife ended up in hospital after each and every chemo due to sky high temps. We both knew those visits would ensue after the 3rd chemo. Her body just reacted to the chemo weirdly. She always got a raging temp. However, towards the end of the chemo, it got harder and harder to get her to go to hospital. When you're feeling like death, the last thing you want to do is get out your bed, but i had to get her out. Even getting her to call the cancer helpline was a task in itself.  In fact, she readily admits she didn't ever want to tell me because I'd force her after a lot of nagging to get in. Even though none of those high temps were ever an infection, it would have just taken one of them to have been an infection. Towards the end, I actually dreaded the post chemo temp spike. Like really dreaded it because my wife began getting a touch hostile towards me telling her to get her *** into hospital. So if your mum was even more stubborn than my wife, your dad couldn't have changed anything.

Reply
  • I know you don't really blame your dad, and you're just feeling lost and hurt as most people would. But As someone who has been in your dad's position, I can see why you're saying what you are about him. But something i learned after my wife's first few hospital visits during chemo, no adult can make another adult do anything they don't want to do.

    My wife ended up in hospital after each and every chemo due to sky high temps. We both knew those visits would ensue after the 3rd chemo. Her body just reacted to the chemo weirdly. She always got a raging temp. However, towards the end of the chemo, it got harder and harder to get her to go to hospital. When you're feeling like death, the last thing you want to do is get out your bed, but i had to get her out. Even getting her to call the cancer helpline was a task in itself.  In fact, she readily admits she didn't ever want to tell me because I'd force her after a lot of nagging to get in. Even though none of those high temps were ever an infection, it would have just taken one of them to have been an infection. Towards the end, I actually dreaded the post chemo temp spike. Like really dreaded it because my wife began getting a touch hostile towards me telling her to get her *** into hospital. So if your mum was even more stubborn than my wife, your dad couldn't have changed anything.

Children
  • I hear what you are saying and I know you are right, but right now the pain of losing mum is too much. All I keep thinking if only they went to hospital sooner, she would be here. If she had passed away becasue the treament didnt work and nothing else could be done for her, I would somehow understand. But they even didnt call her hospital to dicuss the fever and just left it. When I arrived Dad kept saying but she was fine on Thursday, all was good, and she didnt want to go in on Friday monring... I wanted to hit him but instead hugged him as I know he is in pain.